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Kearns-Sayer Syndrome Support Group

A community of patients, family members and friends dedicated to dealing with Kearns-Sayer Syndrome, together.

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Current Kearns-Sayer Syndrome Discussions

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Your Facts

"my son was diagnosed in 2004, he was 10yr of age at that time 2y..."

by sandgam
in Kearns-Sayer General & Support

KSS Support - new member

"my son also had that surgery done and his went back the way they..."

by sandgam
in Kearns-Sayer General & Support

Kearns-Sayer Syndrome Videos on MDJunction

"Hi - it's me again... I got many PMs from members asking to upl..."

by roy

in Kearns-Sayer General & Support

Learning more about Kearns-Sayer Syndrome

"Thank you so much for sharing your sons story. I really appreci..."

by emideen
in Kearns-Sayer General & Support

newby

"Hello, I'd love to hear about how your dad and your family have ..."

by emideen
in Kearns-Sayer Introductions & Personal Stories

Lets get the facts out there...

"What do we know about KSS? From OUR experiences not what it says..."

by Fleur

in Kearns-Sayer General & Support

Me and my Dad

"Hi, my name is Kerry, i'm 27 years old and i live in South Yorks..."

by kerryanddad
in Kearns-Sayer Introductions & Personal Stories

kss

"hi sandy my son connor has kss he was diagnosed at nine hes now ..."

by shazz09

in Kearns-Sayer General & Support

kearns sayer

"Yes, my mum has KSS and although I know the basics, I'm still un..."

by Fleur

in Kearns-Sayer Medicine & Treatments

Hello Everybody

"My mum has Kss and was diagnosed around 20 years ago, I'm her ca..."

by Fleur

in Kearns-Sayer Introductions & Personal Stories

Latest Group Diary Posts

Finally.. MDJ communit...
"Happy spring everyone!It seems I have totally negl..."

MDJ autumn updates
"Hello friendsIt’s time for autumn updates.Th..."

MDJ going green
"Happy days on MDJ... The green logo you guys chose..."

UV has a sister !
" I’d like to apologize to the many people w..."

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Kearns-Sayer Group Activity

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Kearns-Sayer Syndrome Videos

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Kearns-Sayer Videos

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