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A community of patients, family members and friends dedicated to dealing with Klippel-Feil Syndrome, together.
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Klippel-Feil Community› Klippel-Feil Diaries
Latest Klippel-Feil Syndrome Diaries
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"After nearly 2 years of this rib problem what I described as 'my ribs coming out', I finally found an answer, granted I had to do all the research myself. But it turns out my GP is credib..." |
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"I went to see my GP today and gave her the letter as provided by the SHO from A&E.She didn't ask much to be honest, but I told her which vertebrae I was told were affected on the x-ray. She fe..." |
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"I was Diagnosed on Friday 31st May 2013 in A&E by a SHO who seemed just as perplexed as me. I was in A&E, because my GP wasnt available and the walk-in centre wasn't happy. I was in a..." |
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"I first started having yearly depressions in the winter when I was 14 years old. At the time I did not know what was wrong with me, I just knew that something was. Depression was just nott..." |
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"Happy spring everyone!It seems I have totally neglected writing in my diary lately, I do hope to write more now - let it be my spring resolution ;-)As opposed to my diary... a lot of work was put into..." |
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"today we had an appointment with the consultant pedeatrition who was fab...... andrews going for some blood tests before christmas to check for any other medical problems that they might have missed a..." |
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"last night was a bad night for andrew he was up a lot throughout the night with leg and ankle pain medications like calpol are not even helping him anymore so its just back to bed and hoping his pains" |
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"Today is a brighter day. Last night I was reading Shel Silverstein books to my daughter, like my mother did me. I was also trying to find a book called "Love You Forever" by Robert Munsch" |
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"Our 5 year old daughter was just diagnosed with KFS. The process all started during her 5 year check-up. She had failed the hearing test in her left ear and the pediatrician sent us to an ENT for more" |
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"She will be 32 in September. It kills me inside to see her in severe pain. For a mother it is so horrible to be unable to help or take it away. She also told me that she is happy that I am there when" |
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