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MDJunction to me

Hazeldee"MDJunction means that I no longer have to feel like I am the only person in
the world with pericarditis. It means that I can talk to others who know
how stressful and how painful having pericarditis can be. It means that I
connect with others to discuss treatments that have or haven't worked for us, so that we have a leg to stand on. I think that having my friends at
MDJunction has allowed me to better mentally and emotionally process my
diagnosis and what it means to me. I feel so lucky to have this community
available to me. I use MDJunction as a way to use my experience to help
others. Reaching out to help others is the only solace I have found since
being diagnosed with pericarditis.
" (Hazeldee)

MDJunction testimonials
janw1220
janw1220
Rank Member
Online Status OFFLINE
Member Since 09/20/2010 11:54 AM
Last Online 08/18/2011 06:24 AM
Gender: Female
Birthdate: 12/20/2012
City: Philadelphia
State: Pennsylvania
Country: United States of America
Occupation: retired
Blog: Janet's Lyme Blog
A little about me: At age 3(in 1951) I had "glandular fever" which i found out later is mono. I was sick with a low grade fever for 9 months. I lived in NYC at the time.

My mother always told me that any time i was sick, the glands on my neck would be swollen first.

At age 12 we moved to MA.

I had mono again at age 18.

Married in 1972 at age 24. Shortly after had TMJD issues.

Had son age 27, age 30 had daughter.

Both were terrible sleepers and i never got a good night sleep after their births!

When i was 30 (1978)we moved to another home. I started a garden in our backyard. I had many mosquito bites, was one of them a tick??? I have no idea.

Shortly after the garden, I had a horrific headache.

Husband Ed took me to the hospital. Drs (there were many) just stood around me on a table and did nothing! No tests, no x-rays, no mri's - nothing!

They sent me home with an rx for an antibiotic. The consensus was that i had a virus- so how was the abx going to help this???

Anyway a few days later i felt better, but I went downhill from there.

I was constantly tired and had headaches. Confused, irritable, never sleeping properly. I was in terrible pain all over.

This was around 1981 - 1982.

I finally got a dx of Fibromyalgia. I thought - well at least I know what it is! (NOT)

Maybe a decade later I was dx with CFIDS. I joined several support groups for both these illnesses and it helped to have the support.

As you can imagine, I went to many drs during this time. Every "-ologist" i could find, spending thousands of dollars.

In the late 90's I went to a dr in NJ who specialised in CFIDS. I stayed at a friends house nearby and went to this clinic every day.

Countless tests and proceedures later, dr sent me home with meds, supplements and vitamin shots that my daughter did for me.

This dr had no respect for women and i stopped treatments after about 6 months.

Then I heard about a dr in upstate NY for chemical sensitivities.

I stayed nearby and again went through countless tests, etc.

She sent me home with meds, supplements, and allergy shots, administered by my local dr. This didn't seem to be an answer either.

About 10 years ago i had a hysterectomy and this actually helped to make me feel a lot better.

The fibroids - were they filled with lyme?

About 9 years ago i moved to PA to be near family.

A friend's daughter was dx with lyme and bartonella about 2 years ago.

Amanda convinced me that i needed to look into this dx. My daughter and I went to this lyme literate dr and we were both dx with lyme and babesia.

My daughter is more positive with lyme than me. my symptoms are such that the dr feels i do have this.

My FISH test came back positive to Babesia, so this is more of an issue for me.

Now i finally have a real dx but i have been going to this dr for over a year and still not feeling any better.

When i think of all the money and time i went through, it makes me depressed.

But i am a positive person, and at age 62 i still have a life left.

I worry about my daughter. She is 32 and is planning on getting married next year.

My son had bells palsy last year - had a lyme test and it was negative.

My husband has a lot of symptoms also but because of money will not even go for testing.



My Awareness Ribbons
 
"I have lyme and babesia"
 
"osteoporsis, fibromyalgia and chronic fatigue syndrome"
 
"asthma"
 
"fms, chronic pain"
Awareness Ribbons

My Hugs
purpleyogamat gave me a Hug
03/13/2014 08:38 AM
a HugHello fellow Lyme Warrior :) I hope you are well. Please take a moment to check the LLMD Requests forum on the Lyme Group. We have changed how LLMD Requests are done. Please make sure any links you post have been updated to the new sticky :) blessings, purple

purpleyogamat gave me a Hug
01/06/2014 05:17 PM
a HugDear members,

I regret to inform you that the member "Creidim" was all a hoax. Please see the post about it in the General forum. If you are in contact with any of Creidim's "family" members - please stop all communication and block that person. This is a very sad day for us in the Lyme Group. I am sorry for those of you who mourned this person. Your pain was REAL. Please know the leaders are here if you need us. blessings, purple

purpleyogamat gave me a Hug
12/24/2013 09:45 AM
a HugSending blessings, healing, and love this holiday season. hugs, purple

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