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10/14/2011 07:03 AM

24 years with wegners My diet

Posts: 6
New Member

Number one. Don't drink pop/soda

because the salt content makes the side effects of prednisone much worse.

2. limit or eliminate white carbs.

because prednisone causes weight gain. your body changes from its use. my personal experience is that within a week i feel a thousand percent better if i avoid bread, pasta, and anything else made of white flour.

3. drink milk or eat cottage cheese and or yogert. have to take care of our bones since many of our meds cause ostioperosis.

4.Eat dark greens till u puke. just like any other health problem u never can get enough for your immune system.

5. drink sugar free wylers powders drink mixes or crystal light or those new little bottles of drops u can add to your water. hydration limits damage to ur liver and probably every other part of your body from the meds.

6. eat fresh fruit.

7. eat high fiber cereal examples:oatmeal, cracklin oat bran"my favorite" or any that have very high fiber and vitamins if poss

8. eat smaller amounts of meat. any meat. about 6oz or less a day

sounds like mosts diets recommended right? but for wegners patients i'm telling u its even More important. I hope this helps someone. i wish i knew the pop thing 15 years ago. lol AND FOR GOD SAKES IF YOU SMOKE QUIT!

good luck everyone

im in it to win it! luv lori


11/11/2011 07:32 PM
Posts: 7
New Member

Hi Lori,

I'm really glad you posted your 'diet'...

I wish my Doc's would have told me half of what you listed in your post.

My weight gain is an embarrassment... it's gone beyond the 'moon face'.

Did your blood sugar also go up? (Causing Type II diabetes?)

What about your blood pressure? (My Doc put me on Avalide.)

Now that my med's are (apparently) a permanent part of my life... I'm looking for advice, help, or maybe some conversations with other Wegener's patients.

I've checked out the support group, and I guess I'm in a different time zone... I can't seem to catch the group online!

I don't need a crutch... I'd just like someone who knows Wegener's, that I can maybe turn to once in a while for advice.


12/27/2011 06:20 PM
Posts: 18

Thanks for posting that bit of info on diet. I was making some major misstakes. I have little taste and no smell therefore I've lost weight after one year of active Wegner's. Your the pro on this after battling for all these years. I have had Wegner's for one year and I'm wineing all the time. Your now my hero Smile

01/01/2012 04:06 PM
Posts: 6
New Member

iv'e luckaly been able to keep my blood sugar under control and at my highest weight my blood pressure only reached 120/90. not eating white carbs will help alot. good luck I hope it helps!

07/02/2012 03:13 PM
Posts: 3
New Member

Thank you for the post! I keep asking my specialists about diet, and they haven't given me any advice they keep telling me to keep eating what I'm eating! So this will certainly help!(:

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