MDJunction - People Helping People
 

Why wear a ribbon?

  "To feel like im part of a good thing while enduring this nightmare. " (rfm7766)

MDJunction to me

puppylover"When I was diagnosed I was scared didn't know what to do or where to go..I started reserching bipolar and somehow ended up here at MD....Again scared but needing to know what was in store I asked a question..WOW the people who care..I know I would be lost now if I did not join..made many friends and they have helped me through thick and thin. and never judged...........XX Thank you MD and all.Love all of you.......Laurie Pachin" (puppylover)

MDJunction testimonials
A community of patients, family members and friends dedicated to dealing with Marcus Gunn Jaw Winking Syndrome, together.
Join This Group
Group Home   Forums   Members (130)   Diaries   Videos   Leaders   Guidelines
Trigemino-oculomotor Synkineses Community › Trigemino-oculomotor Synkineses Current Discussions
Marcus Gunn Jaw Winking Syndrome Current Discussion
severussnape
"Hi Christie, I haven't but I am interested in the possibility of getting the surgery, my doctor has..."
severussnape
"Hi again everyone! Thank you so much for sharing all your stories, it is so good to know that there are..."
Jmcummings
"I just found this site. I too self diagnosed myself through Google, and I'm excited to connect with people..."
riar2d2
"Hi, my name is Rachel and I also have this and I can relate. I've had it since I was born and the doctor..."
Iriish
"Hi Emy, My daughter, Madison, was born almost 18 yrs ago with severe Ptosis in her left eye and the jaw..."
kmilankovic
"Hi, we have a 7 month old babygirl who has just being diagnosed a Marcus Gunn, also a mild case. so we..."
Arheymsfield
"Hi, my 6 month old was just diagnosed with MGJW and ptosis. I am glad to have found this group."
antocau85
"Hello my name is Antonio. I am 28, I would like to know if anyone of you have got the eye hurting. I..."
rnajmi
"I am sorry, I haven't been in this forum for a while now. Yes, we went through with our son's surgery at..."
chalis
"I'm a 30 year old woman in Trinidad,I've had MGJWS since the day I was born.As I get older its a lot more..."
heartmom
"My 6 year old was diagnosed with MGJW a few years ago, it took awhile for the eye docs to know what was..."
Latinchica4u
"Hi im new to this group. Just happy to see I'm not the only one with this. Im ashamed to say that even..."
marysunshine
"Hi everyone! I diagnosed myself with MGJW syndrome about a year ago at 30 years old after doing a 5 second..."
MotherLhr
"hello, my daughter was born with MGJW and unilateral ptosis. She was a full term baby and healthy weight...."
MGJWmommy
"My son had the corrective procedure. He is now just shy of his 4th birthday. His lid flutters..."
elvabja
"Hi everyone. I´m new here and I want to start by saying that English is my third language so it may be..."
caliraised
"i would also recommend keeping a copy of all his medical reords. i'm having a hard time getting mine...."
kimmyann00
"Also I am wondering if there is any therapies or treatments I can start researching for this condition...."
lifequest
"Hi Marie, I just joined tonight. Have this, too, and have had lots of surgeries, but it remains something..."
topazstar
"Greenpixie~ Reading your post, i could have sworn that i typed it...your story is so similar to mine. I..."
Results 1 - 20 of 91
<< Start < Prev 1 2 3 4 5 Next > End >>

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | About Us
Copyright (c) 2006-2014 MDJunction.com All Rights Reserved