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"I wear the Silver Ribbon to represent the people with Parkinson's Disease and Es..." (SusanElser)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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Wilm's Tumor Support Group
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Wilm's Tumor ForumsGeneral & SupportWilm's Tumor Videos on MDJunction
03/06/2011 06:57 AM
roy
roy
 
Posts: 5188
Admin
I'm an Advocate

Hello Everyone!

Such a pleasure to write you all.

Once again... a major improvement to the MDJunction platform today! (those of you who are subscribed to our email updates already got the notice...)

We just launched a video section for each of the support groups, full of quality video content.

Check out the Wilm's Tumor Videos page and others like the Kaposi Sarcoma Videos page.

The robust video library has tons of videos. I suggest using the search box to the right of the video player to search for any topic you're interested in (it can also be non related like funny movies and crafts). You can click on 'Discuss this video' to the right of the player which will start a forum discussion about the video with the video inside or even share with friends via email - just click on the mail icon at the bottom of the player..

ENJOY my friends! But not too much time in front of the screen Wink

roy

first they ignore you
then they laugh at you
then they fight you
then you win.
- Ghandi
Reply

03/09/2011 03:15 AM  Top
roy
roy
 
Posts: 5188
Admin
I'm an Advocate

Hi - it's me again...

I got many PMs from members asking to upload their own videos. At this point we can't add to the library . but hope we will be able to soon, we understand the importance of that!

and another (not related) topic...Two weeks ago we added to the MDJunction toolbar (now available on chrome too) the Groupon application that shows you the hottest daily deals in your town, every day. We received great feedback from the people using the toolbar so I suggest trying it out!!!

CU

roy

first they ignore you
then they laugh at you
then they fight you
then you win.
- Ghandi
Reply

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