Sjogren's Syndrome Support Group

What a joke it was to see this new rheumy! He not only wasted my time but he wasted the tax payers money (medicare) and he's probably going to over charge them.

I signed a release for all my previous labs over a month ago and he had none of them. He said 'lots' of women have Raynaud's and mine wasn't that bad. Gee where was he the day I had to drive without the use of my thumbs? Did he see my hands turn blue after they got too cold? Did he feel the burning and aching I had in them? Even though I told him I have to wear gloves on and off at home and always outside unless its over 72-75 degrees.

He moved my arms around and checked my reflexes and told me I don't have joint pain. Never looked at my curling hands. Never answered my questions about thick skin, telagiectasia thats on my face, hands neck and ears. Small mouth. The white nodules I have on my face, neck, chest and arms/hands or kidney pain.

He asked if I had a rash, well duh, why are you blind?

Never said a word about the yellow in my eyes.

He yelled at me when I questioned him about the lab work he wanted. It was the same exact 'wrong testing' I had in November. My other rheumy told me to go back to the doc and get the right ones done. I thought this guy would do the right thing, but NO!

I even went to the lab and asked them and they said yes its the same test before the does tend to come up with a false negative and its not the correct testing for Scleroderma. I didn't let them draw my blood, what for, might as well have a mosquito bite me!

On the lab order it had my primary, a doctor I went to ONE time for a second opinion and spent 10 minutes with me DUH! I told him that wasn't my doctor and it just made him madder. I kissed this guys ass too, humored him when he dismissed me and disrespected me. He didn't even knock when he came back in when I was still putting my clothes back on.

He said Episcleritis is not an autoimmune problem. I say he needs to go back to a real medical school.

They only reason he didn't say anything about the Sjogren's is because my records show I have been previously diagnosed with it.

Didn't answer me when I told him one doc said Fibro the other Lupus, said nothing.

He pushed his thumbs into the base of my skull and asked is this where it hurts? Instant migraine, gee doc, when can I come back and see you again, you're the greatest!

Next 'new' doc I go to I am going to record the whole appointment. What a fricken QUACK!

Yes I had to keep editing this, you know how it is when a person gets upset and it's hard to remember all the crap I went through today.

Post edited by: twistedDNA, at: 03/10/2011 09:22 PM

Post edited by: twistedDNA, at: 03/10/2011 09:26 PM

Post edited by: twistedDNA, at: 03/10/2011 09:39 PM

Post edited by: twistedDNA, at: 03/10/2011 09:44 PM

twistedna, i am sorry about that dr he seems like a real ass. Is there any one else you can see. my rehum is pretty good he has never been rude and you should report the dr you seen. I had to do that once i had a real schmuck. But dont give up because no one knows what we are going through better than us. Keep posted so we know you are doing ok.

kellylynn

Thanks for the reply Kellylynn,

He is very OLD school and living in the past when it comes to autoimmune problems. I remembering reading years back that doctors would think Fibro, Lupus, Raynaud's was psychological and would just treat woman like they were making it up. I guess he came from this way of thinking. Most of his patients looked like very elderly people that probably follow him like a sheep.

I'm no lamb! I can think and speak for myself. I have also read about many others being not believed by their doctors unless they saw the symptoms first hand. Nothing like being treated like a liar!

What I need is just one GOOD doctor who will run labs every six months and write my scripts plus actually read the chart note from the other rheumy.

I had the same reaction from a Rummie here in PEI, Canada and I had to go to Halifax, NS to find a Dr. that would examine me and right away he new what was wrong. I know what you mean by being made feel like a liar and that isn't the treatment we deserve.

You are on the right track to find a Dr. that will do your blood tests every 6 months and fill your perscriptions for you. Don't let any Dr. make you feel the way you felt. Somewhere there a Dr. who will really listen to you.

grammy 3

Thanks grammy3, I'm trying my best to move forward and do something productive with my thoughts since this rheumy visit has been on my mind way too much. It's just stressing me out and I need to expect more bad doc's in my future. It sicken's me to have to think that way but it seems there are many less then desirable physicians in not only America, but other countries as well. Why do people become physicians?

I don't think for the reasons I used to look up to them with. A different breed, but I'm finding out the doctors that have graduated in the last 20 years are bound to be a step above compared to the old school doc's. With autoimmune, you need someone more human, open minded. These younger doc's are sharper and haven't learned the mistakes of the past. They are familiar in autoimmune conditions 'know' Fibro, Lupus, Sjogren's, Raynaud's etc are indeed medical conditions. Why are so many of us coming up with autoimmune?