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"A place to communicate with individuals that share my
pain and joy and allow me to "vent" without being judgmental.. MDJunction helped me understand my condition when many did not." (bmac)

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Marfan Syndrome Support Group

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stamp collecting for marfan association uk

"hi all my name is jackie leader of the marfan syndrome group...."

by jackie1979

in Marfan General & Support - 16 days ago

HI! My nae is Reba...

"I don't know..."

by jstsIm

in Marfan General & Support

Undetermined symptoms

"About 3 years ago I suffered an event. I loaded a bunch of boxe..."

by cta7978b
in Marfan General & Support

Help with Marfans Sever Joint pain

"I go to the Cleveland Clinic in Cleveland, Ohio. They are fanta..."

by tootall2drink

in Marfan General & Support

Kids might have Marfan Syndrome, any advice?

"I have not personally encountered Loeys-Dietz syndrome, and can'..."

by SSLMD
in Marfan General & Support

beales marfans syndrome

"hi on here there are a couple of mums, maiasmum and laurajohnson..."

by jackie1979

in Marfan General & Support

school

"totally agree with you and you have us here at mdj too!!!"

by jackie1979

in Marfan General & Support

About me

"hope it is still going well with you?? things not good for me r..."

by jackie1979

in Marfan Introductions & Personal Stories

my 2 year old daughter

"hi my name is jackie and i am group leader, I have marfan syndro..."

by jackie1979

in Marfan General & Support

My Impala

"it has been very cold here lately which is not good formyjoints ..."

by jackie1979

in Marfan Lounge - Off topic discussions

Latest Group Diary Posts

Finally.. MDJ communit...
"Happy spring everyone!It seems I have totally negl..."

Progress in Process...
"I'm not sure how long it's been since I la..."

December 25, 2012
"I hate the holiday! Christmas is spent alone..."

My Christmas ...
"I haven't been posting much,,,not alot to say...."

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Marfan Syndrome Videos

How Marfan's Syndrome Affects a Child's Eyes	Positive Exposure of Self Confidence	What is Marfan's Syndrome?	Tortle Device for Flat Head Syndrome
Marfan Videos

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