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Varicose Veins Support Group
A community of patients, family members and friends dedicated to dealing with Varicose Veins, together.
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11/21/2007 02:56
roy
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The Varicose Veins Support Group is full of ways to interact and share your knowledge and experience. It's your chance to be around people who are dealing with the same issues as you do and understand you best.

The Varicose Veins Support Group has 3 main discussion topics. You can explore them by clicking the link on the left. As this group just started we'll need people to jump start it and make it as productive as other groups on this site are. To get an idea you can visit the Lyme group or the Fibromyalgia one.

It's important to keep an open mind to different opinions and points of view, different things work for different people. Remember! This group is all about people helping people and it’s not in any way a replacement for medical diagnosis and treatment.

You should wear a ribbon and tell people why, write a diary and most important – hug people. A hug is probably the best cure for anything

And much much more…

For more information see our Group Guidelines.

Please contact me regarding anything you want

We really want this group to blossom.

roy

first they ignore you
then they laugh at you
then they fight you
then you win.
- Ghandi
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02/01/2008 21:14
NaturalGirl
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Wow - Am I the first one here? I have severe varicose veins and then full-blown CVI(chronic venous insufficiency - where the blood does not go back up your leg.) I also have lymphodema and my right foot swells to some degree - largely controlled now though. Thankfully, my major symptoms are now under control as long as I do a lot to keep it that way; except whenever stress causes imbalance (hot flashes etc - twice so far this year) - that ruins all my efforts and it seems to take a whole month to get "normal" again. I also get sore skin and sensitivities to the compression hose I wear. ANyway, I cannot just sit or just stand - so I carry a cheap canvas wooden folding seat I got at WalMart. It really freed me up the day I got that for only $7! I took it for standing in line voting, and use it on duty whether or not administaration likes it. You need a doctor's letter on hand for some things - that is the bottom line whether a modification ever gets "approved" or not because mine never finished getting "processed" no matter how many meetings, letters and other hoops I jumped through! Hot weather is a real problem in the summers and makes veins like mine feel terrible in a hurry! I carried ice because of this initially, and now I use a coldpack so I would no longer have hours of sour pain everywhere the chair contacts me when I sit; in fact, for years I just tried not to sit - but now I use a coldpack I designed myself (and always carry two and stay where there is a freezer.) This made a huge difference in comfort AND slows down the deterioration in my leg veins. No doctor came up with this - they all talk of support hose (and that's right too of course) but you need to find out what you need even in that area. Best of luck to all needing help here - I will share more.

Post edited by: NaturalGirl, at: 02/05/2008 18:04

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02/05/2008 16:57
NaturalGirl
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Practical situaltions can make having varicose veins a pain: wearing hose even in summer, having them cut in behind the knee and at the ankle, etc. It really seems ideal to be able to change the support you use (adjust them to your activity!) but as a teacher even getting a trip to the restroom presents a major challenge without planning! What helps me get through a day besides a portable seat and of course gradient compression hose and socks (and equestrian or other athletic underwear for upper veins), -is coldpacks! (I invented natural coldpack cushions that have lasted more than 1 year so far and I have advice on commercial coldpacks too if anyone wants to request) I use a carrying bag for them - like carrying a stadium cushion. I hate how commercial ones ooze evn when protected and used carefully, plus I used to spend money every quarter on 3-4 new coldpacks! I finally made my own organic generic ones, and am still inventing a more ergonmomic seat shape. Maybe I should sell the pattern for them for about $3 - it seems it would be only a little hassle! They are heavy to ship. I'm kind of afraid to set up a cart & I don't know of any other way to have a speedy delivery. The one pair of organic gradient compression socks I tried selling on ebay netted me about $2 profit, and since they are not produced anymore it's more a service being provided than a business. I have no idea how many people are like me, with super sensitive skin (to chemicals) and also have vein and lymphatic problems - it would be interesting to see if there's a link, too.

Post edited by: NaturalGirl, at: 02/05/2008 18:58

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02/05/2008 17:15
NaturalGirl
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It feels cathartic to talk about having VV. Most of my career I tried hiding my condition because if you are undesirable you are given unpleasant treatment in already-stressed school systems. I did find getting a doctor letter the single best thing I could do about that, and I guess it also became a bit of job security but I still felt hassled because of it (so hard to prove though! Plus if your school has low scores, all teachers these days get hassled - all my friends are at least..) I was lectured for having to sit on duty, for avoiding heat etc even though I traded or otherwise made up the difference or bought my own materials or stools. Anyway, at times this has seemed the most grave illness I could have. At worst, blood did not even flow back up my leg - a huge amount of blood. Some remedies I thought of myself or got from secretaries actually helped more than what doctors said, when I saw 2 general surgeons, a vascular surgeon and a family physician. There is inconvenience, pain and drama. Plus, if you notice, all the money and technology goes to heart surgery and none to help repair vens. There is one person repairing veins (in Hawaii) but only the worst cases, with venous ulcers! Since laser is used, I personally wish I could take my chances on valve repair (ie chance the risk a blood clot during surgery) However, so much vein has been removed on one of my legs that there is nothing there to operate on. Caution - do not think removing more and more is the best solution! The larger veins do not even grow back. Only small veins regenerate more. This probably brought on the chronic venous insufficiency although no doctor dares put that in writing. VV seems a very depressing topic and is treated that way in my opinion - as if there is no hope. *Sitting at a computer is very hard on VV. I searched fruitlessly for a site that spoke of help tips - and only found hose companies, clinics, plus one abandoned vein site at the time. I wonder if pain sitting at a computer is one reason many people do not post onine. I hope for posts that add to my hope as well as speak the pain that is so hard to avoid. I wish for everone with VV the expectation that life can get better.

Post edited by: NaturalGirl, at: 02/05/2008 19:26

Post edited by: NaturalGirl, at: 02/05/2008 19:27

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02/05/2008 17:30
NaturalGirl
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Sorry for so many edits! I probably have too much to say and I just tried breaking it in parts. I love how personable others are in their posts on MDJunction - I will be more like that after this.

I think general health improvement is key, including enzymes which are prescribed for some lymphodema patients in hospitals. I've benefitted from what Garden of Life supplements provide - they focus on a healthy gut too. ("Health begins in the gut" or something like that) The ONE Group organic products I sell also include probiotics and etc. I do not even mention them on my Green for Christ site because I am just beginning to use them; they have the benefit of being organic though whereas G of L doesn't. I don't expect noticeable difference like I did with skin products - because I was already on such a healthy regime -but they seem good. I watch what carbs I eat and only veg and whole grain (sprouted) carbs measure up, balanced with enough protein - which most people forget! We as Americans consume a lot of sugar in starches and etc - even drinks - with no eggs, cheese, etc to balance and prevent insulin spikes. All of this wreaks havoc on hormones, and affects other things (veins in my case!) I have hope that when more of the toxins are gone from my world, my general health improvement will help veins too. In all probability though, my CVI is permanent and due to missing veins, since I seem wired just like my dad and he has missing veins across his heart; also both my parents actually have severe vein problemt. Yet I have managed to avoid some family health issues due to a couple of health "secrets" and I still hope for better health. Health secrets are not really secret, but I had to read a lot to learn about them and most people probably do not find them. Exercise, fresh air believe it or not - I always feel healthiest out in the fresh air in my garden. Eating for health is one part of the answer (enzymes are part of the protocol, right? How about a diet of superfoods, water, organic foods, omega 3, probiotics like kefir, etc., So many of my health problems improved with diet! but even more improved with avoiding toxins - including my veins to some extent because they worsen when hormone balance is off. Many products have hormone disrupters in them which as any woman knows, affects veins (and it may be why so many more women than men have varicose veins.) I have learned a lot about this, I even market a line of certified organic products (thankfully with its own no-hassle cart provided!) -because only the few products that are USDA certified have to meet a standard wheras cosmetics and body care products are virtually unregulated! Cheap substitute ingredients have made this a danger to health; I am also making a website that recommends cheaper but safer alternatives - and shea butter as one I highly recommend as a balm, hand cream, or anything else, if someone cannot afford organic but wants to avoid toxins. I can share recipes for nontoxic cleaners also - and there are organic ones you can buy! I also recommend the Consumer Report article based on the EWG "Skin Deep" report. This and other databases allow you to to look up ingredients and find the least toxic products. (Side note - I wish more cancer patients know of this also! as well as people battling exzema) There is just so much to consider! Let's assume there is hope (unlike some doctors I saw) & we may find more improvement. Faith helped me not to give up (and of course I believe God has caused all th good I now enjoy.) I certainly got my life back - no-one would consider me disabled and I don't have to talk so much about health problems - I just talk health, good food, nature, and my other passions!

Post edited by: NaturalGirl, at: 02/05/2008 19:31

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