Lyme Disease Support Group

My average patient has been to 10-50 physicians before me. Such

patients have not been healed of their Lyme disease. Below are

some common reasons for their treatment failure:

They say it is either “negative” or “positive.” Wrong. If a

person has one "fingerprint band”, they have Lyme disease.

These highly specific bands, widely accepted in the world

literature, are 13, 14, 17, 21, 23, 24, 25, 28, 31, 34, 35, 37, 39,

47, 50, 54, 83, 84, 93 and 94. The lab can be a junk lab that

invests nothing to optimize their testing kit, but if one of these

bands is positive—Lyme is present. IGeneX has the best

Western Blot in the world. No other lab has invested so much,

for so long, to create the best test. If your clinician wants to

first use an ELISA, simply run. To put it bluntly, the ELISA

test as a screening tool is useless, missing even the most

obvious PCR positive patients with clear past histories of

massive Bull’s Eye rashes, which, while not the norm, provide

treatment approach are not "up-to-date” in their knowledge of

Lyme. Ten years of Lyme disease treatment is not acceptable.

These so called “cure” treatments often merely lower the

body’s pathogen load or decrease symptoms without fully

eradicating all the different types of infectious agents.

HBOT in mice studies is not applicable to humans. To prove

that HBOT is useless for the treatment of tick-borne

infections, I decided to perform a self-funded study to examine

its benefits for the treatment of Lyme (Borrelia), Babesia,

Ehrlichia and Bartonella. After receiving 120 treatments at 2.4

atmospheres for 90 minutes each, all participants still had

clear positive findings for all four infections. Therefore, there

is no validity to the claim that HBOT “kills” Lyme disease. I

have talked to the late Dr. Fife in detail and carefully evaluated

the HBOT research of Dr. Robert Lombard, which has further

confirmed this finding. I love this treatment for many medical

problems, but it is not a cure for tick-borne infections. It may

help other aspects of patients’ suffering.

medical groups have founders who represent the core of their

organization. These founders are closed-minded about

receiving new information. This is simply human nature. For

example, I have published many new books on advanced tickborne

infections, all showing new critical information. For

some “Lyme-literate” physicians, it took educated patients

throwing a copy at them before they read this new

information, and by then, years had already passed. Some

health care workers believe in a Lyme literate Pope or

President, but no such expert exists. Sure, some offer useful

information from past investigations. However, no one has

mastered modern tick-borne medicine and all the newest coinfection

information.

have been asked by a number of physicians to share my

various findings, because they have become ill themselves and

need treatment help. I have asked them to stop treating

themselves, and to do an hour consultation with very extensive

labs. Most have refused. Tragically, what they could have

learned by fixing themselves would have translated into real

help for their patients.

synthetic antibiotic cyst busters. The most common treatment

for Babesia is 750 mg/teaspoon of Mepron, taken twice a day.

The most commonly used herbal Babesia cures are

artemisinin, dihydroartemisinin, or artesunate (for example,

Zhang Artemisia from Heprapro.com). The latter involves a

standard dose of one capsule three times a day—yet all four of

the approaches listed above fail at published and

recommended doses, even after long trials of treatment.

doses of Levaquin, Rifampin, Zithromax, doxycycline,

Mycobutin, Ceftin, Omnicef, Cumanda and Banderol, all fail to

cure Bartonella. These antibiotics, along with Rife machines

that are used at various frequencies and power, may lower the

body’s pathogen load and lead to initial and convincing feelings

of improvement, but none of these treatments leads to a cure

for Bartonella.

that are processed by a popular East Coast lab, often miss a

positive infection up to ten times. If a lab needs to produce ten

urine or blood samples to show a positive result, it is not

functional. Some labs are only fair at tissue PCR testing, when

the tissue has clear Lyme, Babesia and Bartonella that can be

observed microscopically. This is a diagnostic disaster.

Amazingly, some rely upon large national labs to do manual

examinations of red blood cells to look for Babesia and

Bartonella. I have never seen a large national lab detect

Babesia or Bartonella in over 600 manual smears. No national

lab has been able to capture these infections even once in

patients with certain strains of Babesia and Bartonella. I have

repeatedly offered to assist them in improving their

technology by linking them with hematology experts in tickborne

infections. They did not care that their manual smears

were worthless, and I was repeatedly ignored.

is one of the most common infections in the world. Calling it a

“co-infection” may be an error. If anything, Lyme (Borrelia)

might be the “co-infection.” Bartonella is found in vast

numbers of common vectors including dust mites, fleas, flea

feces, pet saliva, ticks, etc. Amazingly, it can turn off or lower

antibodies to Lyme disease, Babesia, Ehrlichia, Anaplasma

and even itself. Bartonella floats in blood and also enters all

blood vessel walls without causing a fatal fever, and indeed,

actually lowers fevers. It is the ultimate stealth infection. It

turns off antibodies, fevers and immune function defense

chemicals as it damages organs in anywhere from 20-60

different ways.

machine that is built the same and has the exact same problems,

which in turn objectifies the patient and flirts with the

sociopathic. We see this mindset in serious criminals, who mold

people into objects in an effort to fit their skewed perceptions of

the world. It is junk medicine to apply a blanket protocol to a

unique human body, with a complex and multi-faceted infection

cluster and unique biochemical response. Doing so is useless

“mill medicine,” plain and simple.

practitioners learn the 60 different skin patterns that can be

created by Bartonella or a mix of Bartonella/Lyme infections. It

would also be useful for them to become familiar with the

indirect lab markers that are associated with Bartonella

infections, as well as those that are associated with mixed

Bartonella/Babesia infections, such as IL-6, IL-1B, TNF-a, ECP,

and VEGF. We discuss clinical patterns that are seen as a result

be missed in visual FISH exams, PCR and antibody tests.

reduce treatment failures is to use new medical tricks to detect

stealth Babesia. (Babesia can cause symptoms of ongoing

fatigue, headaches and weight gain, as well as others, while

hindering the treatment of Lyme disease).

a. The “trick” is simple: A patient is given at least two

Babesia killing medications such as Mepron and

artesunate or Malarone (given for the proguanil).

These medications are used for ten days at a dose that

both patient and physician feel is worth the risk.

Usually, at least one of the medications will kill a few

Babesia parasites. Approximately ten to fourteen days

later, a follow up lab test is performed, in which blood

is drawn and special attention to ECP levels (which

are produced to kill parasites) is given. The new ECP

level is compared to the baseline. If the ECP rises

significantly, it is usually a sign of Babesia “die-off”.

(Eosinophils release ECP and possibly inject Babesia

debris). Changes in IL-6, IL-1B, TNF-a and VEGF as a

result of this test are also indicative of Babesia die-off.

b. An added option is to wait six weeks after doing this

“trick” and have the patient tested for antibodies to

Babesia microti or duncani. One youth patient with

profound illness was finally diagnosed in this manner,

and after three weeks of triple Babesia treatment had

significant clinical improvement for the first time in

six years. Not being able to detect stealthy, lowvolume

Babesia is a common problem when treating

tick and flea-borne infections. Talented health care

workers commonly miss these red blood cell

parasites, but this trick usually causes the parasites to

show up and can save patients from years of failed

treatment.

“sages” do not understand that Bartonella turns off its own

antibodies, and that the large labs only check for one (or

two) species that infect humans, and their cut-off titers are

unrealistically high. Thankfully, IGeneX Bartonella FISH

testing will be available soon nationwide (except in New

York State).

infections routinely destroy patients’ ability to have

insight into treatments and lead to personality changes

and/or rigid resistance to testing. This is largely due to an

impaired frontal lobe (the part of the brain involved in selfawareness).

Examples of decreased insight are demonstrated

by the following situations:

a. Patients feeling like they are cured when they have

only experienced improvement in their symptoms

b. Patients intentionally going to practitioners who use

inferior labs.

c. Patients refusing, with eccentric resistance, to be

tested for tick-borne infections.

d. Patients dismissing positive test results with a wave of

the hand.

leak or some other water intrusion problem. They feel they

are ill only because of mold mycotoxins in their home that

have formed 36-48 hours after water intrusion into drywall,

insulation, carpeting and other dust or cellulose-filled

materials. The EPA reports that 30% of US structures have

indoor mold. Some of these indoor molds have war-grade

chemicals on their surfaces. When the tomb room of the last

King of Poland, Casimir IV was opened in Paris in 1973, ten

of the twelve scientists who were present died. One survivor

had expertise in mold and subsequently found three toxic

mold species.

This significant factor was the catalyst for my decision to

write two mold remediation books. We have also known

since the 1880's that dust and high humidity leads to mold

and bacteria growth indoors. Their presence makes Lyme

disease much more difficult to cure.

are probably unable to remove Lyme biotoxins (R.

Shoemaker) and must take a binder, like Cholestyramine,

which has been used to bind biotoxins since the 1970’s.

Other HLA patterns have been identified in 2009 that may

be responsible for the body slowly releasing Lyme biotoxins.

starting doses of medications or herbs should be very low

and gradually raised to higher levels. Additionally, liverprotecting

substances should be given in conjunction with

sensitive” patient is akin to committing chemical battery.

Massive die-off reactions may be confused with allergic

reactions and can cause panic attacks, shortness of breath,

chest pain and severe migraines. This sloppy, one-size-fits all

approach, is common in large practices in which a few major

“protocols” are routine.

often a highly useful component of care, however. Pain,

fatigue, severe insomnia, depression and anxiety often

increase with die-off reactions or as a result of the presence of

the infections. Band-Aid treatments are therefore often useful

and helpful for patients. I treat people who run companies,

schools, very large families and professional teams. They want

to sleep 13 hours per day. They need stimulants for a period of

time. The use of natural or synthetic stimulant options is

discussed in The Diagnosis and Treatment of Babesia

from sleep in excess of 8 hours. It may just serve to get them

fired!

haven’t spent 1,000 hours learning about this complex

emerging area of medicine that requires a great deal of

study, then their patients need to find practitioners that are

serious about it, instead of someone who is just “doing them

a favor” by simply running a few tests.

nutrients, have taken 40 pills per day, tried a wide range of

specialized treatments, and now are tired of it all. They are at

the end of their treatment rope. This is what happens when

practitioners do not treat them fully and effectively at the

beginning of their treatment. They get treatment fatigue.

Patients should consider a short treatment break, and

discuss this option frankly with their health care providers.

They should not confuse cure with improvement.

reduction in bacterial load. For example, using Bicillin once

a week with no cyst buster will never cure patients of Lyme

disease because it does not remove cysts. So years after

receiving this treatment, levels of the body’s cancer-fighting

cells, marked by some as the CD57, may still be under 90,

which indicates active infection. This is one good test that is

possibly specific for Lyme disease and other tick-borne

infections. (The C3a and C4a tests are definitely not specific

for Lyme).

argument or “the speed of your recovery” argument to

dissuade patients from receiving help from those who are

sincerely trying to help them. If patients have been battling

for years with multiple infections, they will not be cured in

four months.

spirochetes in the mouth are known to cause biofilms, and

they are believed to limit antibiotic effectiveness.

Organizations with millions in grants and research money

have never addressed this issue.

I am currently working on a textbook that addresses the

many treatment options for attacking biofilms. No article or

book exists that explores the twenty-plus ways that I would

propose to beat a Lyme biofilm. It is believed by some

professionals that highly specific enzymes, drugs, or one

mineral can undermine a Lyme biofilm. Yet enzymes are like

highly specific keys, and no single enzyme has been a proven

“key” to undermining a Lyme biofilm.

seems to offer many effective treatment options but not all of

these are, in reality, good. Some health care practitioners

seem too narrow in their approach to treatment, while others

are open to virtually everything. So patients get into a

medical boat and push themselves out to sea. They read like

crazy. They try treatments a, b and c. They read testimonials

of hundreds of patients. They try a wide range of nonprescription

options. Some days, weeks or months, they feel

better. Other weeks, they don’t feel so good. They are upset.

They ask themselves, “Why do I have to do all the work and

learning?” This is not a good place for them to be in. People

exist who have already explored virtually all of the things

that those with Lyme are going to explore over the next ten

years. They need mentors.

Lyme, Babesia or any other infection. They can learn about

the basic steps to protecting themselves from tick bites by

doing about thirty minutes of reading.

cause of these problems, but Lyme and Babesia and the dieoff

reactions that they cause can also increase these

problems. Isolation leads to decreased treatment options. It

can ultimately lead to divorce and the loss of family

relationships and friendships. This, in turn, leads to

decreased resources and support while ill. Isolated humans,

as Mother Teresa often said, are the poorest beings on earth.

• The Diagnosis and Treatment of Babesia

• Mold Illness and Mold Remediation Made Simple

• Bartonella: Diagnosis and Treatment [2-part set]