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imsoblue"I was completely bewildered when I received my diagnosis of HH and cirrhosis. For so many years I had been told that what I was feeling was due to "old age", and I am 61 years old. I knew nothing about hemochromatosis or what to expect and even my family doctor did not have a clue. I found MDJ when I started to search on the internet. I have received so much compassion and education here. I am most grateful that I had the support from the cirrhosis group when I had my first episode of HE. I now know what I need to do to try keep this from happening. (lactulose). I feel very close to the people here. My goal is to educate people about HH and to support those affected by it. I read people's posts and I can just sense when people are feeling that absolute bewilderment. Thank you so much for all that all of you do for others." (imsoblue)

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nancywilson66
nancywilson66
Rank New Member
Online Status OFFLINE
Member Since 05/20/2010 07:19 AM
Last Online 05/22/2010 01:48 PM
Gender: Female
City: BPT
State: Connecticut
A little about me: I AM A FIBROMYALGIA PATIENT WHO WAS DIAGNOSED IN 2006.
My Awareness Ribbons
  "I WEAR THE PURPLE RIBBON BECAUSE I WAS DIAGNOSED WITH FIBROMYALGIA IN 2006."
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My Hugs
oregonnative gave me a Hug
03/17/2014 12:04 PM
a HugGood middle of March my friends! :) We on the group and specifically myself, are sure missing seeing all your sweet selves on the forum lately. How about a drop-in soon and give us an update? We wuld love to hear from you! They say, "No news is good news." But in a support group such as ours, we only worry that you must be too ill to post. :( Okay, that was a a cheesy attempt at a guilt trip. :D But I truly do hope to hear how each and every one of you is faring these days. <3

Hugs and much love,
Mama Bear Karen

oregonnative gave me a Hug
11/08/2013 07:31 AM
a HugI'm thinking about you all and hope you have a relatively low pain day. I know, a no pain day would be wonderful!! Hope for that too. :) Love and hugs!

oregonnative gave me a Hug
09/13/2013 08:13 AM
a HugBig gentle hugs to you all. I haven't forgotten about you, just dealing with HS in a big way and can't sit to type for long. :p I think about you every day, (more than once) and know you are there anytime I need you. PM me if you need me for ANYTHING right now, okay dear ones? Sending my love across the miles!! <3

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My Diary
Nancy Wilson
I am scared.....don't know what is going on with my blood work.
My pain has been unrelenting and I am exhausted.
TitleDateViewsComments
I AM DISAPPOINTED WITH MYSELF 05/21/2010  132 2
I AM SCARED....... 05/20/2010  104 0
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