Trigeminal Neuralgia Support Group

Hi

I have Peripheral neuropthy and twice now i have had the trigmenal nerve flare up and hurt so bad on the left side of my face, eye and ear area.

I have been taking amatriptyline now for nerve pain. it works way better than the neurontin for me.

I have the same pain...see just how we differ as far as what drug works for the same pain!

I sure hope your pain free ")

Welcome I too share your pain except mine is on the right side. I take neurotin, along with valium, and another pain med. Also my face is mostly pain free since my doctor burned the nerves in my face. That made all the diffrent in the world. I still have some TN flare ups but it is bareable. I also have Bells's Palsy which causes the right side of my fae to droop. I wish you the best.

Kathy

I am pain free after many months of carbamazapine 1200mg/day. I also used to take neurontin for diabetic foot pain but it did not help. I wish everyone who had TN to be pain free. It's such a disabling malady.

Wow! It is so nice to actually meet someone with ear pain. I have extreme ear pain and left face pain below my eye. It moves around to different locations on my face. Very odd. I don't get the shocks though, so they call it "atypical facial pain". Which to me sounds like they don't know, which is pretty frustrating. Anyhow, I too found that Elavil is helping. I just started it a couple of weeks ago and am pleased with the pain relief in my face, but not my ear. I was wondering how much Elavil you are on? I am taking 50 mg at night. It seems like the meds I have tried work for about a week or so, then I need a higher dose. I am also taking Neurontin and Lamictal for my face/ear pain. Does anyone have atypical facial pain and has anyone had success with these drugs?

Thanks for your help!

Kelly