|Member Since||07/20/2009 11:57 PM|
|Last Online||01/05/2011 06:05 AM|
|A little about me:||I'm the only one left with Li-Fraumeni in my family. I lost my mother to a brain tumor (glioblastoma multiforme V) in February 2007. My sister died before I was born and all the other members of my family with the syndrome are dead. When my mother died we saw the connection and after a long wait I was diagnosed with the syndrome. My three remaining siblings weren't.
I'm now 23 years old. I was already married when I found out about this. Somehow it's even harder for her. I study history in University of Helsinki and work part-time.
|Wishing you a healthy 2012 with lots of people, helping people!
|BIG hug for you & yours!
We wish you an amazing 2011, May all your wishes come true & all your troubles fade away.
We hope that together our community will continue to prosper and help so many all over the globe. People helping people at its best ;-)
|I just read your story. I'm not sure why I feel a connection to you and your wife but I do. Maybe it's because I am the last member of my family without LFS.
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My Recent Posts
|The Webcast of LFS Conference ...||01/05/2011|
|Gene therapy - a cure for LFS?||01/05/2011|
|Imminence at it's finest.||10/02/2010|
|Update from Shoonu||10/02/2010|
|Gene therapy - a cure for LFS?||10/02/2010|
|Imminence at it's finest.||09/19/2010|
|Gene therapy - a cure for LFS?||09/19/2010|
|Joke Of The Day - Final||09/18/2010|
|Is anyone aving check-ups in t...||09/18/2010|
|conference for us!!!!!!!!!!!!!...||09/18/2010|
|Imminence at it's finest.||09/18/2010|
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