|Member Since||08/24/2009 05:56 AM|
|Last Online||05/20/2013 06:28 AM|
|A little about me:||I was diagnosed with Marfan's at the age of 9 years old. Officially told at the age of 15. My life changed at the worst time because I was going to be a freshman in highschool that next year.
I am the fifth child of six and the only one with Marfan's. The support of my family has been the greatest gift.
I have had a partial lobectomy of the left lung, due to my lung collasping from the blebs. I have had my mitral valve, aortic valve and ascending aortic root replaced. Now I am doing great considering just wanting to talk with others that know what I am going through on the inside. People that can really relate and say 'Oh yeah I know exactly what you mean.' With all that just let me say that I am truly blessed by God with my family, my doctors and my relationship with Jesus Christ.
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My Recent Posts
|Help with Marfans Sever Joint ...||09/24/2012|
|Help with Marfans Sever Joint ...||09/18/2012|
|25 years old had open heart su...||05/05/2010|
|25 years old had open heart su...||05/04/2010|
|New to this||12/19/2009|
|I have marfan snydrome and ms||10/23/2009|
|Do I have Marfan's?||10/23/2009|
|Do I have Marfan's?||10/21/2009|
|aging with Marfan's||09/17/2009|
|Aching week arms and legs||09/04/2009|
|Aching week arms and legs||09/01/2009|
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