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A community of patients, family members and friends dedicated to dealing with Hemophilia, together.
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Hemophilia Community› Hemophilia Diaries
Latest Hemophilia Diaries
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"Happy spring everyone!It seems I have totally neglected writing in my diary lately, I do hope to write more now - let it be my spring resolution ;-)As opposed to my diary... a lot of work was put into..." |
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"My six year old daughter has a medi port now and receiving weekly infusions of humate p to control bleeding epsiodes?" |
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"The hardest part of living with the disease was the feelings of being alone. You are one of maybe 500 thousand others living with the disease there were no sit down meet others with the disease suppor..." |
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"Im 25 years old. Ive been living with Galactosemia my whole life. Im now pregnant with my second child. I have a 15 month old son he does not have Galactosemia. He dose have Hemophilia Type B. I" |
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" Before Connor and I had surgery, the week before actually Connor fell at daycare and hit his head on the back of the fence, which required 3 staples and 2 doses of DDAVP, he seemed to do okay" |
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"I am a 26 year old mother of 2 boys. Connor is 3 years old and has a diagnoses of type 1 VWB, and Nikolaus is 1 year old and has been cleared and said to not have the disease. My husband and I discuss..." |
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"Hello friendsIt’s time for autumn updates.The first thing you probably noticed is that the left pane is on the left again!You guys voted & although it was close, the" |
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"Happy days on MDJ... The green logo you guys chose dictated the rest but we tried to keep as many elements the same or similar. I really hope you like it!!It looks to us as everything is working" |
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" I’d like to apologize to the many people whom I didn’t answer the past few days… as you can see I had a very good reason… ;-)" |
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" 77% of the votes!!...not a big surprise to anyone who read some of" |
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" Hello Fellow members! I’ll keep this short and Sweet… It’s time to give MDJ a little face lift & we want" |
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" Hi Everyone, I hope this finds YOU in good health & spirit! Today we launched a few upgrades that, as always, were requested by your fellow members and are all improvements of your " |
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"My Dear MDJ Family ;-) Once again it looks like i'm falling behind on my diary updates. almost 3 months since the last one.... :? BUT at least I bring good news... starting now" |
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" Hello my friends ;-) I hope" |
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" UPDATE: as of August 2012 we no longer support the MDJ toolbar and we recommend uninstalling it. Exciting day !I am very happy to announce the launch of the MDJunction Communi..." |
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"Hi everyone ;-)It’s been a long long time since I last updated my diary. Too long, I guess I’m nearly failing :?In about 10 days we will have some very exciting" |
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"It is now spring break and my oldest son is doing a little better. He can now walk again and is not in constant pain. He now goes to physical therapy 3 times a week and is recieving infusions " |
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"If the past cannot teach the present and the father cannot teach the son, then history need not have bothered to go on, and the world has wasted a great deal of time. ~ Russell" |
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"Hello MDJunction family!So many things I want to talk to you all about… ;-)I'll start with a BIG thank you to all our advocates" |
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" Good day my friends ;-) Unbelievable! It’s mid November 2009. I just can’t believe it’s been almost 10 years since Y2K and believing" |
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" Hello my friends ;-)I love summer. That big yellow thing in the sky just makes me automatically" |
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" Hello friends, It's been three months since my last diary post. I'm really not living up to my promises here... As you guys probably notice MDJunction is getting bigger" |
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"It's probably the cold weather. In a tropical country like ours, a drop to 16 degrees (Celsius) can be considered very cold. That has been so for many nights now. Many children (and adults" |
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"Happy Holiday Season My Friends! I hope you all got used to the new look by now and enjoy the better navigation between pages, more navigation improvements are in the oven. The " |
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" Hello Hello Hello, Weeeeeeeeeee Weeeeeeeeeee Weeeeeeeeeee ;-) As you can probably see…… we&#" |
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