Home

Scheuermann's Disease Support Group Scheuermann's Disease
Online Support Group
A community of patients, family members and friends dedicated to dealing with Scheuermann's Disease, together.
    Join This Group    
    Ask a Question    
      Tell a Friend      
 
 

Why am I in so much pain?!



Related Discussions:

<< Start < Prev 1 2 Next > End >>
04/18/2008 14:14
sjschisler
Posts: 4
New Member

Send a PM
Give a Hug
Hi im new to this website! I always have pain in my mid upper back and sometimes its dull, burning pain and other times its a sharp pain and spasms..does anyone else have pain like this?
Post Reply   Quote


04/18/2008 21:59
cinderella
Lavender Ribbon
Posts: 78
Group Leader

Send a PM
Give a Hug
[b]yes!!!! i have scheuermann's disease and constantly suffer the same symptoms you have described, i too liv e in contstant pain. please feel free to pm me any time youd like
cinderella
Post Reply   Quote


04/19/2008 00:28
sjschisler
Posts: 4
New Member

Send a PM
Give a Hug
how long have you had the disease???

Post Reply   Quote


04/20/2008 21:30
dominiom
Posts: 3
New Member

Send a PM
Give a Hug
Hi! I was diagnosed with Scheuermann's disease about 2 weeks ago at the age of 31. I am so frustrated I want to cry. I'd been told all my life that it was all "in my head" because I also suffer from bipolar disorder. I found it difficult for people to believe that the pain was real and that I wasn't just complaining. Now I find out that I was right to have continued my complaints for so long, but it still doesn't ease my frustration at even my family who is still ridiculing me and telling me that Scheuermann's disease is "not that big of a deal". I'm also finding it difficult to find real data on the subject. What kind of medications would work best, who can I go to just to cry on their shoulder and have them understand the REAL pain it causes us. Anyway tell me about your symptoms and medications that you have tried and have had please.

Popular posts by dominiom
    minority
Post Reply   Quote


04/21/2008 16:52
sjschisler
Posts: 4
New Member

Send a PM
Give a Hug
I take Naproxen and it works really well! It doesn't make you drowsy or dizzy or anything like that. They have tried to give me muscle relaxers for when I have spasms but they don't really work and they aren't good for you. I have lots of problems with my back and a lot of different types of pain, so I'm not sure which one is cause of the scheuremann's disease. Sometimes it feels like burning in my mid-upper back, sometimes its a really sharp pain, sometimes it just aches and sometimes I have spasms. Have your family read this so they can understand that this disease IS a big deal!!! It is had made my life very difficult and no one understands the pain, not even the doctors. So my advice is to try to get a prescription for Naproxen. I wish I could tell you that there is a way to completely get rid of the pain but I'm still searching for it. Good Luck!
Post Reply   Quote


04/21/2008 19:59
cinderella
Lavender Ribbon
Posts: 78
Group Leader

Send a PM
Give a Hug
[size=4][/size]

hi! its unfortunate that you have scheuermann's but im greatful for finding you...xxx i totally understand your frustration about this disease i 1had a physiotherapist tell me the other day that it isnt that big of a deal and i burst into tears, this pain absolutely rules my life and i find that stress increases the pain dramatically so no 1 try not to stress out too much, the pain meds i am on are called panadeine forte, oxycontin, endep,(this is an antidepressant but it is suppose to help with the pain as well as the depression,) baclofen an anti spasmodic and also i have sleeping tablets when i really need them, i also use anti inflammatories such as mobic and bruffen. i hope this helps you, but we are still learning i was only diagnosed a couple of months ago, have had problems for years though.

cinderella
Post Reply   Quote


04/21/2008 20:03
cinderella
Lavender Ribbon
Posts: 78
Group Leader

Send a PM
Give a Hug
[size=4][/size]

hi sorry to hear your plight but pleased that i am not alone. i was only diagnosed a couple of months ago but have had problems for years. i would like to continue to communicate with other scheuermann's sufferers, and i would also like to find more info on this disease. i have had truoble finding data as well. good luck i hope to hear from you again soon xxx

cinderella


Post Reply   Quote


05/01/2008 14:13
dominiom
Posts: 3
New Member

Send a PM
Give a Hug
Well it's been a few days and I'm not much more informed than before. I have noticed that even doctors tell me "oh my son has that" like your son is exactly to a t having the exact stuff go on with him as well as with me. I'm sure he meant well, but not everybody is the same. I'm 31 now, not a child. So my disease is a heck of alot further along and progressed than your @#%^ kid. Or am I wrong? Should I go and look for another doctor who will evaluate u as a single individual, or is he right and it's not a big deal. I mean his kid might not be that bad right. I've seen alot of people at different degrees with this. The worst was 19 and already the disease had bed-ridden her. So in my head it progresses differently with each individual yet here he is telling me that just cuz he sees it everyday at home that everybody is going to be just like that? I'm so sick of not having a doctor that I can trust. Things like this make me want to curl up and not say a word. Like if I complained to him would he get defensive because of his kid. Would he treat me worse because of this. I just don't know. Then at the same time it's nice having a doc who knows first hand what this does and can do. Still I don't want to be compared to his kid. AARRGH! What do you guys think?

Popular posts by dominiom
    minority
Post Reply   Quote


05/01/2008 17:40
sjschisler
Posts: 4
New Member

Send a PM
Give a Hug
My parents are military so i go to the military hospital for free and those doctors seem like they dont know anything. I had to go to Texas to actually get diagnosed with this so I kinda know your frustrations with doctors. If you can afford to go to a different doctor that wont be biased then I would do it. I would love to go see a different doctor but I cant afford it. I just did a research project on this disease and found that there are different symptoms for every case and a lot of other things I didn't know about. So try doing your own research on it instead of expecting your doctor to know everything about.
Post Reply   Quote


05/01/2008 19:36
cinderella
Lavender Ribbon
Posts: 78
Group Leader

Send a PM
Give a Hug
hi there, i am happy (for me) to say it but i have finally found drs who do care, they dont know much about scheuermann's but are trying to understand. i've been going to the same medical centre for years,i beleive you should trust your instincts regarding medical advice because you are placing your life in the hands of the dr you see, if your not comfortable with the attitude find a different dr. i do hope you sort something out soon i know how painful life is and for what it's worth im nearly bed ridden i feel completely useless most of the time i am lucky that my husband is so supportive and the kids help alot as well. i have a lot to be thankful for.. i guess i just hope you all find great help because it can make all the difference..
cinderella
Post Reply   Quote


<< Start < Prev 1 2 Next > End >>

Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read More.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved