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Marcus Gunn Jaw Winking Syndrome Support Group
A community of patients, family members and friends dedicated to dealing with Marcus Gunn Jaw Winking Syndrome, together.
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Trigemino-oculomotor Synkineses Community› Trigemino-oculomotor Synkineses Current Discussions
Marcus Gunn Jaw Winking Syndrome Current Discussion
MotherLhr
"hello, my daughter was born with MGJW and unilateral ptosis. She was a full term baby and healthy weight. ..."
MGJWmommy
"We had to patch our sons left eye to force the use of his weak eye. He was about 10months old and would pr..."
MGJWmommy
"My son had the corrective procedure. He is now just shy of his 4th birthday. His lid flutters substantiall..."
MGJWmommy
"I know this is late but my son was treated by dr. James katowitz. I know his son is also now practicing. ..."
elvabja
"Hi everyone. I´m new here and I want to start by saying that English is my third language so it may be far..."
caliraised
"i would also recommend keeping a copy of all his medical reords. i'm having a hard time getting mine. mo..."
kimmyann00
"Also I am wondering if there is any therapies or treatments I can start researching for this condition. T..."
lifequest
"Hi Marie, I just joined tonight. Have this, too, and have had lots of surgeries, but it remains something ..."
Noxy
"After few months of absence, I come back with few updates. We did go see a doctor and since MGJW is so..."
topazstar
"Greenpixie~ Reading your post, i could have sworn that i typed it...your story is so similar to mine. I wo..."
neicee7681
"Hi Fannielyh. I have had MGJW with Ptosis my entire life. Your son will learn to control his eye in time..."
neicee7681
"Hi NTsMama. Welcome to the group. I haven't posted in a while, but decided to come out here today and no..."
Avences
"Hi I am alma, I am new here.. I have MGWS in my right eye. so you had surgery to correct this?"
Avences
"Hi everyone, I am new to this site, my name is Alma and I never really new what I had was a syndrome I ..."
Noxy
"I'm starting to develop interest on this syndrome despite me since my child was diagnosed officially with ..."
lauracarmel
"Hi Rony, my name's Laura. I have the wink but I haven't had any surgery so I'm unable to advise you on any..."
PIKKIE
"MY SON ABRIHAHN HAS MGJW AND PETOSIS IN HIS RIGHT EYE. HE CALL'S IT HIS PARTY FACE. THE DOCTORS SAID WE HA..."
selfconsciousMGKid
"Hi, Im 19, Male, and... My right eye does this... From wikipedia: 1) External pterygoid-levator synki..."
MGJWGMa
"Hi, my name is Nancy and my 8 1/2 y/o GD has MGJW. Her ptosis is relatively mild and is not really noticea..."
LissaP318
"My daughter was born with MGJW too. I took paxil about a year before my daughter was born and then again a..."
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