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A community of patients, family members and friends dedicated to dealing with Hypermobility Syndrome, together.
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Hypermobility Community› Hypermobility Diaries
Latest Hypermobility Syndrome Diaries
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"I was genetically tested and diagnosed with EDS in 1997. I am now 28 and feeling the effects. I am in constant pain everyday. And the Dr.'s where I live just aren't knowledgeable about the dis..." |
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"I am a Air Force wife. My wonderful husband has been in the military now for just about 10 years. And we have created 2 beautiful boys now 7 and 5. I am so thankful everyday for my boys. They are my w..." |
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"I have spent hours, days, weeks and months just trying to figure out a way to help family members understand just how I feel every day. How everything I do causes pain, and despair creeps up when I" |
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"Hope is the thing with feathersThat perches in the soul,And sings the tune without the words,And never stops at all,And sweetest in the gale is heard;And sore must" |
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"One night a man had a dream. He dreamt he was walking along the beach with the Lord. Across the sky flashed scenes from his life. For each scene, he noticed two sets of footprints in the sand: one " |
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"i am a 30 yr young female, mother, wife, and nurse. i have a wonderful doctor that has been with me since i became pregnant with my son. i went thru nursing school and after my graduation i began work..." |
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"I'm 20 years old from Texas, and a patient at the Mayo Clinic in Florida. My ongoing diagnoses: joint hypermobility syndrome, overlap autoimmune connective tissue disease, severe thoracolumbar " |
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"When I was a teenager my stepdad did some pretty bad things to me. It totally destroyed me, took me so long to find out who I was again. My family didn't really stand by me, they acted like it " |
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"I have this thing. This councellor, therapist, shrink thing. Whatever she is, she drives me mad.I had one before, a woman, and I stopped seeing her because I didn't like her. Now I have " |
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"Hello friendsIt’s time for autumn updates.The first thing you probably noticed is that the left pane is on the left again!You guys voted & although it was close, the" |
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"Happy days on MDJ... The green logo you guys chose dictated the rest but we tried to keep as many elements the same or similar. I really hope you like it!!It looks to us as everything is working" |
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" I’d like to apologize to the many people whom I didn’t answer the past few days… as you can see I had a very good reason… ;-)" |
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" 77% of the votes!!...not a big surprise to anyone who read some of" |
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" Hello Fellow members! I’ll keep this short and Sweet… It’s time to give MDJ a little face lift & we want" |
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" Hi Everyone, I hope this finds YOU in good health & spirit! Today we launched a few upgrades that, as always, were requested by your fellow members and are all improvements of your " |
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"Lost my job. Everyone says, it's okay, you'll get a new job, you can go on benefits.I hate the benefits office. I signed on once before when my dad was ill. They treat me like scum. " |
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"it has taken a long time to get the answers we have but i know the puzzle is incomplete. call it a hunch, my mothers intuition....that gut wrenching feeling that i know we are far being in maintenance" |
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"I can't keep going like this. Everything is so f*cked up. I'm working illegally until I get my licence through, but I can't get my licence until I pay for it. But I have no money because" |
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"I'm only writing this because I read that seizures can stem from:Carbon Monoxide Poisoning (√): When I was kid, our schoolbus broke down on the way to summer camp. And the driver left" |
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"First the philtrum is the part between the upper lip and the bottom of one's nose. The center is the usual indentation between the center of the lips and one's nostrils. &nbs..." |
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"I've listened to Into The West 6 times in a row, and I can't stop. My dad chose it for his funeral; he was a big Lord of the Rings fan. I' ve missed him so much over christmas. When he " |
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"My mum was diagnosed today with Benign Hypermobile Joint Syndrome, after 35 years of misdiagnosis, and I am apparently exibiting early symptoms. Might seem strange, but I'm relieved. After years" |
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"Me and my dad had very little in common. Ever since I was a teen, we became distant and uncomfortable with each other. He liked history and walking and cricket. I was a very emotional, moody goth, " |
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"So tired. Haven't slept for the past four or five weeks. Took two Amitriptyline tonight, so should get some sleep. Spoke to my sister Alice today. She says she still hasn't cried, doesn'" |
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