Why wear a ribbon?

"My mother has carcinoid syndome, a rare neuroendocrine cancer. " (dkaj)

MDJunction to me

"MDJunction to me is a place of refuge. A place I can come to for the support that I need, as well as a place to support others in need. A place where I don't worry about being judged because of my disabilities & there are people who truly understand what I live with on a daily basis." (shamarie6)

more testimonials

Long QT Syndrome Support Group

A community of patients, family members and friends dedicated to dealing with Long QT Syndrome, together.

Group Home

Forums

Articles

Members (79)

Diaries

Videos

Leaders

Guidelines

Current Long QT Syndrome Discussions

See All Current Discussions *Be the First - Unanswered Posts

Long qt & alcohol

"Hi My mother & 4 aunts have been diagnosed with long qt ..."

by Charliechick
in Long QT General & Support

palpitations

"I really hate that my doctor took me off my beta blockers. He to..."

by jenny5

in Long QT General & Support

Chest pain

"Hi my name is Jenny and I got one last year. I remember the firs..."

by jenny5

in Long QT General & Support

Chest pain

"I have recently had an ICD fitted but am experiencing chest disc..."

by Gillro
in Long QT General & Support

Chest pain

"I have recently had an ICD fitted but am experiencing chest disc..."

by Gillro
in Long QT General & Support

Over diagnosed

"That definately was not nice whoever you were talking to, and if..."

by jenny5

in Long QT General & Support

Vanderbilt Clinic and Prarie Heart Institute

"To everyone that doesn't know if they have long qt or not, I fou..."

by jenny5

in Long QT General & Support

long qt

"hi my name is laura i have a 2 year old with long qt and we are ..."

by laura24
in Long QT General & Support

long qt and soc sec benefits worried help!!

"No problem I'm just glad that someone finally talked to me on th..."

by jenny5

in Long QT General & Support

has anyone with long qt applied for soc sec

"I was wondering because i searched the entire web and found noth..."

by rachmad1
in Long QT Lounge - Off topic discussions

Latest Group Diary Posts

Finally.. MDJ communit...
"Happy spring everyone!It seems I have totally negl..."

Plaquenil Update
"As of now, my sweet daughter is only on 400mg of i..."

New Meds.... almost ho...
"I hate to even say much, fear of jinxing things.&n..."

New doctors, nothing n...
"Well, since her fluid has come back, she saw a rhe..."

Other Groups We're On

Anxiety Disorders
Pacemaker and Heart Disease
Arrhythmias
Lyme Disease
Bipolar

In Category:

Rare Diseases

Long QT Group Activity

	cmany gave kli a Hug
	sarahtroy gave Kusinjo a Hug
	hypnagogic gave Kusinjo a Hug
	purpleyogamat gave kli a Hug
	hypnagogic gave Kusinjo a Hug
	Charliechick joined the Long QT group
	Charliechick registered!
	purpleyogamat gave kli a Hug

Long QT Syndrome Videos

What Long QT Syndrome Is	Long QT syndrome - LQTS	Long QT Syndrome & SCA	Learn about Quiet Time and QT Syndrome
Long QT Videos

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.