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Hi, my name is Justin Kim, and I'm doing a research paper on Werner Syndrome. I was wondering if anyone who has a family member with this syndrome or someone diagnosed with the syndrome could answer my questions. 1) When did you learn that you had Werner Syndrome? 2) Has life changed in any aspect after the discovery? 3) If so, please describe the changes in detail. 4) How is your daily routine different from that of a person without this disease? Explain in detail. 5) What special accommodations must be made? 6) Anything else you'd like to inform others about the disease? Thank you in advance! This really means a lot to me, and I would appreciate it if I could get at least one response by Thursday, March 20,2008. Have a nice day! |
