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Rheumatoid ForumsGeneral & SupportCautiously optimistic.....
05/26/2009 04:27 PM
cella
cella
 
Posts: 976
Member

Yippee!...I am less miserable then yesterday..Okay, let me explain...I have had the worst month possible with almost constant flaring...meds...seemed to stop working...talked to the Dr. office everyday trying to find a way out of this disabling disease...got sick with sinus infection, sore throat , cough...then could not take some of my meds...basically what could go wrong went way.....wrong!...But today,is my last burst dose of prednisone and I am actually not fatigued....still have some pain and swelling but not much....and I go for my next infusion this Friday...so maybe I will finally get this RA under control...Smile

I may not be as good as new, but, today I was able to function somewhat better then I could in the past month...I can walk without limping, no wrap on my knees..no wrap on my feet...(still have the wrist splint on)..my neck, and low back are less painful...

I am so happy not to throb!...I am keeping my fingers crossed...hopefully, I will be okay, until I get my infusion....

Maybe, this time, my RA will be under control???..

I have been down the prednisone road before, and I know the let down once you stop it...so I guess I am praying that the infusion will take over where the prednisone left off...Just wanted to share my happy day with everyone...and I know as most of you do that whether it is minutes, hours, or days, the time we get relief from RA...gives us a boost and makes us remember how it used to be and maybe how it might be with proper treatment....

I hope everyone is doing better, and hanging in there...and hope this post doesnt make it seem like I am bragging, because I know that many of you are hurting badly...I wish the best for all of you...just wanted to share my good day with all of you...Tongue

Reply

05/26/2009 04:47 PM  Top
RachelElizabeth
RachelElizabeth
 
Posts: 106
Member

Thats awsome. Hopefully you keep on getting and feeling better.

05/26/2009 04:57 PM  Top
kvnj
kvnj
 
Posts: 3756
Group Leader

Marcella , I'm doing the happy dance for you!!! I'm glad that you at least got some relief from your pain, and I too am praying that your infusion will pick up where the prednisone left off. May you have many many more days of less pain. Kissing

karen

Karen

**** I am not a doctor or medical professional. You should consult a physician in all matters relating to your health, and particularly in respect to any symptoms that may require diagnosis or medical attention.****

05/26/2009 06:19 PM  Top
Cata
Cata
 
Posts: 1899
Group Leader

WONDERFUL!!! Enjoy the optimism, never mind tomorrow Smile tomorrow you will deal with whatever tomorrow brings. Now just enjoy!!! Sideways
Cata
-----
The information you find in this website should not replace medical advise. I am happy to share my experience but remember I am just a patient like you.

05/26/2009 11:25 PM  Top
cella
cella
 
Posts: 976
Member

Thank you all that have responded to my Happy Day!

Its very late here...and I am awake...was afraid to go to sleep...thinking about what it might feel like waking up...?...pain or no pain?...The next couple of days should be very telling...I will keep everyone updated.. better take a chance and get some shut eye..

Good Night!...and thanks for sharing my good day...


05/27/2009 01:07 AM  Top
gettingoldsucks
gettingoldsucks
 
Posts: 3234
Senior Member

Cella, that's great that yo had a good day. I hope you went to sleep and woke up the same way. I'v been there many months at a time afraid to sleep and it's not fun. Two more days for your infusion. Will keep fingers crossed for you that it continues working.

hugs, Donna

Donna
I am not a medical professional. All advice I give is from my own research and personal experience. Please seek medical advice before applying any advice I give.

05/27/2009 01:11 AM  Top
Molly5
Molly5
 
Posts: 1119
Senior Member

Cella, It never sounds like bragging when someone feels better.Smile We all can feel your joy. Anything that is helping you right now might help us in the future. It gives hope!I'm awake in the middle of the night...trying not to cry...but the tears keep coming. I have to stop or my eyes will be all puffy for work tomorrow. I will be fine ...just having one of those weepy moments. Thinking about the future..Thinking about my kids.I have a rash on my arms from the new meds I'm on. (Leflunomide) I had to take 5 a day for three days plus the 5 Methotrexate I took Monday. This will be the first day just on my regular meds. I stopped the Predizone. I asked to get off of it. The doctor told me it was up to me. Even though I'm feeling sad right now, I still feel better. I think I just need to talk right now. I'm so glad you are all out there right now...Even if you are sleeping. Take care everyone, Molly (Kim)

05/27/2009 01:17 AM  Top
Molly5
Molly5
 
Posts: 1119
Senior Member

Donna...What are you doing up? Its 3:15 A.M. here...I need to try to go back to bed. Molly (Kim)

05/27/2009 01:31 AM  Top
gettingoldsucks
gettingoldsucks
 
Posts: 3234
Senior Member

Molly, sorry you're feeling bad. What's wrong? It's 4am here. Can't sleep. I haven't felt good the last 2 days and yesterday was really bad. Slept most of the day and now back up in pain and have headache. It's not alot of joint pain this time as it is muscular thru arms, legs and upper back under ribs is really bad for 2 days now. Hurts to breathe. Just feeling really out of whack. it's always something with us, ya know? I was so miserable thru the whole winter waiting for warmer weather and now that it's here all i do is still sleep. i hate this.
Donna
I am not a medical professional. All advice I give is from my own research and personal experience. Please seek medical advice before applying any advice I give.

05/27/2009 05:35 AM  Top
Cyrusray
 
Posts: 746
Member

Molly........I can't believe you are still working....you MUST get

some downtime...let the stress of a work day leave the body and mind.

If I had a job to go to I would also be on a GIANT pack of meds.

GOS....You are not working now, but I can imagine you don't lie back

and do NOTHING either.....will hanging out in the pool help your

body?? It is warm here, and my neighbor's pool is so refreshing.

I finally got relief from the symptoms you mentioned by going to

acupuncture and massage....treat yourself kindly today.

BIG OLE HUGS from hot TEXAS

Reply

Health Topics: Leflunomide, Methotrexate, Optimism
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