Hi All, I have been trying to reach out to many of you and I think I am having some trouble with some of my messages going through so I am sending a general post as many of our issues, concerns and fears about this disease are a common thread. Prednisone gives us so many side effects and effect our self esteem(wt.gain, cushing face, irritability, sleeplessness) that we go off it. It gives me all that and more, but it is my friend because it really does stop the inflammation and make me feel better. Once that happens the dose is lowered to more tolerable levels. I also now take methotrexate so the Prednisone can be lowered still. I am very fortunate to have found the Vasculitis Center at Johns Hopkins. There are only several institutions in the country that I believe have enough expertise in this area to most optimally deal with this disease. So please do yourself a favor and go to one of these Centers. I have found my overall health and treatment to be improved since going to JH. I am so glad to see so much activity on this site and all of us reaching out for answers and support. capecodgirl |
"MDJunction has become a lifeline to my recovery. I use this site as a daily coping tool where i can share my thoughts,my fears and ask ways to cope with living life with a illness. I also found new friends here and they have restore my faith in humanity. People everywhere come here to share same problems or solutions to problems we encounter in our lives. MDjunction is a wonderful site and has help not only myself but also my family and friends. I recommend this site to anyone who thinks they are alone dealing with an illness and also to those who have love ones who suffer from illnesses. I will keep spreading the word about MDJunction to organizations who deals with illnesses that would benefit having MDjunction as a support system.Bottom line is.. I found myself again through MDJunction" (mobey)
