MDJunction - People Helping People
 

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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jademoon45
jademoon45
Rank Member
Online Status OFFLINE
Member Since 09/06/2009 02:02 PM
Last Online 03/23/2011 08:11 AM
Website: www.myspace.com/AnnIndra
Blog: on my space
A little about me: I am 53 years old. I live with my Life Partner and now caregiver/mpa Sharon. She is an Angel. I love her very much. She is a pct Tech. This disease has affected my mind so I have some dementia that will
never go away. I have because of amonia levels lots of ups and downs and confusion and comprehension problems that come and go depending on the lvl. I have a daughter Julene and two children deceased my son Ronnie and my daughter Angi. I have 10 wonderful grandchildren who love helping take care of Nana. I love to read and to crochet and play runescape that my grandsons and Angi got me addicted to lol...if anyone plays let me know and ill add you to friends. It helps sharpen my mind and keeps me occupied I got Sharon hooked on the game and we love playing together. I have Ecclectic interest and tastes so anything you want to know just ask me.
I am so glad to have found this forum. I feel blessed to be here.
My Awareness Ribbons
 
"I lost my oldest daughter Angi to Cirrhosis and I have it as well."
Awareness Ribbons

My Hugs
2steveb gave me a Hug
05/18/2013 02:46 AM
a Hugtipical, it just starts to get warm, turn the heating off then ice age starts again? :P joys of uk hope you have a good weekend and alls good for you

2steveb gave me a Hug
05/11/2013 04:42 AM
a Hughi spring has sprung, might have bounced off a bit but hey its here sun tan locoing at the ready hope you have a good relax this weekend

2steveb gave me a Hug
05/04/2013 02:36 AM
a Hughi, hope the weeks been kind to you have a great weekend dont do anything i would if you do dont get court :D:D:D

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My Diary
My Thoughts and Feelings
I dont know what to do sometimes. Heck I dont know what
to do most of the time. My family acts like I am such
a burden sometimes. Yet I get yelled at when I try to
do things and little snippets are said when I dont.
I appreciate all they do and always say thank you
and tell them how much they mean to me and I love
them. Something my parents never did for me when
I cared for them.
I feel like I could curl up in a ball and just
go to sleep and no one would care. Maybe I just
need sometime away for a bit. Some time just me
in a motel somewhere. Time to slow down and
think things through and see what I really
want to do. Things move so fast sometimes I dont
have time to think. I got the transplant journal
and the dvd the other day. I am scared to watch
after the transplant. I want to watch it with
the family. So they know what they are getting
into with my after care for certain.
I seem to be in a funk and cant get out of it.
TitleDateViewsComments
It is difficult for me 06/23/2010  165 0
Improvement in physical but not mental :( 10/20/2009  211 0
Grandparents Day 09/11/2009  241 0
Ranting 09/08/2009  191 1
Today 09/06/2009  183 0
My Health Topics Contributions
I started discussions in the following health topics:
Cirrhosis and Gastroparesis.
My Photos

Sharon and I in front of the christmas tree Im the one in purple
No photos added
 

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