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"I have a diagnosis of a rare IBD, fibromyalgia, and recently Ehler Danlos. I hav..." (nolapepper)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

more testimonials

Health Topic: Menstrual Cycle

Discussions, Information, Resources, Symptoms & Treatments
"hours ago I've been having breakouts for years, usually during my menstrual cycle I get a rash in several different places My left ey"
"This is mostly for the ladies. Does anyone have a problem with their menstrual cycle while on meds? I have gone to the doctor severa"
"lly watch the blisters rise) but also seem to run concurrant to my menstrual cycle. As we know there is no cure but I have found a cour"
"This has been really hard for me.. but to start off I'm 20 years old and so is my girlfriend. We've been going out for about 2 years no"
"How can you tell when you are feeling "normal"? I keep wandering if how I feel is "normal". I am so confused about"
"Ok peeps. I was on 400mg of doxy (raised from 200) I was feeling better, but my doc didn't want me on it any longer as the summer was"
"Morning everyone! Can't stay long, getting tests done at the hospital to see what the heck's going on in my head...really, looking for"
"It is getting so bad that I cannot even focus at work on the day before I start my period. It doesn't last longer than a day, but I r"
"I spoke to him on Monday saying that my feelings were caused by my menstrual cycle and I needed to see a tdoc. My meds should have bee"
"I became suicidal Friday evening and it happened very quickly. My husband really hurt my feelings, then I immediately became extreme"
"Im reading alot of your messages, since I am newly diagnosed bi-polar. I wanted to ask do any of you seem to stay (Stable) meaning on a"
"I finally finished the website I started months and months ago! http://dercumsdisease.bravehost.com/ Just sharing :)"
Show all Menstrual Cycle related posts
"I was putting away the dishes today I looked at the knives and had a scarey thought about them. Then I tried not to think abouy the fac"
"the same symptoms for the past 6 months the day before I start my menstrual cycle. I must remain in bed dizzy and nauseous for the nex"
"All - I'm new to this forum and have not seen this question raised (maybe it has already been discussed?). Has anyone suffering"
"My daughter was recently diagnosed as Bipolar II. She was originally put on depakote,abilify,klonopin, and cymbalta. That was Novembe"
"I look at my life and the circumstances that I'm in and I often contemplate (running away) you know when you've seen those stories on t"
"I've had headaches 4 out of 5 days this week. menstrual cycle, plus new job stress....I just go home and put the ice pack on my head,"
"I have been chating with a dear friend of mine here at mdjuntion and we decided to put it out for you. We both seem to get consumed wit"
"Today is my Birthday!! Last night I decided to go out with some friends and have some fun...why oh why?? I am once again so paranoid I"
"My Dr. recently gave me a holiday from my percocets since I was taking five a day and only getting 2.5 - 3 hours of relief from them. H"
"Listen to what i did two days ago. it was in the morning my fiance was about to take the kids to school. my 8 year old was being really"
"

Post edited by: underthesea, at: 05/08/2012 12:45 PM
"
"Anyone have weird things happen with your cycle while taking lamictal?"
"Question... I have been having unusual pelvic pain and also pain over and behind my right ovary. I know by the reading I have done th"
"http://www.rd.com/content/how-menstrual-cycle-affects-blood-sugar/"
"http://www.rd.com/content/how-menstrual-cycle-affects-blood-sugar/"
"i am 32 yrs old and had a hystorectomy almost 5 yrs ago. i am not on HRT or anything. i go back to the endo doctor on may 2nd and he ha"
"Can anyone tell me how FMS affects mood swings. My wife was diagnosed with FMS about 4 years ago, but she has terrible mood swings."
"Hi everyone...this pertains to girls only. I am soooo much better. However, during the week of my period I feel kind of \"lymi"
"Becca had a lower lumbar strain last week and our pediatrician recommended that she see a Massage Therapist. So we saw her last Wednes"
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