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08/25/2011 09:19 AM
irenwill
irenwill
 
Posts: 1849
VIP Member

Here are some helpful links with people's stories and resources:

Suggestions For The Path of the Undiagnosed

https://www.inspire.com/groups/stop-sarcoidosis/discussion/ suggestions-for-the-path-of-the-undiagnosed/

NIH Undiagnosed Diseases Program (temporarily suspended receiving applications)

http://rarediseases.info.nih.gov/Resources.aspx?PageID=31

Syndromes Without a Name

http://www.undiagnosed-usa.org/

Misdiagnosed or Undiagnosed

http://patients.about.com/od/misdiagnosis/ Misdiagnosed_or_Undiagnosed_Clues_Possibilities_and_Next_Ste ps.htm

Metabolic Mysteries: Undiagnosed Thyroid Disease and Women

http://thyroid.about.com/cs/basics_starthere/a/mystery.htm

Undiagnosed Program Finds Rare New Disorder

http://www.newscientist.com/article/mg20927983.800- undiagnosed-diseases-program-finds-rare-new-disorder.html

Lyme Disease: The Basics (includes symptom questionnaire)

http://www.lymepa.org/html/the_basics_-_description.html

Heal With Hope

http://www.healwithhope.com/articles/undiagnosed-and-rare- diseases/

I'll try to keep this list updated as I find more.

I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!

Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions.
Reply

08/30/2011 03:17 PM  Top
irenwill
irenwill
 
Posts: 1849
VIP Member

Symptom checker from WebMD: http://symptoms.webmd.com/

Not great, but better than nothing!

Discussion of Lupus and the undiagnosed:

http://thelupusmagazine.blogspot.com/2010/10/hope-for- undiagnosed-kim-nault.html

Post edited by: irenwill, at: 08/30/2011 03:36 PM

I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!

Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions.

10/17/2011 12:28 PM  Top
irenwill
irenwill
 
Posts: 1849
VIP Member

I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!

Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions.

11/15/2011 09:53 PM  Top
irenwill
irenwill
 
Posts: 1849
VIP Member

Something to consider - environmental toxicity. Includes link to a survey

http://www.hightechhealth.com/html/toxic_world.htm

Here's a link to testing for toxins:

http://www.chronicneurotoxins.com/

Post edited by: irenwill, at: 12/20/2011 02:29 PM

I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!

Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions.

11/17/2011 03:47 PM  Top
irenwill
irenwill
 
Posts: 1849
VIP Member

Mystery disease diagnosed - arterial calcification

http://today.msnbc.msn.com/id/45327870/ns/today- today_health/

I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!

Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions.

11/20/2011 12:40 PM  Top
irenwill
irenwill
 
Posts: 1849
VIP Member

Hypothyroidism has really non-specific symptoms - Stop the Thyroid Madness tells you how to get the right tests and treatment

http://www.stopthethyroidmadness.com/

Article from the NYTimes details how psychiatric symptoms improve with thyroid treatment

http://www.nytimes.com/2011/11/22/health/for-some- psychiatric-troubles-may-begin-with-the-thyroid.html?src=me&ref=general

Post edited by: irenwill, at: 11/22/2011 02:00 PM

I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!

Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions.
Reply

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