Hi Michael - I'm so sorry to hear about your CRPS2, on top of chronic GVHD (for those who are unfamiliar, this is "graft vs. host disease" which sometimes occurs after a bone marrow transplant where the transplanted material attacks the person's body). The good news is that you're still well within the timeframe that you could achieve a cure. Are you seeing a pain management physician? If not, I recommend you waste no time in finding one who understands CRPS. I have no first-hand knowledge of GVHD, but I know that it's due to an immune response, which has also been implicated in the etiology of CRPS. This could complicate things, but also may have no effect, since the reasons are so different between the two diseases. I assume you're under the care of a physician familiar with GVHD, since there are so many treatment options. I suffered for 14 years with CRPS2, then spontaneously went into remission 2.5 years ago, so don't stop hoping and believing that you can conquer this! Howard T. Howard Black, Ph.D. - Medicinal Chemist, Jazz Guitarist, Webmaster, RSD patient in remission.
RSD INFORMATION SITE: http://thblack.com/links/RSD/ (completely non-profit).
IMPORTANT: Although I have a Ph.D. in medicinal chemistry, I am not a medical doctor, and nothing I write should be construed as medical advice. That's for your own physician. |
