|Member Since||02/02/2010 01:23 AM|
|Last Online||05/20/2013 09:38 PM|
|A little about me:||I have had Diffuse Systemic Sclerosis for 15 years. Had lung problems early and was on cytoxan for 18 months. It helped greatly and I had been pretty stable until last summer when shortness of breath and fatigue became more severe. I was formally diagnosed with PH in Dec 2009 and I started Letaris in March 2010, it has really helped me. It is a daily battle, but a battle well worthwhile, with God's help I will win the war!|
My Awareness Ribbons
"I have lost 14 members of my family to cancer. I also have 5 cancer survivors in my family."
"I have Pulmonary Hypertension"
"I have Osteoporosis....took Reclast last year...thought I was going to die from it...please discuss this drug at length with your doctor."
"I have Fibromyalgia"
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