kfwolfe
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| Rank | Member |
| Online Status | OFFLINE |
| Member Since | 09/18/2010 02:38 AM |
| Last Online | 05/23/2013 12:52 AM |
| Gender: | Female |
| Birthdate: | 08/22/1967 |
| City: | Longmont |
| State: | Colorado |
| Country: | United States of America |
| Occupation: | Pain Management Consultant |
| Blog: | kfwolfe.wordpress.com |
| A little about me: | I am a 43 year old woman, suffering from CRPS for 12 years. I have recently discovered the disease, which began in my right foot, has progressed. It is now through much of my body, including my organs. I spent 7 years in a wheel chair, 6 of them with open wounds on both feet. I am dancing and walking today!! While more challenging than ever, this journey is a worthwhile one!!! I am doing research myself, and finding much that helps. I also believe I may have stumbled upon something that may lead to remission. I need to do further research. I will keep you posted here and on my blog site. I will also be publishing the story of my experience ... a story of hope ... in the next couple of months, or so. As many of you know, I cannot always dictate the amount of work I can get done ... there are good days and bad. Such is the process of life ... changing like the tides ... up then down ... then we do it again tomorrow! For those like myself suffering from this disease, or one similar ... I applaud you for your efforts, and encourage you to keep trying ... even though the pain drowns you in the darkness. I believe our willingness and ability to accept the pain means we have the equivelant ability to experience joy and love in our hearts. Most don't feel this level of physical and emotional pain ... but remember ... most don't feel the joy we are capable of either. This is true for me ... I have more pain than ever ... but I have more joy than ever, as well. This is my journey, for now. There is hope ... I truly believe I can heal my heart, and my mind, body and spirit will follow!! |
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"While chronic pain can be debilitating at times ... those of us challenged with this journey are the strongest people I know!!! There is HOPE ... we can heal ... we can manage ... we can find peace!" |
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My Hugs
 | Dear Members of the RSD Support Group, This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD. Our new leadership team has developed a Mission Statement we would like to share with you: "To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand." ​We see our main​ job ​as ​ ensur ​ing that this forum is a positive experience for all members: a place you can find friendship, learn about ​our condition, and find ​a safe ​ space to express your experiences ​and feelings​ . You can read about our new, simplified group rules here: http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/general-support/10635134-welcome-message-and-group-rules-for-the-rsd-support-group, and read about ​each of ​ our goals for the group in our leadership profiles here: http://www.mdjunction.com/reflex-sympathetic-dystrophy/group-leaders We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you! With Love, Peace, and Aloha, Howard, Jenny and Julie |
| Sending BIG WARM GENTLE HUGS to all. |
| Dear Friends, I am writing to let you know that I have volunteered to co-lead the RSD Support Group. I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare? I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience. I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family. I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering. I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation. Thank you for this opportunity to be of service, Mahalo, Jenny |
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My Diary
Living With CRPS
A journal of my pain, and my joy. Of course, it's a process, it's a journey ... painful, yet so worthwhile!
A journal of my pain, and my joy. Of course, it's a process, it's a journey ... painful, yet so worthwhile!
| Title | Date | Views | Comments |
| The Money Experiment ... | 01/26/2011 | 161 | 0 |
| A most beautiful day for a vision quest ... | 12/10/2010 | 156 | 0 |
| It's not what it looks like! | 11/25/2010 | 157 | 2 |
| Feeling a bit lost and sad tonight .... | 10/14/2010 | 253 | 2 |
| A most difficult day ... | 09/24/2010 | 156 | 2 |
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There is hope ... for chronic pain and CRPS/RSDS
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My Recent Posts
| Connection Between CRPS/RSDS a... | 10/25/2010 | ||
| Connection Between CRPS/RSDS a... | 10/24/2010 | ||
| Connection Between CRPS/RSDS a... | 10/22/2010 | ||
| Connection Between CRPS/RSDS a... | 10/21/2010 | ||
| Connection Between CRPS/RSDS a... | 10/21/2010 | ||
| Connection Between CRPS/RSDS a... | 10/19/2010 | ||
| Connection between CRPS/RSD an... | 10/19/2010 | ||
| Ketamine Infusion | 09/23/2010 | ||
| Ketamine Infusion | 09/23/2010 | ||
| Ketamine Infusion | 09/23/2010 | ||
| Ketamine Infusion | 09/18/2010 | ||
| Ketamine Infusion | 09/18/2010 | ||
| Ketamine Infusion | 09/18/2010 | ||
My Articles