Rheumatoid Arthritis Support Group

Missed you all. Comp crashed and had to take it in to get fixed. Stupid son and his music programs and he still won't admit it was that cuz he doesn't want to give it up but the store removed the program. He's pissed. LOL.

Anyway, I've been still feeling crappy, fatigued like crazy, taking 4/5 hour naps during days, and the screamin meemies have been visiting at night again. Had eye exam today and have eyeball muscle inflammation from arthritis and early neuritis. Glasses will not help and MD needs to treat it.

Now Rhuemy has said Im not far enough along to have it effect my eyes or jaws. The eye pain is so bad it makes me puke and the jaw pain is every single day since it started in Nov. Does he know what he's doing?

And the feet. Ughhhh... the last week, walking sucks. The muscles in the bottom are doing that pulling thing and they just plain out hurt.

Hope you've all been good. I'm going to bed.

Will catch up with other posts later.

Hugs to all

Donna

(((Donna))), I so sorry you're feeling so poorly. Do you have an appointment with your MD yet for the eye issue?? I must not be very knowledgeable regarding the capabilities of optometrists...but, I would have thought they could treat ANYTHING going on with one's eyes!! *scratching head*....LOL.

My mom hasn't had any problems with her eyes yet but she has been told she has RA in her jaws. I hope you rest well tonight! Sending HUGE hugs!

Nope, no appt yet. I'm sure it's the same meds i need for the RA and that's on hold till the liver results so I'm popping painkillers and Prednisone. Rheumy doesn't know results yet. he has made these statements in the past whenever I bring up the eye and jaw pain. Just sorta blows me off. Between the biopsy, results, getting into the Rheumy, and starting a med I'm probably looking at close to 5 to 7 weeks for treatment. I've waited 3 yrs, 2 more months won't kill me i guess. just impatient to start feeling better and quit waking up with pain everywhere.

Donna, good to hear from you (missed you) but sorry things are still hard. I have been dxed with RA for 19 months and my rheumy said my jaw pain IS from RA. My ortho doc said one of the last places RA will affect me is my back. Remember the progression of RA can be fast or slow. I think my mine is going fast. I wish with all my heart there would be a pain drug that would actually take away ALL the pain. Even if I was only allowed to take it for a few days a week. Sigh. You know, most of us are taking meds for: control of disease, pain meds for management,steriods for inflamation, all kinds of supplements and vitamins for conditions such as dangerously low levels of VitB 12,6, iron, D,etc., constipation meds, anti diarheal meds, sleeping meds, anxiety meds, depression meds, many other meds for other health issues,etc, etc, etc,. Now my point to all this is...Why do we not have a med for energy? Hmmm. I really wonder. Hugs

Hi Vickie, how you been feeling? What a pair we make. it's 3am and my knees and ankles have had me up for about an hour now. they aren't screaming quite as bad but still to much to lay back down yet. Yep, the fatigue still gets to me as to how bad it can get. On week 2 of it and it's not any better. I get up every day and it's like I never slept and then by 11 or noon I nap until 4 or 5pm and then right back in bed by 8 or 9. What happens when we sleep that the pain is always worse when we wake too? My eyes are driving me batty too the last week on top of the pain. They are really dry and itchy. Eye doc gave me day and night drops for this but it only is helping for a few minutes at a time.

The GI was supposed to call me yesterday to squeeze me in and didn't, I'll call today and then call Rheumy. I can't do this for 2 months waiting. I'm a baby, he has to do something. I just spent 10 months completely miserable and cannot go back to it and am only a breath away.

Hey sweetie, What happens to cause more pain when we sleep is our joints are still and become stiffer. I can relly tell a diference using my heating matress. I quess because it penetrates to the joints and muscles helping them. Do you have Sig???, ? It affects the eyes and mouth by drying them out terribly. It is an autoimmune disease that alot of folks with RA, Lupus, etc get. And it can come on by itself. I forget what kind of treatment is used, but there is a treatment. I am praying for you daily and am hoping to hear good news before long. Hang on dear...I believe help is on the way. Hugs

Sjogrens? Neuro mentioned it last week but didn't say I had it. I understand the stiffening part in the joints but what causes the massive burning that wakes us up? Is that when the joints are actually being eaten? Feels like it. Munch..munch.

You kow what donna? I have described the pain as if I am being eaten alive. Yes, I think that is when the disease is very active and we are really feeling what is happening. I know that sounds scary...and is. However, massive burning can also be related to nerve problems. I have periphrial neuropathy and it causes massive burning. Hugs

I have neuropathy too. This burning is different when it wakes me. it is definitely directly in the joints. Takes my breath away. I know I'm in bad flare when this is happening. Atleast it's only hitting randon joints right now, last summer it was all joints all at once every time I fell asleep. I wanted to off myself after so many weeks of that. Okay, thanks for sitting up with me vickie, I'm gonna try to get some more sleep if it will come. you try too.

Hugs

I know what you mean. But I had to ask the question about neuropothy. Yes, I agree this pain is different. And yes, I beleive at these times we can feel the destruction and damage happening. Hugs