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A community of patients, family members and friends dedicated to dealing with Lupus, together.
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Lupus Community› Lupus Diaries
Latest Lupus Diaries
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"Well, I guess I had a short circuit (or whatever it should be called) in my brain yesterday. I came home, while coming into my very short driveway I was putting up my window, pressing the open for the..." |
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"It has been such a heartbreaking day here in Oklahoma. Days like this put my problems in perspective. I am so thankful that I can hug my babies close tonight. We have a little roof damage, but a..." |
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"I would rewrite it all here, but it's just easier if you go to my blog and read (and comment or like, if you want!) about my awesome ICE bath experience . Thank you for all of the views to my diar..." |
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"For reasons that don't make much sense to me, Tricare decided to switch me from the internist I was seeing to a family medicine doctor when my husband retired from the Navy. Unfortunately, this yo..." |
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"Happy spring everyone!It seems I have totally neglected writing in my diary lately, I do hope to write more now - let it be my spring resolution ;-)As opposed to my diary... a lot of work was put into..." |
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"Today was one of those days where I found myself searching for the silver linings, trying to escape that gloomy gray cloud that often hovers nearby, and blaming this stupid disease for everything that..." |
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" (Original post found at, The Unabridged Girl .) I’ve felt particularly down since that disaster of a doctor’s appointment. I’m not even sure what to write. I’m discou" |
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" Sitting in the doctor office today with my wife and older sister and doctor what the hell was I thinking I musta been stone out of my mind. I mean boy did I get torn out of &n..." |
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"I blew it tonight. You see, my daughter is 5. She's a really sweet kid with a big heart and an even bigger mouth :) The latter tends to keep her in constant trouble at school. So, we made a deal a..." |
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"I'm 31. I'm a mom. I am married to the sweetest, most understanding man alive. I love my job. I love to read. I am a procrastinator. When I can..." |
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""YOU Are The Wonder, YOU Are The Light !"05/09/13To my dearest and ever supportive friends, and constant loyal readers,Upon due consideration, I found that the majority of my diary entries w..." |
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"over the past few yrs i have tried to watch my diet n try to follow drs orders w/both my arthritis n ic, over the last yr when i do have a flare it is 10x worse then when all this mess started...dont ..." |
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""Hurting...Hopeless...Helpless...Hollow"05/03/13As always to my very friends and constant, patient loyal readers,IHurting...Hopeless...Helpless...Hollow.Illness adds to constant pain uncarin..." |
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" The number one person who cares about my health will always be me. I know my body and limitations, which is why I must research lupus, medications, methods, and doctors, so I can make informed decis..." |
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" It's me again just sitting here today thinking an wondering what would happen to me next. It's that time again for me to get that tube check and see if the doctors are goin..." |
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" Lupus affects so much, though sometimes I feel like more of an emotional mess than physical. Staying positive is tricky. There are moments I want to take off my big girl shoes, and I want to connect..." |
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"So, it is well past midnight. All is quiet on the homefront. Children and hubs all completely zonked and yet here I sit, same as the last 2 days unable to stop my brain or get off this site as well. H..." |
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" 1. 1. I suppose I could’ve simply started writing in a private journal, opposed to joining a support group. I had reservations, anyway, and some of those re..." |
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" Dear Self and Those Who are Sick, No one will argue that the last while has been rough. You’ve been through the ringer, kid. Life is not fair or easy, and things rarely (if ever) go as plann..." |
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"I still havn't been to school. To make it even worse, I missed my appointment at children's. Now I have to wait until May 22nd. I have so much pain, mostly on the left side of my body. My hip ..." |
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" My sister and I left early for my rheumatology appointment, stopping along the way to fill her Diet Dr. Pepper needs. It has been a while since I’ve been anywhere with Amanda, and I forget how..." |
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" It is late, far past my bedtime, but I can’t find any pain relief. My hip is red, hot, and swollen, and my rheumy appointment cannot come soon enough. “Can you stand on it?” ..." |
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"Still not recovered. Was hoping the increase over the weekend (32.5) would fix that but.......here I am. Crying has stopped for the most part (annoying low cort symptom), however bp's ..." |
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" I was doing well, especially during our honeymoon. We walked every day from our hotel to various destination: the Smithsonian, Madame Tussaud’s, Chinatown, and the White House and on and on. M..." |
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