MDJunction - People Helping People
 

Why wear a ribbon?

 
"recovering anorexic, eight years and counting..." (mozartmezzo)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

more testimonials
Kluver-Bucy Syndrome Support Group
A community of patients, family members and friends dedicated to dealing with Kluver-Bucy Syndrome, together.
Join This Group
Group Home   Forums   Articles   Members   Diaries   Videos   Leaders   Guidelines
Kluver-Bucy Group RSS Feed
Current Kluver-Bucy Syndrome Discussions
See All Current Discussions *Be the First - Unanswered Posts
Bountiful
"From what I understand there are no methods, *according to the C..."
Bountiful
"I first noticed my visual agnosia in a very round about way. I ..."
Bountiful
"I haven't found anything on direct treatment methods for Kluver ..."
Bountiful
"From what I've read Kluver Bucey is caused by damage to both tem..."
Bountiful
"I have access to tons of articles on this disorder through my sc..."
Bountiful
"One of the things I've read about Kluver Bucey is an obsession w..."
Bountiful
"Hey I'm Andrew, I'm just graduating from college and I've had..."
roy
"Hi - it's me again... I got many PMs from members asking to upl..."
KluverBucy
"Klüver-Bucy syndrome is a rare behavioral impairment that is ass..."
roy
"Hello, Welcome to the Kluver-Bucy Syndrome Support Group. Th..."
Latest Group Diary Posts
roy
Finally.. MDJ communit...
"Happy spring everyone!It seems I have totally negl..."
roy
MDJ autumn updates
"Hello friendsIt’s time for autumn updates.Th..."
roy
MDJ going green
"Happy days on MDJ... The green logo you guys chose..."
roy
UV has a sister !
" I’d like to apologize to the many people w..."

Other Groups We're On
In Category:
Rare Diseases

Kluver-Bucy Group Activity
DorisAnn gave roy a Hug
PammieT gave roy a Hug
Kelly62 gave roy a Hug
MsAspiring gave roy a Hug
Nevayda gave roy a Hug
CrissyL gave roy a Hug
IVYEDAN gave roy a Hug
Grace1 gave roy a Hug



Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved