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"Sleep disorder." (Curity)

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grandmasylvia"MDJ has been "a soft place to fall" for me as Dr Phil says. I have this very painful rare disease Dercum's Disease and take comfort in finding others here who share their knowledge and compassion. Many
members have helped me just by understanding my anguish and validating
my pain. We are working together to encourage research toward a cure.
" (grandmasylvia)

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02/21/2012 07:55 PM
kvnj
kvnj
 
Posts: 3758
Group Leader

Karen

**** I am not a doctor or medical professional. You should consult a physician in all matters relating to your health, and particularly in respect to any symptoms that may require diagnosis or medical attention.****
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02/21/2012 10:41 PM  Top
bits
bits
 
Posts: 10319
VIP Member

My gosh! I have saved this because there are so many products that make life easier. I certainly intend to buy as much as I can.

Again, thanks karen.

Hugs dear friend

When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
bits

02/22/2012 02:14 AM  Top
JaynieBeth
JaynieBeth
 
Posts: 385
Member

For toe & finger nails, I have been going to get a mani/pedi for years. Lately, though, I can't afford it. I have nerve damage in my hands due to botched carpal tunnel surgery many years ago, and it makes my fingernails grow in strange formations and are very, very thin. Lately, I've been just clipping them off very short before they break (less than 1/8 inch) and use a nail file to get rid of chipped edges. Toenails are a big problem, though. I still have good use of my hands, but my back won't cooperate in getting to them. I have a garden tub in my bathroom, so I sit on that and put my feet across it and cut them from there.

Carrying a purse was a problem, too. I now have a very lightweight small Vera Bradley backpack that carries enough stuff for a day out. I use a matching wristlet for a wallet - it has a zipper pocket that fits my cell phone perfectly. But I did have to go through my purse and get rid of a lot of things.

I used my wheelchair (without the foot rests) in the kitchen so I don't have to be on my feet (standing is extremely painful to me). I also have a padded chair in the laundry room so I can transfer clothes from washer to dryer. I also deliberately bought front-loading machines so there's no bending over.

There are two neat little gadgets to help with getting out of a vehicle. One is a strap that attaches around the top of the window to the body of the car. I don't like that one very much, so I got the other - It's just a little hook with a handle that fits into the square loop that the door latch uses. Made a BIG difference in my being able to get out and about.

There are so many ways to adapt certain activities to your level of disability. It just takes a little thought and ingenuity. It's not about what you CAN'T do - it's about what you CAN do.

JaynieBeth
----------
Diagnosed with Rheumatoid Arthritis in 2007.
Diagnosed with Fibromyalgia in 1999.
Spinal injury in 2003.

02/22/2012 07:53 AM  Top
bearlie
bearlie
 
Posts: 1509
VIP Member

JaynieBeth, your whole post was good but that last sentence was spot on. Thanks for reminding us to look at what we can do.
Laura
We are now one day closer to the cure!

Previous discussions I participated in:
DR JEKYLL AND MRS HYDE
horrible couple of days!
SO TIRED

02/22/2012 07:57 AM  Top
claphappy
claphappy
 
Posts: 3391
VIP Member

I bookmarked it, Thanks CLAP
Charlotte CLAP are my initials.

Therefore do not loose heart, though outwardly we are waisting away Yet inwardly we are being renewed day by day 2 Corinthians 4:16

"Teach me the glory of my cross; teach me the value of my thorn. Show me that I have climbed to Thee by the path of pain. Show me that my tears have made my rainbows." ~Streams in the Desert
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