A community of patients, family members and friends dedicated to dealing with Lupus, together.
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I am 51 years old and have been diagnosed with SLE for about 16 years. It started off as just the discoid lupus and has evolved into Central Nervous System Lupus. I have had two brain hemorrhages and now have a seizure disorder. I am now trying the Chemo drug Cytoxan and hopefully this will help me with this disease.
I help with the family business by doing the bookwork but I am also disabled. I have a husband and two grown children, my son still lives with us (28) and my daughter is married and has a beautiful daughter (Lexi) and lives about 4 hours north of me. She has recently been diagnosed with lupus as well.
I have a great out look on life and I will never give up. I am truly blessed to be here and to help with this wonderful Lupus site. Thanks to all of you,
Hi, I am Alison and I have been dealing with lupus since I was 16, more then 30 years ago, Finding MDJunction helped me to connect with others that could truly understand what I am going through. Lupus can be such a crazy disease that having emotional support means a lot.
Lupus is often accompanied other AI diseases. I also have APS, a clotting disease, that has caused 3 strokes, Meniere's, an inner ear problem and recently added parathyroid problems problems to the mix. Of course, there may be something else just around the corner waiting to surprise me.
Hopefully I can use my years if experience with lupus to help others just starting on this journey
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