Newly Diagnosed

I did not see any posts here so I am not sure if anyone is out there to help. I am newly diagnosed with TTS and in pain it seems like every minute of the day. Is there at light at the end of the "tunnel"? I have been dealing with this for weeks and it does not seem to be improving too much. I have had Medrol, Naproxen, cortisone shots, am in a boot and use a cane. A newly acquired wheelchair is also waiting to be used when I finally get out of the house.

Thanks!

Yaker

Welcome to the TTS group. I'm sorry you are in such pain. What kind of doctor are you seeing for this? Has (s)he given you anything for the nerve pain?

The only thing that has helped me is Lyrica. It doesn't completely take away the pain, but it does help. Without it, I wouldn't be able to walk at all.

You can read my tarsal tunnel story here:

http://www.mdjunction.com/forums/tarsal-tunnel-syndrome- discussions/introductions-personal-stories/95469-my-tarsal- tunnel-adventure

Thanks for responding. So far I have seen a GP, an orthopedist then finally a Podiatrist. The Podiatrist is the only one who is really trying to help me. I am on Naproxen which only helps slightly and is causing my stomach to be upset. They do not want to give me actual pain medication because they think I will injure my foot further if I am not in pain. That is ridiculous. The real reason is I live near Philly and they have a problem out here with drug abuse. Good people are not given pain medicine due to irrational fears. I moved here from Pittsburgh and I have never been denied pain management. It is such a problem that the Inquirer ran a story on how people are deined pain management here.

I can't tell if the boot cast is helping or not. I have Chronic Fatigue Syndrome and this whole ordeal has thrown me into a bad relapse.

At night I can only slep on my side or I would be up all night.

This is an awful condition that I was never aware of. Too bad the public is not as educated as it is in carpal tunnel syndrome.

Do you work? I am on disabilty for CFS but I can se where this would be a disabling condition.

Thanks so much for responding. I really need an understanding friend right now. Any advice is greatly appreciated.

I do have Lyrica for my Fibromyalgia however the first time I took it I had a reaction. I was really confused and it was scary. Therefore I am leery of trying it again.

Oh yes my name is "Yaker" because I love kayaking when I am able. I was looking forward to going soon but that is on hold. Although I do love to talk(Yak) to people as well.

Thanks,

Kathy

OH! You do have Lyrica? I say try it again and try to endure the side effects as much and as long as you can. I did and it's the ONLY thing that really helps the nerve pain. I just have to deal with the side effects. They are worth it for the pain relief. Can you get refills for the Lyrica?

I was in the cast boot for 7 months, it didn't help me. In fact, in may have contributed to my RSD, I'm not sure.

My podiatrist told me that TTS is a rare disease/condition, others say it's not. Whatever the case, few people know about it from what I've found.

I work at home as I can. Thank G-d, I'm blessed that I can do this.

I don't work as much as I used to and my buisness has suffered, but at least I have something.

Kayaking - cool! I bet you miss it. I used to do many things that I miss too. But we adjust, right?

Wishing you a pain free day!

Bailey