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Von Willebrand Disease Support Group
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Von Willebrand ForumsGeneral & SupportVon Willebrand's and kidney donation
07/13/2009 08:20 AM
everlasting
Posts: 16
New Member

I have a mild case of Von Willebrand's and my partner is in need of a kidney - kidneys are failing. His family members did not suceed in the screening process for donor and ironically I have the same blood type of 0+. Does anyone have a comment as to the risks I might be facing and is my decision a realistic one?

Everlasting

please respond to my e-mail address of carpe.diem@ns.sympatico.ca

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07/13/2009 08:42 AM  Top
hopefull1
hopefull1
 
Posts: 1965
VIP Member

Welcome to the group Everlasting! With any surgery there is a risk of complications. Have you had any surgeries where you have hemorraged? If not, you are in good shape. I would definitely suggest talking to a very experienced hematologist about having infusions of Humate P before and for about a week afterwards. Humate P is the cleanest way to get factor 8. You should have an infustion before the surgery, infustions after the surgery every 8 hours for the first 24 hours, and then one a day for the next week. This will not only stop you from having bleeding problems during the procedure, but it will also aid your body in healing afterwards. I hope this helps and I hope all goes well for your partner. Smile

Post edited by: hopefull1, at: 07/13/2009 08:45 AM

Steffanie
Do you or someone you know have Von Willebrands Disease? Come join us at http://www.mdjunction.com/von-willebrand-disease

Please note that any advice given is not a substitute for getting a diagnosis from your doctor.
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