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Shingles every two weeks



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07/02/2008 10:00
JennRS
Posts: 1
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Hi there. I don't know if there is any help or suggestions out there for me but I'm overwhelmed. I have been getting shingles every two months for the last 20 months. Now I'm getting them every two weeks. I'm only 41 so the doctor does not want me to have the vaccine or be on meds every day. I was told even if I wanted the vaccine I had to be shingles free for 6 months first and the daily meds run me $400 a month and I have no insurance. I have a neuro-muscular disorder similiar to Muscular Dystrophy called Charcot-Marie-Tooth Disorder (CMT). CMT affects my nerves making me more susceptible to Shingles. I used to get them very mildly once a year but since my husband lost his job 2 years ago every time I get the slightest bit stressed (even a disagreement with my hubby) I break out.

My shingles are so bad that I throw up and get dizzy and blurry vision. The break out is always on my behind or the back of my leg. I get so sick that I was told that my shingles are on my organs and this can be dangerous. The doctor wrote me a prescription that I can fill anytime I feel them coming on but I can't afford it. I'm on Social Security Disability and Medicare due to my disability and I have no prescription coverage.

Any help or suggestions? anyone else get these as much as me?

Thanks in advance

Jenn

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09/13/2008 22:36
Stormy22
Posts: 1
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Hi There....

I am looking for sme help with shingles...I get them every 5-6 weeks....my Dr. does not know why I keep getting them. He says its stress but everybody is stressed now days.....and like you, all I have to do is a little disagreement with anyone and ppl come to me with there problems...my kids finnally stoped telling me anything because they don't want to be stressing me oout so i stress when they don't tell me tooo...I am a worry wort I guess but not just that bothers me, everything bills wondering where and when I can pay the bills...On a fixed income SSD too....I know it is not easy. My Dr. gives me samples as much as he can of the veltrex. Can you get your DR. to help you in that way??...I hope so...they are like 75.00 for 10 days suply.....plus I am on coumindin for 2 plastic heart valves...imphizima...OA big time..I am a mess with all my orgains...

What do you do for easying the pian.?I take lortab pain killers they do nothing for me...I just keep that calamine lotion sock it right to me...them by late tonight i will hurt so much i get up and put benidryl oinment on they....it helps easy up a little...i do not do much moving around exspecially in bed. i have to be careful not to break them...but they do and thats the way it is...listen I have to try to get some rest...so will TTYL...OK...GOD BLESS AND I WILL BE PRAYING FOR YOU...EXCUSS THE CAPS....I AM NOT SHOUTING JUST HIT WRONG KEYS AND I can see it and READ, SEE IT BETTER TOOO....GOOD NIGHT JEN..

I am 64 yrs old and now tonight I broke out with them on my rear again and that is where they have been for the past 2 yrs...they do go from one sice to the other I don't know why but they do...It started out on my forhead a couple of yrs ago . Started for my eyes Dr. put me on nerve pills and veltrex for them ....I just keep getting them over and over and it is so painful and I put calamine lotion on to get them to dry up and they are so uncomfortable. Well I better send this as it is my first attenpt to join a group on computer and I am afraid i won;t be on it a whole lot and group might get upset that I am not here very often. Right now I need to get to bed and see If I can get some rest haha...Anyone who has ever had them

you all know what its like.I am sending this out and will be around if these things keep me up all night...gonna take a pain pill and my sleeping pill and call it a night. I hope to get to meet others like me that can understand them all the time....good Night..TTYAL....i got this all messed up sorry..hope you can figure out what i am talking about lol...G/N

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