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09/29/2010 07:30 AM

Swollen gland directly behind left ear lobe. Hurts(page 2)

ncgirl
ncgirl  
Posts: 969
Member

mizu, do you make your own little rice bags and if yes with just plain old white rice or what? Just curious....

I had lots of procedures in June (all in one week) and I took over one of my daughter's t-shirts and held it and cried on it all the time too. Kind of like a security blanket or maybe a good luck token or something. I wouldn't let them take it from me during my series of CT's even so I completely understand how this would make you feel better.

I have a set of tests set up for next week that they want to do in the hospital and completely under anesthesia. The Dr. is repeating an upper Endoscopy that was just done in June and doing a colonoscopy... Lots of biopsies with the tests too.

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09/29/2010 12:01 PM
Mizuiro
Mizuiro  
Posts: 726
Member

Yes I do. I just get a big bag of cheap white rice and use. Then the easiest I've found is to use a clean tube sock and just tie the end shut once it's filled. It's washable that way which is always good.

Ii hope it all goes well for you. I had and upper endoscopy and colonoscopy a couple years ago and really didn't have a good experience. That's just because I have problems wth some drugs though like anethesia.

I've had six picc lines though and my fiance has never been there when I was getting one in for one reason or another. I keep hoping I can hold out for the next one when he can be here. He's just kind of this calm steady rock and helps me feel better when I'm getting burnt out on all this medical stuff, which is most of the time. Sorry, he's in Iraq and if you can't tell I'm missing him.


09/29/2010 12:23 PM
charlamar
charlamar  
Posts: 12
Member

Sending big hugs your way! I am soooo sorry that you have the pain in your throat. This one of the big symptoms that first made me realize something was wrong...probably around 5 years ago. It is a daily irritation for me...some days it is worse than others. I have been to so many doctors about it and they will tell me that my parotid is swollen and I have fluid behind my ear. I have lost a lot of the hearing in my right ear due to the fluid...after dealing with it for so long it does not bother me like it used to. There are times when it feels like the right side of my neck, face, sinus, and eye are in a clamp...almost feels claustrophobic. For the first couple of years I was terrified, especially when it would get really bad...my cheek would visibly swell and right side of throat would turn fiery reddish/purple. I would run to my doctor and she would give me antibiotics, but they did not always help...time works best for me. My doctor would always tell me to chew on lemons...haha...I don't know what her theory behind that advice was since many times my salivary gland would not even react. There are times when I can eat something that is not acidic or sour and my gland feels like it gets incredibly tight, stays contracted for the rest of the day...but when it feels looser, the pain, almost like an infection-type pain, will start and there are clicks in my ear and throat when I swallow. Sometimes I feel like there is something always going wrong with my body and it is frustrating...I cry occasionally as well, but I do not always have the tears to spare and my throat and eyes ache after crying...so crying just make my symptoms worse.

10/02/2010 06:48 AM
ncgirl
ncgirl  
Posts: 969
Member

Charlamar, I am not glad that you had/have sore throats or throat pain but at least now I don't feel so alone in with the whole throat/ear/pain/clicking thing. It drove me absolutely crazy one day. When the swelling goes down (like it did on que the morning of my Dr.'s appt.) it just feels - like you describe, tender and like an infection type of pain. (((HUGS))) back at you. Sjogren's is not fun!

10/02/2010 04:40 PM
charlamar
charlamar  
Posts: 12
Member

ncgirl,

My aches and pains seem to know when I am going to the doctor. Rarely do I have a day when I have little misery in that area, but I know that the morning that I have an appointment, I wake up feeling pretty good. I did have one doctor that showed me how to massage an area on the side of my throat, which helps some of the fluid build-up. It makes me gag when I do it but it works sometimes and lets me scratch it at a different angle...lol.


10/25/2010 09:33 AM
Lilyelizabeth1
 
Posts: 28
Member

I just posted as a newcomer, and also have left lower jaw pain. The rheumatologist said I have a swollen submandibular saliva gland. Sometimes the saliva seems to rush for a few seconds, the pain can be in the earlobe area. Have asked in my "personal story" post what kind of specialist would treat saliva gland problems? The rheumatologist didn't offer anything by way of treatment or referral.

Does anybody know where to take this issue? Thanks!


10/25/2010 05:40 PM
ineedsupport2
 
Posts: 22
Member

hi Lily, I posted as a newcomber today also. I would suggest you see a Ear, nose throat (ENT) specialist. I am supposed to have a very good Rheunotologist, but he really doesn't seem to understand my symptoms, just take the plaquinel. It was helping. I have Trigeminal Neuralgia, a nerve disorder, and my mouth always hurts. Right now, I feel like I have an infection in my mouth, never had swelling in roof of mouth till now. I am told that it takes 7 years for Sjorgens to show up and many times it causes TN. So I see a neurologist for that. My ENT helped with sinusitis and clogged ear, and they can help you with the glands. I am having dry nouth lately and will be going to see him. Keep trying until you can find someone to help you. It is very hard. I wish you the best!!
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