MDJunction - People Helping People
 

Why wear a ribbon?

 
"I have Epilepsy" (deirfer)

MDJunction to me

TalithaCumi"MDJunction is a wonderful place, full of wonderful people. People that I have learned that I can rely on for anything that I need whenever I need it;
A hug in times of stress.
Prayer in times of crisis
Encouragement in times of doubt.
A laugh in times of sadness.
A smile in times of heartache.
Hope in times of hopelessness.
Assurance in times of fear.
A reminder of the good things in life in times of depression.
And most importantly, love when I need it the most. MDJ has become like a family to me. I have priceless friends that I will hold in my heart and love forever. MDJ is a place of safety, when I know I can be myself and that I am loved. Thank you all SO much, you mean the world to me.
" (TalithaCumi)

more testimonials
Sleep Disorders  Support Group
A community of patients, family members and friends dedicated to dealing with Sleep Disorders, together.
Join This Group
Group Home   Forums   Articles   Members (293)   Diaries   Videos   Leaders   Guidelines
Sleep Apnea Group RSS Feed
Sleep Apnea ForumsGeneral & SupportSleep Disorders and Fibromyalgia
05/30/2009 09:19 AM
fesup
fesupPosts: 3851
VIP Member

Sleep Disorders and Fibromyalgia

http://www.fibromyalgia-symptoms.org/ fibromyalgia_sleep_disorders.html

Fibromyalgia syndrome causes symptoms of extreme pain in the muscles throughout the body. Sometimes the pain associated with the illness can be so intense that sufferers cannot continue with their daily tasks.

But fibromyalgia isn’t just associated with pain. Fibromyalgia and sleep disorders also go hand in hand. In fact, it is thought that up to 80% of people with fibromyalgia experience some type of disordered sleep. Often, these sleep disorders leave people feeling tired, drained, and physically incapable of dealing with the stresses associated with fibromyalgia.

Alpha EEG Anomaly

An alarming percentage of fibromyalgia sufferers have a sleep disorder called alpha EEG anomaly. This sleep disorder may actually be a cause of fibromyalgia because so many sufferers have it. Alpha EEG anomaly affects deep sleep, preventing sufferers from getting a good night’s rest.

Alpha EEG anomaly occurs when sudden bursts of brain activity occur during a time when the brain should be in deep sleep. These periods of intense activity are measured as alpha waves on an EEG monitor. People with alpha EEG anomaly do not have difficulty falling asleep, but once they reach deep sleep, their brains begin to act like they are awake. This leaves sufferers feeling tired and drained.

Sleep Apnea

80% of people with fibromyalgia suffer from sleep apnea, a disorder that causes momentary stoppages in breathing. Sleep apnea only occurs when a person is sleeping, but it can affect some people so badly that they actually cause themselves to wake up. Many people who suffer from sleep apnea don’t even know that they have it - usually it is a partner that

notices the sufferer waking up.

In apnea, there are gaps in breathing that can last for a few seconds or even as long as a minute. These gaps are often caused by a collapse in the airway due to snoring or being overweight. This is referred to as obstructive sleep apnea. However, there is also a much less common form of sleep apnea that appears to be caused by a defect in the central nervous system.

Referred to as central sleep apnea, this type of apnea is caused by a miscommunication from the brain. For some reason, the brain "forgets" to tell the lungs to breathe. People suffering from this type of apnea usually remember waking up.

Sleep apnea symptoms can affect a person’s sleep patterns. Some people with severe sleep apnea actually wake themselves up hundreds of times a

night, if only for a few seconds. This prevents the body from benefiting from any restorative sleep. Sleep apnea can leave fibromyalgia sufferers feeling increasingly fatigued and even more subject to pain.

Restless Leg Syndrome (RLS)

Many people with fibromyalgia suffer from restless leg syndrome symptoms. RLS causes unpleasant sensations in the lower limbs, so much so that the

limbs have to be moved in order to reduce the pain. RLS occurs mostly at night, between the hours of 10:00 pm and 4:00 am, though it can also occur throughout the day in severe cases. It is thought that somewhere between 20% and 40% of fibromyalgia sufferers also have RLS.

RLS is exacerbated by long periods of rest, particularly nighttime sleeping, long car rides, or airplane travel. People with RLS describe crawling, itching, burning, or aching sensations beneath the skin in their legs. These sensations are so un- comfortable that they must move their legs, either by getting out of bed, or by exercising or stretching. Many find that if they do not move around, their legs will twitch involuntarily. Typically, RLS affects the calves and lower legs, though it can also affect the thighs, feet, and arms.

RLS causes major disturbances to sleep patterns. Because you are constantly being woken up or forced out of bed, many FM sufferers find that they just

cannot get adequate rest. Many feel drained and sleepy during the day.

Periodic Limb Movement Disorder (PLMD)

Periodic limb movement disorder often occurs alongside RLS. In fact, 80% of those fibromyalgia sufferers who have RLS also have PLMD. PLMD is very

similar to RLS, however it only occurs during nighttime sleep. It can also become quite exacerbated and even violent, unlike RLS.

PLMD causes intermittent movement of a person’s limbs while they are in deep sleep. A person with PLMD may move their feet, knees, or thighs rhythmically without even realizing it. Most movements occur at intervals of between 5 and 60 seconds. For example, a person with PLMD might suddenly flex their knee, and then 60 seconds later, flex it again. These flexes tend to last for 10 seconds or more. The most common

movements seen in this sleep disorder are flexes of the big toe, fanning of the toes, and flexion of the knees.

PLMD can be quite annoying when you are already suffering from widespread pain and other fibromyalgia symptoms. Sometimes people with PLMD can become quite violent, kicking and flailing while they are in bed.

People with PLMD often report bouts of insomnia or daytime sleepiness, which can exacerbate their symptoms.

Bruxism

Bruxism (teeth grinding), frequently affects people with fibromyalgia. Bruxism is thought to be a part of a disease that is closely related to fibromyalgia, called Temporomandibular Joint Disorder (TMJD).

This disorder causes muscle pain in the face, neck, shoulders, and back, and often leads to grinding of the teeth. 75% of people with fibromyalgia

also have TMJD.

Nocturnal bruxism occurs when you are sleeping. For some reason, sufferers begin to clench the muscles in their face causing their teeth to grind together. Many are unaware of this as they are sleeping, but in

the morning they can be left feeling achy and sore in the jaw area. Bruxism can lead to a variety of dental problems, including loosened and broken teeth.

Post edited by: fesup, at: 05/31/2009 07:49 AM

How do you sleep? Do you snore? Do you wake up through the night? Come join me at the sleep disorders sleep apnea group! We'll talk about it!

http://www.mdjunction.com/sleep-disorders
Reply

05/30/2009 09:21 AM  Top
fesup
fesupPosts: 3851
VIP Member

Fibromyalgia

Fibromyalgia is a disorder that causes patients to experience muscle and

bone soreness, pain and stiffness, fatigue, and difficulty sleeping.

Fibromyalgia sufferers report varying pain intensity in the back, neck,

shoulders, hands, legs and other areas.

Certain body areas may feel tender for no apparent reason,

and a range of other symptoms such as shooting pains, numbness, tingling

and throbbing may be present. The fatigue present in fibromyalgia patients

is often so severe that patients' quality of life becomes diminished.

Many fibromyalgia patients also experience an additional resulting sleep

disorder. The sleep disorder and the fibromyalgia are so entwined it is

impossible to successfully treat one without treating the other.

http://www.ihatecpap.com/sleep_disorders.html

How do you sleep? Do you snore? Do you wake up through the night? Come join me at the sleep disorders sleep apnea group! We'll talk about it!

http://www.mdjunction.com/sleep-disorders

Previous discussions I participated in:
new to group
finally did it!!!
ATP-20

05/30/2009 10:22 AM  Top
amazzon

Thank you mami! That is very informative. You are awesome!

08/07/2009 08:05 AM  Top
Kgrin
Kgrin
 
Posts: 1261
Senior Member

I wanted to bring this to the top because I know there has been a few questions, I thought that we should re read this, Fessy put some great information out there..
Rather then being your thoughts and emotions, be the awareness behind them..

Me a doctor? No way! everything I say is based on my experience only, please don't take my opinions as medical advice.

10/25/2009 09:10 PM  Top
grammamarcy
grammamarcy
 
Posts: 90
Member

I have the sleep apnea and unfortunatly also use the cpap at night and anytime I sleep. Unfortunatly I some how take it off at night and still havent figured out how. Im about to bring out the duck tape lol.
grammamarcy

10/29/2009 01:10 AM  Top
cicero28374
cicero28374
 
Posts: 451
Member
I'm an Advocate

I have the same problem. My wife tries to help me keep it on with varying success. The only thing I know is keep trying and try more comfortable masks.Wink

Cicero

God have mercy on us all

Previous discussions I participated in:
just diagnosed
Need opinions
Any hope?

10/29/2009 06:20 AM  Top
Kgrin
Kgrin
 
Posts: 1261
Senior Member

Duck tape lol that is funny, and I could picture that!! Unfortunately they haven't come up with a user friendly comfortable way to deal with apnea really, but like Cicero said just keep trying different masks, I finally ended up with a respironics mask with the nasals that go up the nose instead of covering it, when I was using my cpap it was the most comfortable that I had worn and it stayed put pretty good. Not that any of them are comfortable lol
Rather then being your thoughts and emotions, be the awareness behind them..

Me a doctor? No way! everything I say is based on my experience only, please don't take my opinions as medical advice.

10/30/2009 01:27 PM  Top
debbie1955
debbie1955
 
Posts: 820
Member

Grammamarcy,

When you figure that one out, let me know. Isn't it amazing when you wake up and the thing is laying on the stand and the machine is turned off. I even turn off my humidifier. WOW! If I could only do house work or something else worthwhile and not know it til morning.

I do that sometimes but I usually can stop it. I take it a part to wash it, make sure any part that touches your face in not oily, then put it back together. I then lay down the way I sleep and do adjustments. It almost always has been an air leaak into my eyes. Adjust the headgear, the tilt of the brace on your forehead, and the seal around your nose, that is if you use one that covers your nose. I have an Activa and have had that type for 8 yrs and they occasionally need tweaked.

Good luck

Hugs,

Debbie

Debbie
The info I gave above is just my opinion. Please go to a dr or professional for further advice. Remember we are all different. God bless you all.

11/10/2009 06:51 AM  Top
Kgrin
Kgrin
 
Posts: 1261
Senior Member

Debbie that would be great wouldn't it! Of course if I did house work in my sleep I am sure I would know it in the morning because of the fibro but hey at least I wouldn't suffer through it!! lol!!
Rather then being your thoughts and emotions, be the awareness behind them..

Me a doctor? No way! everything I say is based on my experience only, please don't take my opinions as medical advice.

01/10/2010 12:59 AM  Top
MimiPR
 
Posts: 12
Member

I was diagnosed with sleep apnea before losing my weight. What I am left with is inability to fall asleep at night. I just don't chill down and drift off. It is almost 4 AM now and here I sit.

I had a cpap machine but would take the mask off in my sleep. I do not like anything on my face or I feel suffocating sensations. I got use to laying there with it but then came the next day when it was off my face and my husband would just turn the machine off.

I don't know what to do.

Reply

Share this discussion with your friends:
Members who viewed this page also read:
<< Start < Prev 1 2 Next > End >>

Sleep ApneaSleep Apnea ForumsGeneral & SupportSleep Disorders and Fibromyalgia

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved