Dexma
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| Rank | Member |
| Online Status | OFFLINE |
| Member Since | 07/20/2009 11:57 PM |
| Last Online | 01/05/2011 06:05 AM |
| Gender: | Male |
| City: | Helsinki, Finland |
| A little about me: | I'm the only one left with Li-Fraumeni in my family. I lost my mother to a brain tumor (glioblastoma multiforme V) in February 2007. My sister died before I was born and all the other members of my family with the syndrome are dead. When my mother died we saw the connection and after a long wait I was diagnosed with the syndrome. My three remaining siblings weren't. I'm now 23 years old. I was already married when I found out about this. Somehow it's even harder for her. I study history in University of Helsinki and work part-time. |
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"My mother died from brain tumor (glioblastoma multiforme V). I still miss you." |
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My Hugs
 | Wishing you a healthy 2012 with lots of people, helping people! |
| BIG hug for you & yours! We wish you an amazing 2011, May all your wishes come true & all your troubles fade away. We hope that together our community will continue to prosper and help so many all over the globe. People helping people at its best ;-) |
| I just read your story. I'm not sure why I feel a connection to you and your wife but I do. Maybe it's because I am the last member of my family without LFS. |
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My Recent Posts
| The Webcast of LFS Conference ... | 01/05/2011 | ||
| LFS Study | 01/05/2011 | ||
| Gene therapy - a cure for LFS? | 01/05/2011 | ||
| Imminence at it's finest. | 10/02/2010 | ||
| Hello | 10/02/2010 | ||
| Update from Shoonu | 10/02/2010 | ||
| Gene therapy - a cure for LFS? | 10/02/2010 | ||
| Imminence at it's finest. | 09/19/2010 | ||
| Gene therapy - a cure for LFS? | 09/19/2010 | ||
| Joke Of The Day - Final | 09/18/2010 | ||
| Is anyone aving check-ups in t... | 09/18/2010 | ||
| conference for us!!!!!!!!!!!!!... | 09/18/2010 | ||
| Imminence at it's finest. | 09/18/2010 | ||
| Hello | 09/18/2010 | ||
| Just joined.. | 09/18/2010 | ||
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