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MDJunction to me

Hazeldee"MDJunction means that I no longer have to feel like I am the only person in
the world with pericarditis. It means that I can talk to others who know
how stressful and how painful having pericarditis can be. It means that I
connect with others to discuss treatments that have or haven't worked for us, so that we have a leg to stand on. I think that having my friends at
MDJunction has allowed me to better mentally and emotionally process my
diagnosis and what it means to me. I feel so lucky to have this community
available to me. I use MDJunction as a way to use my experience to help
others. Reaching out to help others is the only solace I have found since
being diagnosed with pericarditis.
" (Hazeldee)

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kelcan
kelcan
Rank Member
Online Status OFFLINE
Member Since 03/02/2010 09:06 PM
Last Online 05/14/2011 11:53 PM
A little about me: I am 30yrs old and tested positive for lyme in Feb 2010.


I came down with Bells palsey in June of 09. I recovered quickly and i didnt think much of it or think it was lyme.

I camp and hike a lot and do not remember getting bit by a tick ever.

Then I got sick this past Jan.

My right knee started hurting, then my right elbow. I started having anxiety and was depressed and paranoid.

Then came the nausea, muscle spasms, unable to sleep, and loss of apatite.
That is when I finally went to Urgent care.

They told me I had mono. Luckily my ND ran some blood test and they came back negative for epstein barr. That is when she tested me for lyme.

After reading about how so many people go undiagnosed with lyme for so long I feel really luck that I was tested for it right away.

Other symptoms I have are loss of memory, hard time concentrating, heart palpitations, muscle spasms, cracking joints, headaches, fatigue, moodiness.

Also...Creepy crawly feelings under my skin, Craving for sugar.

I feel worse in the mornings
I feel worse on rainy days.
I generally feel like I have been hit by a truck.

I feel like I am in slow motion and the rest of the world is moving at full speed. I have a hard time getting anything done.

On good days I am lucky to just get chores done around the house. Some days getting dressed and moving from the bed to the couch is all I can do.

It is hard to not get depressed when my life has drastically changed almost over night.

I am glad to have found this forum. People are really helpful and willing to share.

I hope I can help and share too!

I am waiting to get back some more blood tests before the dr puts me on abx but
here are some things that have been working for me the past month:

When I first got sick my ND suggested I take powdered magnesium. It really calmed down my muscles and my anxiety.

I also have been soaking in epsom salt baths. That helps my muscles and joints stop aching.

I read online that bacteria eats sugar so I have cut sugar out of my diet. I generally dont eat much sugar so it wasnt too hard for me to do, except that I have been craving sugar lately...

I started Abx at the end of March. 1,000mg of Flagyl and Biaxin. After three days of feeling really good I started herxing pretty bad.

I am very dizzy, nauseous, achy all over, extremely tired and emotional.

Looking forward to the day I feel better again.


On April 8th,2010 I had a night of no sleep due to severe pain and trembeling. In the morning i tired to take a shower and almost passed out, then vomited bile.
Then i was in severe pain all over my body. I comtemplated going to the ER but decided to not waste my money.

I stopped taking the abx and called my doctor on Monday morning. He agreed that it was a reaction to Flagyl and has taken me off it for good.

UPDATE:
14MAY 2011

Hi all, It has been a while since I have been on here. I wanted to give an update. I continued my antibiotic treatment switching from Cedax and Zithromax to Biaxin and Amox. in Sept. I was taken off abx for good in mid Jan.
It was amazing to go off abx. Most of the lyme symptoms had disappeared and it was nice to be free of the side effects of the abx. I started to feel like my old self about a week after stopping.

I went to Iceland for a month in Feb. to do an artist residency. I have been painting my a** off since March.

I still sleep 10-12 hours a day, my doctor says I shouldn't worry about that. But when I am awake I have a full day of energy. It is sooo nice to have my brain back and to feel like a normal human being again. I get sooo upset thinking about how sick I was now that I have the distance to look back on last year and reflect.
My Hugs
cmany gave me a Hug
05/21/2013 10:13 AM
a HugJust sending out a quick hug to everyone. I know the struggle can really wear you down, but there is always a light at the end of the tunnel...you can and will get better...should you fall...we will help you dust yourself off and pick yourself up...You are each and everyone of you worth it...Lots of love to everyone...

purpleyogamat gave me a Hug
05/07/2013 12:06 AM
a HugSending hugs and prayers to you, my fellow Lyme Warriors.... Let us stand strong and united this weekend for Worldwide Lyme Disease Protest day... Let us speak the truth... the ugly, shocking, scary, unbelievable truth... Let us be heard... and Let us be healed. *hugs and prayers* purple

purpleyogamat gave me a Hug
04/04/2013 06:38 PM
a HugHugs to all my fellow Lyme Warriors and Lyme Supporters :)~~~~~~~

Until the site problems are cleared up. ~~~~~Please use the GREEN REPLY button instead of the quick reply box when responding to a post.~~~~~

hugs and blessings, purple

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My Diary
Diary-ah!
a place to expel thoughts, when my brain is working.
TitleDateViewsComments
a week of relief 06/27/2010  100 1
down and out 05/27/2010  109 1
A new day.. 05/04/2010  84 0
anxiety anxiety anxiety 04/22/2010  124 1
1st Entry 04/17/2010  90 3
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