|Member Since||09/20/2010 11:54 AM|
|Last Online||08/18/2011 06:24 AM|
|Country:||United States of America|
|Blog:||Janet's Lyme Blog|
|A little about me:||At age 3(in 1951) I had "glandular fever" which i found out later is mono. I was sick with a low grade fever for 9 months. I lived in NYC at the time.
My mother always told me that any time i was sick, the glands on my neck would be swollen first.
At age 12 we moved to MA.
I had mono again at age 18.
Married in 1972 at age 24. Shortly after had TMJD issues.
Had son age 27, age 30 had daughter.
Both were terrible sleepers and i never got a good night sleep after their births!
When i was 30 (1978)we moved to another home. I started a garden in our backyard. I had many mosquito bites, was one of them a tick??? I have no idea.
Shortly after the garden, I had a horrific headache.
Husband Ed took me to the hospital. Drs (there were many) just stood around me on a table and did nothing! No tests, no x-rays, no mri's - nothing!
They sent me home with an rx for an antibiotic. The consensus was that i had a virus- so how was the abx going to help this???
Anyway a few days later i felt better, but I went downhill from there.
I was constantly tired and had headaches. Confused, irritable, never sleeping properly. I was in terrible pain all over.
This was around 1981 - 1982.
I finally got a dx of Fibromyalgia. I thought - well at least I know what it is! (NOT)
Maybe a decade later I was dx with CFIDS. I joined several support groups for both these illnesses and it helped to have the support.
As you can imagine, I went to many drs during this time. Every "-ologist" i could find, spending thousands of dollars.
In the late 90's I went to a dr in NJ who specialised in CFIDS. I stayed at a friends house nearby and went to this clinic every day.
Countless tests and proceedures later, dr sent me home with meds, supplements and vitamin shots that my daughter did for me.
This dr had no respect for women and i stopped treatments after about 6 months.
Then I heard about a dr in upstate NY for chemical sensitivities.
I stayed nearby and again went through countless tests, etc.
She sent me home with meds, supplements, and allergy shots, administered by my local dr. This didn't seem to be an answer either.
About 10 years ago i had a hysterectomy and this actually helped to make me feel a lot better.
The fibroids - were they filled with lyme?
About 9 years ago i moved to PA to be near family.
A friend's daughter was dx with lyme and bartonella about 2 years ago.
Amanda convinced me that i needed to look into this dx. My daughter and I went to this lyme literate dr and we were both dx with lyme and babesia.
My daughter is more positive with lyme than me. my symptoms are such that the dr feels i do have this.
My FISH test came back positive to Babesia, so this is more of an issue for me.
Now i finally have a real dx but i have been going to this dr for over a year and still not feeling any better.
When i think of all the money and time i went through, it makes me depressed.
But i am a positive person, and at age 62 i still have a life left.
I worry about my daughter. She is 32 and is planning on getting married next year.
My son had bells palsy last year - had a lyme test and it was negative.
My husband has a lot of symptoms also but because of money will not even go for testing.
|Hello everyone, I'd love to announce the first online MSIDS Support Group here on MDJ!!! Come find us!!!
|Hugs to all the wonderful Lyme Forum members... Remember, you are not alone. We have such a wonderful group of compassionate people. blessings and light ~ purple
|Just sending out a quick hug to everyone. I know the struggle can really wear you down, but there is always a light at the end of the tunnel...you can and will get better...should you fall...we will help you dust yourself off and pick yourself up...You are each and everyone of you worth it...Lots of love to everyone...
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