|Member Since||12/27/2009 10:13 PM|
|Last Online||05/21/2013 04:00 PM|
|Blog:||RSD support Group|
|A little about me:||Hi- I just turned 56 and live just north of Dallas. In June '06 I broke my little toe on my left foot and that Dec. 06 had to have surgery on it where it had not healed. Within a few weeks I was getting pain that was really bad, much worse than the post-surgery pain. I went back to the surgeon who acted like I was making it up, probably thinking I just wanted more pain meds. The foot didn't look really "different" yet at the time, but the pain went out of control. I have seen 4 other foot & ankle surgeons, 4 pain management doctors, 1 orthopaedic doctor (who diagnosed the RSD and sent me to a pain doc to confirm it) and another orthopaedic doctor later regarding a possible amputation which I didn't get but would still like to try. I would try a SCS if I could afford it, but I can't. I'm hoping to see a new pain doctor next week about trying ketamine infusions which she has done on a frind of mine. That's my next hope.
I live alone, divorced, children are grown and doing well. I have my "baby" who is a 2 year old English Springer Spaniel and she sleeps with me and is always either snuggling with me or wanting me to throw the ball for her. She' great. I have a granddaughter, Maddie!
My Awareness Ribbons
||"As an RSD patient I want people to know what it is and help us find treatments for this horrific pain disorder. I hope that others will also learn to show compassion for RSD patients who might not look sick but suffer unrelenting pain."|
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|Forget vallan...or as I kept thinking in my head, "villain," hehe. I'm sorry to hear you're having a rough time. I will think of you right up till the moment they knock me out for my third RFA on Wednesday. :) ( I mean, I will think of you after that too, but the versed will addle my memory for a few days, you know how it goes, hehe.)
|Well put in your message to Vallan!! You always have such an excellent way of putting your thoughts into words as never to make anyone else feel bad. I wish he would just leave our group and leave us all alone! Thumbs up Gail! Hugs,
|Dear Members of the RSD Support Group,
This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD.
Our new leadership team has developed a Mission Statement we would like to share with you:
"To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand."
that this forum is a positive experience for all members: a place you can find friendship, learn about
condition, and find
​a safe ​
space to express your experiences
You can read about our new, simplified group rules here:
and read about
​each of ​
our goals for the group in our leadership profiles here:
We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you!
With Love, Peace, and Aloha,
Howard, Jenny and Julie
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