Rheumatoid Arthritis Support Group

Saw PC doc this morning. The giant blister did burst a few days ago and is somewhat painful just from being raw.

Doc said she never heard of a tick bite causing a giant blister.

It is infected. Thought so since it has a circle of red around it.

I have meds for it and am to watch for redness increasing or swelling.

She took a look at my burnt back and no more heating pad for awhile. I am going to miss my heating pad very much.

The RAD pain built so quickly while in doc's office I wanted to scream. Anytime I have to sit in regular chairs past 30 mins pain grabs hold.

My visit was about an hour and pain was becoming unbearable.

I tried standing/walking, mostly had to bend over on exam table which after a few mins caused elbows/shoulders to throb.

I didn't have my pain meds with me so went to sit in truck(comfy seats) while doc finished up with Chuck. We go in together for 6 month check-ups.

He came out about 10 mins later and handed me a bottle of liquid hydrocodone (single dose) that doc gave him for me to take right then.

I can not express how thankful I was to have it. The pain was truly becoming unbearable.

Well, off to see uro in a few hours for last bladder instillation (#6). Praying urine is clear.

Hugs

ah what a rough day, glad your dr helped and hope everything turns out with the uro. I have always wanted to ask with the meds you take do they control the sed rate and crp? Good luck bits, hugs

Feel better soonest, eh??

Sorry visit was so painful! Crossing all 10 fingers and toes bladder instillation is not painful this time and that urine comes out clear

Feel better soon..glad doc was able to give you something,you are lucky she would do that

Take care &((( hugs )))

Libyana

I too sat to long with knees bent at Dr's office today, and during the 40 min. drive. Now I'm back to my recliner feet out. I know for me it's a matter of circulation or the lack of it. Hope you are better and what a wonderful Dr to give you some pain meds. I have to think it was Chuck who mentioned it? I pray you a good recovery from the blister, and good uro visit. Take care of your back. CLAP

Bits, praying for a head to toe healing for you..

It didn't work. The 6 bladder instillation treatments didn't work.

As I was lying on the table and nurse was asking about any symptoms she then told me my urine was full of bacteria.

I yelled out, "SH*T!!!"

I was very embarressed but it was just too much . I totally broke for a few mins.

Just got the news I have an infected "whatever" and now to top it off my bladder is not any better than beginning.

Plus I was still reeling from incrediable pain.

Right now I just want to stop everything. Just give up...

But that is just for now...it will pass and I will be ok...again.

Uro is waiting for culture to come back and believes I can wait on antibiotic till then since my bladder is full of a mixture of genemicin, steroids, linocain, and others.

My problems with antibiotics are complicated and they (all my docs) try very hard to keep me able to take the few left for me.

After 3 pain pills and pain liquid doc gave me I am much better in this area...not wanting to scream. But am very tired from body fighting so hard and long.

I will be getting the leg extensions for my hoveround very soon. I will use them once I get in docs offices while waiting.

I truly believe this will keep the severe pain at bay. It has to since it happens because of sitting in waiting room chairs with legs down.

I will also take a pain med 15-30 mins before ride there.

I wish I could say I was exaggerating. That I am making a mountain out of a molehill.

Oh, how I wish I was.

But, I am telling the stark brutal truth.

I would give almost anything to have my RA meds back again.

My docs are precious in the way they have promised me they would keep my suffering controled. My rheumy even cried with me.

I am thankful for that promise but I want treatment of this disease that is ravaging my body. I am vulnerable, I am a sitting duck, I grow sicker every single day and am helpless to fight it.

I once said RA is an elephant and to fight it we must use an elephant gun. Regular bullets just bounce off.

I feel like the elephant is trampling me because I have no defense against it. Hell, I can't even run from it.

Well, that's my vent for the moment. I am sure my attitude will be better tomorrow.

Tearful Hugs

Oh gosh, Bits, I'm sorry. You're just faced with more and more challenges.

I hope that your medical team is able to put their heads together, and figure out something to help you with your various ailments.

In the meantime, I'm just going to keep praying fervently for you to have relief from your symptoms , and for your medical team to be guided to find an answer for you.

**hugs**

Oh Bitsy... At this moment, my dear friend, i am holding your hand and being tearful next to you. It pains me to know the instilations didn't keep bacteria at bay. I am sorry beyond what words can say, that you are having so much going on, piling up. You are one of the strongest persons i have ever known, but anyone would feel like hiting a wall with all that has been going on lately for you... You deserve to be sad and angry. Allowing yourself that moment. Hell, we all are sad and angry this is happening to you.

As you say yourself, you will raise from this. You will shine again. In the meanwhile, we will all support you and accompany you in your suffering, and share some of the little light we may have. And pray hard, real hard, that one by one, each issue finds its answer and you get a much easier life.

Big, comforting hugs