snowgoer68
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| Rank | Member |
| Online Status | OFFLINE |
| Member Since | 01/06/2010 08:29 PM |
| Last Online | 04/09/2012 10:46 AM |
| Gender: | Female |
| Birthdate: | 06/10/1968 |
| City: | Souteast |
| State: | Michigan |
| Occupation: | Property Investments, Professional Patient |
| Blog: | http://phantompain68.blogspot.com |
| A little about me: | Hi, First Off I have been married to a wonderful man for 20 years who has been so supportive. I pray things get better for me so he and I can have a life together again. My history is so involved but this will be brief.I am an above knee amputee(AKA) and have excruciating Phantom Limb Pain(PLP).70 operations,23 broken bones,1400 plus days in the hospital.500 x-rays. Two Catastrophic accidents in 1981 and 1983.AKA was in 1996 and I have been in the worst pain imaginable to me for 16 years.Way worse than any pain I ever had in the burn unit with a leg. I also can't rub it which makes it worse. Having one is leg easy (although I would like to throw my wheelchair through the window at times)compared to the burning,gnawing,feels like a vice with razors is enclosing on my phantom foot, plugged into a meat grinder. I have researched this over 1600 hours and spent 3 grand in medical books. I have tried 40 different meds.PLP can be incappaciating for some and exceedingly difficult to treat. Three days after my AKA my life changed in a way i could never imagine. i was talked into the AKA by the best doctors at U of MI hospital, read everything there was then--and watched videos from prosthetic facilities who make you think you wheel in with your wheel chair one day walk in the next and are running soon after. LIES,LIES,LIES.I'm Getting ready for a Spinal Cord Stimulator-adding this part in as I had the SCS trial and it failed miserably. Posossibly a pain pump-PRIALT. Methadone is an excellent opiate for nerve pain due to its NMDA antagonist properties. Wish there was ketamine prescribed in a nasal inhaler as I have read. So much about this pain research is in it's infancy. I am so burned out and just want a break. The pain and looking for relief has consumed my life. I've also had pleurisy, shingles, chemical mono, pneumonia, and I couldn't have children due to the accidents. A lot for one person to go through. I manage to stay strong and determined. I am a survivor although with PLP it's hard to live. I will try and help-others. Thanks to all for listening and I welcome any help, a word of encouragement, anything.I too am here for you Goodnight to all of you on every support site here With warm and gentle thoughts, Staci PS.I WILL WALK Again P.S. What's happening now is I am trying to find a good pain doctor in MICHIGAN if anyone has a suggestion. My Life Sometimes In my Life, I wonder Why I continue To Fight. The Pain, The Tears, My Every Little Fear All My Cares After All These Years. When will it Go Away, If Not Yesterday, Then Today Sometimes In My Life I Feel Like I Can't Go On Then From No Where I See The Sun Knowing God Is Not Done I Just Want To Ask Why, He Softly Whispers Give It Another Try Forever In My Life, I Will Walk With Pride and Not Hide I Will Stay On The Path Of Courage And Let My Self Be Nurtured. Written by Staci FOOTPRINTS ON OUR HEARTS Some people come into our lives and quickly go...like an ocean wave when it touches the shore: or a cloud that is there, and then gone. Some people stay for a while and although we may be unaware they are touching our lives in a special way. When they are gone, it is then we understand...they have left footprints on our hearts and we will never ever be the same. That is when we know...BLESSED ARE WE By Flavia Weedn I truly feel that in life we meet people and may share hopes, dreams, tears, our fears and cares. It may be a brief encounter like someone you meet in a doctors waiting room or in line at the grocery store. You will probably never see one another again but you leave that tender moment in your memory and their footprints on your heart . After Thoughts by Staci |
My Awareness Ribbons
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"I change my ribbons periodically. This ribbon stands for HOPE. Something I have hung onto for 30 years and I will hopefully not be in pain one day. I also Hope to walk one day. I hope all who read this have their hopes and dreams come true.
NEVER DEPRIVE SOMEONE OF HOPE;IT MAY BE ALL THEY HAVE" |
"To support the one's I care about and pray their pain is tolerable. Also there shouldn't be one person starving with all the food that is wasted and thrown away everyday. 24,000 children die of hunger every day" |
"Praying Chronic Pain doesn't continue to be under-treated. I suffer from severe phantom pain and pray I can cope life long." |
"My Heart goes out to our wonderful Veterans who deserve more.Bless you all from my heart to yours. With warm and gentle thoughts now and forever." |
"All who battle breast cancer are in my heart and I pray for you. God Bless" |
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My Hugs
 | Happy Mothers Day to all the moms here on MDJ. My the rosses smell sweet on your special day. ( Hope To Cope ) Scott |
| Hello, To all of my friends, group members, newbee's. Sorry, I haven't been on. My cousin passed away at age 41, we were all very sadden by this loss. Please say a prayer for my family. Now its back to you guys. I found these quotes and I wanted to share. Hugs Dee Remember and I thinking about all of you and wishing you the best. Life isn’t about finding yourself. Life is about creating yourself – George Bernard Shaw I have found that if you love life, life will love you back - Arthur Rubinstein Don’t ask what the world needs. Ask what makes you come alive and go do it. Because what the world needs is more people who have come alive – Howard Thurman. Life isn’t a journey to the grave with the intention of arriving safely in a well preserved body, but rather to skid in sideways, chocolate in one hand, latte in the other, body thoroughly used up, totally worn out and screaming ‘Woohoo WHAT A RIDE’! |
| Dear Members of the RSD Support Group, This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD. Our new leadership team has developed a Mission Statement we would like to share with you: "To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand." ​We see our main​ job ​as ​ ensur ​ing that this forum is a positive experience for all members: a place you can find friendship, learn about ​our condition, and find ​a safe ​ space to express your experiences ​and feelings​ . You can read about our new, simplified group rules here: http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/general-support/10635134-welcome-message-and-group-rules-for-the-rsd-support-group, and read about ​each of ​ our goals for the group in our leadership profiles here: http://www.mdjunction.com/reflex-sympathetic-dystrophy/group-leaders We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you! With Love, Peace, and Aloha, Howard, Jenny and Julie |
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My Diary
My Likes
Ridin my custom built 1200cc
Polaris Snowmobile, Exploring
Nature on my ATV,Cycling,Goin
Up North,Canoeing,Fall Colors
Winter Storms,Apple Orchards,
Meerkat Manor,A great Pain Doctor
and especially MD JUNCTION
Ridin my custom built 1200cc
Polaris Snowmobile, Exploring
Nature on my ATV,Cycling,Goin
Up North,Canoeing,Fall Colors
Winter Storms,Apple Orchards,
Meerkat Manor,A great Pain Doctor
and especially MD JUNCTION
| Title | Date | Views | Comments |
| FOOTPRINTS ON OUR HEARTS | 01/30/2010 | 791 | 0 |
| Books | 01/29/2010 | 253 | 0 |
| Movies | 01/29/2010 | 231 | 1 |
| Music | 01/29/2010 | 218 | 1 |
| TV | 01/29/2010 | 236 | 0 |
| Heroes | 01/29/2010 | 204 | 0 |
| Dislikes | 01/29/2010 | 234 | 0 |
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My Support Groups
Accidents Support Group
Amputees Support Group
Brachial Plexus Neuropathies Support Group
Cancer in the family Support Group
Carcinoid Syndrome Support Group
Chronic Epstein-Barr Support Group
Chronic Fatigue Syndrome Support Group
Chronic Pain Support Group
Chronic-Intractable Pain Support Group
Constipation Support Group
Depression & Chronic Pain Support Group
Diet Support Group
Fibro Challenges Support Group
Fibromyalgia Support Group
Fitness Goals Support Group
Healthy Eating Support Group
Healthy Nutrition Support Group
Holistic & Alternative Therapy
Insomnia Support Group
Lupus Support Group
Medical Marijuana Patients Support Group
Mental Health Support Group
MRSA Support Group
Narcolepsy Support Group
Night Eating Syndrome Support Group
Obsessive Compulsive Disorder Support Group
Paralysis Support Group
Peripheral Neuropathy Support Group
Permanently Disabled Support Group
Plastic Surgery Support Group
Porphyria Support Group
Post Traumatic Stress Support Group
Reflex Sympathetic Dystrophy Support Group
Scoliosis Support Group
Self Esteem & Positive Thinking Support Group
Amputees Support Group
Brachial Plexus Neuropathies Support Group
Cancer in the family Support Group
Carcinoid Syndrome Support Group
Chronic Epstein-Barr Support Group
Chronic Fatigue Syndrome Support Group
Chronic Pain Support Group
Chronic-Intractable Pain Support Group
Constipation Support Group
Depression & Chronic Pain Support Group
Diet Support Group
Fibro Challenges Support Group
Fibromyalgia Support Group
Fitness Goals Support Group
Healthy Eating Support Group
Healthy Nutrition Support Group
Holistic & Alternative Therapy
Insomnia Support Group
Lupus Support Group
Medical Marijuana Patients Support Group
Mental Health Support Group
MRSA Support Group
Narcolepsy Support Group
Night Eating Syndrome Support Group
Obsessive Compulsive Disorder Support Group
Paralysis Support Group
Peripheral Neuropathy Support Group
Permanently Disabled Support Group
Plastic Surgery Support Group
Porphyria Support Group
Post Traumatic Stress Support Group
Reflex Sympathetic Dystrophy Support Group
Scoliosis Support Group
Self Esteem & Positive Thinking Support Group
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My Recent Posts
| new website for amputees | 10/21/2011 | ||
| new website for amputees | 10/18/2011 | ||
| What do you do for fun????? | 02/09/2010 | ||
| I would like to apologize | 02/08/2010 | ||
| A Chronic Pain Patients Bill O... | 02/01/2010 | ||
| I would like to apologize | 02/01/2010 | ||
| This boy Harley will touch you... | 01/30/2010 | ||
| This boy Harley will touch you... | 01/30/2010 | ||
| This boy Harley will touch you... | 01/30/2010 | ||
| This boy Harley will touch you... | 01/30/2010 | ||
| Anyone on Xyrem and CNS Depres... | 01/30/2010 | ||
| Webcast Meeting Fibromyalgia F... | 01/29/2010 | ||
| Fibromyalgia Web cast Feb 5th,... | 01/29/2010 | ||
| Fibromyalgia Webcast Feb 5th, ... | 01/29/2010 | ||
| Fibromyalgia Webcast Feb 5th, ... | 01/29/2010 | ||
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