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02/27/2010 05:56 AM

What techniques help you reduce tics?

Bret
 
Posts: 77
Member

What techniques help you reduce tics?

I have found that stress can drive tics from very few to worsen to the point where I am nonstop and that can go on for days..

What techniques help you reduce tics? Can anyone here please share any methods that you use or have learned over the years?

Which relaxation techniques help you?

Also is any one using oxygen as therapy?

I have found that stretching exorcises reduces the injuries and pain that I get from neck and shoulder jerking.. I have heard some say stretching and exorcises worsen tics.. Is that so and why would that be?

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02/27/2010 07:33 AM
valerieanne
valerieanne  
Posts: 162
Member

I have had occasional worsening of tics on the treadmill. My cardiologist told me to stop using it because the tics throw off my balance. I still use it sometimes but now I hold onto the hand railings next to it. But in the past my sister and a teacher were able to help me control severe tics by talking to me in a very gentle, soft voice. I would relax and the tics would either disappear or at least lessen to a livable level. But if anyone else tried it, it didn't help.

02/27/2010 07:44 AM
Bret
 
Posts: 77
Member

Hmm, I noticed when I worked out I had many more motor tics but not verbal. Which relaxation techniques help you if any? In the past you talked about guided imagery. What is that? And what if any meditation have you ever done?

Post edited by: Bret, at: 02/27/2010 07:45 AM


02/27/2010 06:12 PM
Nevayda
 
Posts: 7692
Group Leader

Our med journey took awhile. There are some good meds listed at tourette-syndrome.com. We finally tried respiradol which was just a God-send in our situation. Changed to geodon because of weight gain (not everyone gets that side effect) and now invega(due to side effects of geodon. These meds are anti psychotics. Doing good on invega. Stops mental tics, helps with motor and vocal tics. Lovox for ocd, dexastrat for adhd.

The anti-psychotics helped us. We tried other meds but this combination worked for us. There are other meds and it's best to see a Dr. who is familiar with treating TS. That's where the state tsa can help.


03/01/2010 02:58 PM
valerieanne
valerieanne  
Posts: 162
Member

Bret- Guided imagery is when either a person or an audio recording talks you through relaxation. They start by telling you to breathe in and out, sometimes using a word or sound on the exhalation. This gets your body calm. Then they walk you through imaging a peaceful place, maybe a field of flowers or a softly babbling brook. As you listen to them describing the scene, you almost fall asleep from the relaxation. If you get god at it you will feel like you are really there. Then, depending on what your goals are, they may introduce an image of something that stresses or scares you and talk you through dealing with it. Like, for me, I had a teacher try to molest me my Sophomore year. So my therapist can help me imagine a place I feel safe, get me very relaxed and feeling safe. Then when I got to a good point of relaxation, start walking me through the trauma. By doing it that way, I don't panic when I talk about what happened and feel like I have some control over the situation. I can then deal with the fear I felt and the shame and guilt that followed. Even though I got away from him before he could do anything, I always believed I must have did something wrong that made him try to do what he tried to do. Plus the school treated me like I was at fault. So with the guided imagery I am having less flashbacks and when I have them I am having less anxiety attacks. I can do the relaxation techniques on my own, now, to a point.

As for my meditation, I put on soft music, sometimes soft rock on low, other times I use instrumental or nature sounds. I close my eyes and repeat a word or phrase and breathe as deeply as I can while I tighten and release my muscles. If a thought enters my brain I hear it and let it drift away. I also ask my Guardian Angel for advice and listen for an answer. I really like meditation when I am not too hyper to sit still.

Nev- Geodon is my next stop if the Zyprexa doesn't work. I have to use Methylphenidate (Ritalin) because Medicare won't pay for the newer meds that are actually safer for anyone with Tics. I wanted to try Concerta, it didn't have a warning about Tics, but Medicare won't pay for it. Wonderful Health Care system we have. huh?


03/02/2010 03:46 AM
Bret
 
Posts: 77
Member

Val you are a strong person. Thank you for sharing that with me. You have carried some strong emotions around with you. I am sure it has been a very complicated issue to deal with. I do understand your frustration. I know how they make you feel so mad that you could be triggered at any moment. I know how unassuming innocuous reminders can flash your mind and re inject these thoughts in to your day where they do not belong at the most unreasonable times and would be impossible to explain. Truth is I don't think you need TS to even "want" to burst out and drive off the thought with a burst of F-YU- tics. I also understand how some times your tics don't remove these thoughts for a while and how having to even deal with the anxiety pisses you off. It's a shame you had that event in your life and it was not your fault. I never understood "Guided Imagery" and I think you explained it to me very well. I will try to use this method. It's a smart idea .. Thanks for teaching it to me.

03/02/2010 05:36 AM
valerieanne
valerieanne  
Posts: 162
Member

Bret, thank you for your kind words and understanding. It took me a very long time to realize that it wasn't my fault. After all these years a part of me still wonders what I did to make it happen, although deep down inside I know at 14 y/o (at the time) I couldn't bring something like that upon myself. But definitely try guided imagery. You can get tapes/CDs to walk you through relaxation or you can find a therapist if you want to overcome phobias or trauma. I live in Florida and my therapist is so AWESOME. She even wants me to publish a book of my poems. I guess she thinks people will like them as much as she does. If you like poetry, check out my page at www.poetrypoem.com/ariespage and if you read them can you let me know what you think of them? Talk to you later. Smile

03/02/2010 06:16 AM
Nevayda
 
Posts: 7692
Group Leader

Hi Val, I'm glad you are willing to try geodon. On the other subject, you are not at fault for the behavior of another. People tend to to blame the victem and it can be so confusing. You were a child, and he was the adult-------You are not responsible for that.

03/02/2010 10:22 AM
Bret
 
Posts: 77
Member

I have had head trauma, abuse and trauma issues also and I know what you are talking about.. But for me it's also like when i'm watching a movie.. tired or like when I am not paying attention and trying hard to control them in some way. One thing that I have tried to do over the years is substitute words in hopes that they would become a tic in substitution of vulgarity. It took a while but seemed to worked a little bit for me some times. But, I say all kinds of stupid stuff. I also find myself holding my arms tight to my body a lot. Hand over wrist very tightly with elbows tucked in as tight as I can. I don't know if anyone notices. It kind of looks like I'm crossing my arms. I also have tics that contract my arms shoulders and slight neck jerking. But I never considered it to bad really.. I try to move after a tic to make it part of a natural movement or scratch my head or arm. Unless I'm home, then I mostly just let them fly. If I start to notice a lot of motion. I just take a walk so I don't poke a whole in my monitor. I have been noticing a gradual progression into more full body movements and much longer durations over the last few years. But really when it comes down to it, Calm, no thoughts, relaxed, even happy, I still Tic it doesn't matter. Just less at low stress times I guess. As for pomes and a book I think that is a great idea. I tried quickly but can't read the one I found. Not sure why, the font maybe I think. I will try again later. Reading for some reason is becoming a huge issue for me. I try to use a screen reader but it's a pain to get at and mine is not working well for some time now.. I will say this I have never taken such note and realized how much I really have accommodated and coped with Some of this stuff until talking to you folks on this forum. I am calling my doctor, I have a lot to talk with him about. I have many questions. Hope you have a great day..

03/02/2010 12:47 PM
valerieanne
valerieanne  
Posts: 162
Member

Bret- I think it is great that you learned to accommodate or adjust to your tics over the years. For the first 17 years of my life, well since age 5 anyway, I must have accommodated them because I didn't know what I had. But they had to tell me at 17 y/o because the tics were way more prominent and they finally had to tell me what was happening to me. I used to clear my throat and cough, or make animal noises, slurred my speech and fidget so bad the teachers would get mad about it. Turned out they were all tics. But if someone asked me why I was doing something like blinking or clearing my throat, I would just make an excuse because I didn't even know I was doing it. When I started shaking my head at 15 y/o, my Mom always yelled at me for it and told me to stop. I'd just well her my hair was in my face, even after she had it cut real short. I didn't know why I did it, to this day I don't know why I do it. But accommodation seems to be the only way to survive this horrible affliction, uh I mean disorder... I hope your Dr. is a good one. Neurologists are your best bet. My new Neurologist is a seizure specialist with experience in TS. FGood Luck. Smile

Nevayda- I tried Geodon years ago but at the time I was on so many different meds no one could tell if it was working. I hope the Zyprexa helps. I just have to keep checking my blood glucose levels. And thank you, for saying I am not at fault for the other part. Isn't it strange how society almost always wants to blame the victim instead of the one who committed the crime? I watch a lot of Law and Order SVU, and the first thing anyone ever cares about is what the victim did wrong, even if the victim is a child!! And at least half the time they claim the victim deserved it!! I know SVU is just a show, but it is often based on real life events and that is a very sad outlook for society to have!!

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