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01/02/2011 02:53 PM

surgery for scheuermann's kyphosis(page 4)

Dirk
Dirk  
Posts: 337
Member

it all jus depends on if ya wanna travel irlindy...you can contact any doc from your location...jus have their phone number in hand...or ya could write them an email if ya have there email address...you can contact my surgeon...on the bottom of my profile i have my doc's info all laid out for everyone to view jus click the link (my doc)...and the price is varied but if you have insurance they can figure it all out for you in small monthly payments after ur deductible....and the hospital i am goin thru with my surgeon, that hospital donates 600 million dollars to patients who can not afford their medial bills
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01/02/2011 02:55 PM
irlindy
 
Posts: 5
New Member

Thanks Smile

01/02/2011 02:57 PM
Dirk
Dirk  
Posts: 337
Member

Yea no problem that's what we are all here for...hang in there

05/28/2012 04:13 PM
Link702
Posts: 8
New Member

Hello, I know this is an old topic but I was hoping to get some help. When I was 18 I woke up one day with intense back pain. I was having muscle spasms and even if I sneezed it would feel like my spine was being hit with a hammer. I went to see a chiropractor and he said that I had a curve but back then it wasn't that noticeable. About 2 years ago I found out I had osteoporosis which is kinda weird for someone my age.

My curve got worse and i started to get wedges which dropped me like 2 inches in height. I saw a surgeon at the University of Michigan. He did x-rays and a CT scan. He recommended that I do surgery to reduce the pain and get my spine back int the correct shape. I said I'd do it because I'm really tired of being in pain, it feels like there is a screw driver in my back all the time. Since the curve is bad but not extreme I guess the operation will be a little easier than people who have a serious curve. What should I expect after the surgery? When will I be able to start walking again?

Thank You


05/28/2012 04:47 PM
Jessicamp
Jessicamp  
Posts: 16
New Member

Oh God, you're experience sounds awful. I had a 93 percent curve at 16, and had a surgery done. The only went through my back, doing 2 bone graphs, 28 screws, and 2 rods. They were only supposed to have fixed it about half way, but apparently my spine was 'flexable' (how a spine is flexable, I will never know). I was lucky that was my spine started to curve at around 12, my mother reconized the curving as scheuermanns, as she has a mild-moderate case, and a few of my family has a very mild case. She knew not to tell me to sit up staright, as she had always been told that. My dad though thought we were exageratting. I am very lucky to have my mother to help me with all this, espcially the recovery. I had to get up to move after my surgery, to walk around a little and streghthen myself. Anyway, after my surgery I was almost back to a normal spine. But I ended up getting a bad infection last September that almost killed me. We think it had been in my body for over a year. They took all the metal out, saying that the fusion was solid and that I would not curve again. Well, I did curve again. I don't know the percent, but it is not as bad as before the first surgery. But my neck is forward and it causes pain all the time. My surgon has no idea how I could have possibly curved again, so he is reffering me to someone else. Specialist do take a long time to get back to you though, so much demand I guess. I don't have any outside family helping, but they don't yell at me to do better either. I think your family better get a reality check, because with this desease, sitting up straight is NOT an option and pain is bad in most cases. I can't beleive what you've had to go through, and are still going through. No one should be treated like that and have all that surgery and pain and...bad stuff happen. I don't know how you deal with it, but I can say one thing; you must be one of the strongest people I have ever met (well, read about anyway). Keep being strong.

05/28/2012 05:01 PM
Jessicamp
Jessicamp  
Posts: 16
New Member

Link702

What to expect after surgery; not getting the best sleep for a bit after (pain can make it difficult). Having to get the bandages changed everyday, and having discharge coming out of the insision. You will most likely need help with everything at first (food, medication, walking) but then just with things like chores and stuff. I honestly don't know how it is when osteoporosis caused it, but I can tell you that after the surgery there will be lots of pain, but that it will get better to the point that it gets better then before the surgery.


05/28/2012 05:42 PM
ml189837
ml189837  
Posts: 297
Member

I had surgery almost 2 years ago. My back is much straighter but I am quickly curving above the fusion making my spine and especially my neck appear like the kyphosis has crept up my back. I have much less pain but now i have issues with my neck. I was back to work full time as a receptionist about 6 weeks out from surgery. I think I rushed things to much though which caused stress on my neck causing it to shift much more quickly. I thought my spine would stay straight forever after surgery but I was wrong. I never expected it to curve and change this quickly.

05/29/2012 03:05 AM
cmitche
Posts: 1
New Member

Hello, I am happy I found this group. I have experienced severe back pain for a couple of years. I had moderate to mild pain off and on before then. Two years ago is when I first went to the doctor for the pain. I didn't feel like my doctor took me serious. She did an xray and found digenerative discs and kyphosis. She said my kyphosis is significant and will get worse over time. I have had problems with posture since I was a child. I can't straighten my back. People have called me hunchback. It is very hurtful and embarrasing to be called that. I can't cook dinner all the way through because I can't stand that long w/o severe pain. My eldest daughter usually has to take over. I'm a single parent. I got a MRI on Friday and go to a spine specialist. I found information on Scheuermanns Kyphosis and it sounds like what I might have. I also get pain in my shoulders, arms, legs, and knees. My severe pain is where my hump is on my back. I'm nervous to go to the specialst. I don't want to be dismissed again. My pain is so unbearable much of the time.

05/29/2012 06:11 AM
Link702
Posts: 8
New Member

Thank you for the help. When I run or cough a lot I get pain in my rib cage, feels like it's being squeezed. Is that kyphosis related or is that a separate issue? My mid back is where the pain always is but I can move to other places in my back depending on what I'm doing. After the surgery will the pain be in my back or will it be from the cut the made to go inside me?

@Cmitche. If you have kyphosis then you would be working your muscles too hard to stand up straight. It should be natural but for people like us it's not. I took some physical therapy a month ago and they said to to walk a short distance while maintaining correct posture. When I try to do this I go back to slouching because that's what I'm used to. Your condition sounds very bad. If you have to do surgery then do it but before that I recommend light back and muscle exercises. I do a series of exercises every morning to loosen the muscles. The pain in the spine is still there but at least I'm not so tight. I wish I had done something about the kyphosis in the first year I think a brace and physical therapy and it might have been straight again but after 9 years it basically all ready did the damage.


05/30/2012 07:23 AM
ml189837
ml189837  
Posts: 297
Member

I have no idea if the pain from running or coughing could be kyphosis related.Before surgery I got a lot of pain from the apex of my curve and in the upper part of my lumbar spine. It made it very hard to stand for long periods of time due to the back pain. I no longer have any back pain in the section I am fused from which is T3-L2. I honestly dont really have much pain in general however what is really annoying is that the curve seems to have pushed up into my neck and now my neck is starting to slouch and curve over the fusion. I guess if its not one issue its always going be to be another.
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