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Current Kearns-Sayer Syndrome Discussions
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| "my son was diagnosed in 2004, he was 10yr of age at that time 2y..." |
| "my son also had that surgery done and his went back the way they..." |
| "Hi - it's me again... I got many PMs from members asking to upl..." |
| "Thank you so much for sharing your sons story. I really appreci..." |
| "Hello, I'd love to hear about how your dad and your family have ..." |
| "What do we know about KSS? From OUR experiences not what it says..." |
| "Hi, my name is Kerry, i'm 27 years old and i live in South Yorks..." |
| "hi sandy my son connor has kss he was diagnosed at nine hes now ..." |
| "Yes, my mum has KSS and although I know the basics, I'm still un..." |
| "My mum has Kss and was diagnosed around 20 years ago, I'm her ca..." |


