MDJunction - People Helping People
 
Ask a Question
08/25/2011 11:10 AM

Memory Loss

progrmrgurl
progrmrgurl  
Posts: 649
Senior Member

I have noticed that for the last year and a half or so that I am having a hard time remembering things. I figured it had alot to do with pain and my inability to do things because of the pain. I thought that because I hurt so much and could barely get out of bed that was the reason I was forgetting things so much.

The last couple of months however I have been doing much better pain wise and have been trying really hard to get my regular normal life things back on track and in order. Trying to catch up.

I have noticed though that no matter how hard I try it's not getting any better, I'm have a really hard time even remembering what I was saying from one sentence to the next when I am talking to someone. I have to stop and try to figure out where I was trying to get to. Sometimes, someone will say something to me during a conversation that I know is wrong but find myself agreeing with them because at the moment I can't remember that what they were saying was incorrect. Sometimes it even takes me days to realize it.

I'm also feeling extremely confused. For instance, at work whenever I have alot of work I can easily figure out how to handle it all in a timely manner ... I have always had a mental process for handling everything but lately .. I stare at my computer confused, not knowing where to start or it takes me forever to figure out where I left off. I have to think for so long time and I find them just staring at me, waiting for me to finish what I was saying.

I thought it would get better but it seems to be getting worse and I am really starting to get concerned. Has anyone else had this problem in relation to RA?

I have to go see a neurologist about the crazy involuntary muscle movements I am having because they have gotten really bad and I'm wondering if I should mention the memory stuff or if I should wait to talk to my RA doc? I wonder if it's worse because of the enbrel? I don't know.

Thanks in advance for your input!

*hugs*

Linda

Reply

08/25/2011 11:15 AM
progrmrgurl
progrmrgurl  
Posts: 649
Senior Member

BTW - I have been writing lists and stuff to even help, and I've even been forgetting that I have already written a list and this week I found 4 different lists in different note pads with generally the same stuff on it LOL I hope it gets a little more evened out .. its getting really annoying and now I can't seem to find a reasonable excuse that makes any kind of sense for it to be happening so much.

08/25/2011 11:52 AM
claphappy
claphappy  
Posts: 4019
Group Leader

Linda

I have seen a Neuro for 20 yrs b/c of the Epilepsy. In the last 4-5 yrs I have been telling him about my memory problems and said now it's getting out of hand. I get totally lost and confused in the grocery store. A few times I meant to go one place and end up driving someplace else. What really bothered me was not knowing someone that I have known for 10 yrs. His wife has been my good friend and mentor. I could not connect the 2, or know his name if you would want to pay me $100. The neuro. gave me a preliminary test, I failed it. He advised me to see a specialist. He gave me a Dx of early on set alzheimer's , scared me to tears all the way home and into Joe's arms. UNTIL

When I was talking to my new RA Dr. she said depression can cause memory problems. I have been in dealing with Depression since I was 32. Off and on again, the DX of RA really set me into it deep. With the thyroid and epilepsy illness I didn't want to add a drug for this. It's my choice not to take Meds, I want to know how I feel even if it's feeling nothing like depression can do. Everyone has to figure it out with their Dr's help.

I would talk to both about your memory issues. I know the meds have helped many people.

Blessings CLAP


08/25/2011 02:23 PM
Cata
Cata  
Posts: 2061
Group Leader

Yes, depression!!! Depression has caused quite a lot of memory problems, speech (can't find words, mix up syllables, spell bad, etc,) concentration. Like you when working i am usually methodic, have my mental processes, and am capable of a high degree concentration. Not anymore, no with the depression. Another reason why i am not working, besides pain. God, i am starting to feel useless, and have to keep reminding me i need to be kind to myself....

I have had those problems to a lesser degree because of pain, exhaustion from RA, and meds that affects CNS. But for me depression is theone that has hit me the hardest. Bits has some stories of complete blackouts because of uncontrolled extreme pain

I would tell both drs, because it seems bothmight have something to say, and from a different point of view


08/25/2011 06:20 PM
progrmrgurl
progrmrgurl  
Posts: 649
Senior Member

I can definitely see depression causing all of those problems as well and I know that it has contributed. I guess I just wonder now because my pain has been much better along with my mood and depression. I even asked my Rheumy on my last visit if the next time I refill my depression meds if I could go down to 10 mg (I'm currently taking 20). I was thinking that it should be getting better and I feel like it's just getting worse. Maybe I am expecting too much too soon. Maybe it will take some time.

I will ask my docs too though. Just to see what they think. I imagine they will probably say the same.

Thank you so much for your input Clap and Cata Smile *hugs*


08/25/2011 11:05 PM
bits
bits  
Posts: 10865
VIP Member

Any memory problems need to be discussed with doc. I was sent to neuro for mine. And yes, I had total black-out periods I would never had known if not for my family. And if I had not trusted them I would have never believed it possible.

To this day I have no recollection of the movies saw, clothes bought, books bought, dinners out,some times spent together, and God only knows what else. It's still a bit frightening to know hours of my life are unaccounted for.

I was dxed with uncontrolled pain. I laughed at the doc. He was right.

I THOUGHT I had pain controlled. Of course, I didn't, I was and had been in harsh pain for a few years. I was stubborn and didn't want to take "too much" pain meds. My idea of too much was the prescribed dosage.

I began taking prescribed dosage and never had anymore memory problems. Somedays I take all 4 doses some days just a few. I use them as needed and do not let my pain rise above a 5 before I take one. Of course, at times pain slams me and I have to adjust meds. The pain slams me just because it can, never because I waited too long to take pain med.

Depression can cause memory problems. I take and have been taking Celexa for a few years and added Deplin as a depression med booster about 2 years ago and do very well on them.

I have a chronic disease. Because of RA and other health issues I believe I will take pain meds and depression meds the rest of my life.

I have to take hypertension meds for the rest of my life and hubby has to take diabetic meds for the rest of his life and I feel the same way about pain meds and depression meds...they are giving me a decent quality of life.

I used to not feel that way about pain meds and depression meds until I experienced a dramatic change in my body, mind, and spirit. And it was good.

Please, talk to doc about your memory problems. There are many reasons it could be happening and you need answers, so as, to get better.

Hugs


08/26/2011 06:49 AM
gettingoldsucks
gettingoldsucks  
Posts: 3428
Senior Member

I was so bad with memory loss and just putting together sentences During last big flare. It scared me to no end. Brain Fog. Couldn't hold a thought in my head for more then a few seconds and when I would talk, I made no sense to people. Sentences would be jumbled about 3 or 4 different topics. It was like my brain was in overdrive and sending signals that my mouth just couldn't keep up with. Then I would just sit and cry because I could hear the crazy things I was saying and knew it wasn't what I meant to say. People constantly accused me of being on drugs. This was when I was finally being tested by a Rheumy and no meds started yet. Was using only OTC pain meds. When it was over, I still don't feel like I got all of me back. I still feel dumber these days....

Do tell your doc about all of it. I agree that depression is the biggest culprit but it could be something else and it needs to be checked out.


08/26/2011 07:47 AM
PauleR
PauleR  
Posts: 1815
Group Leader

When my fibro was extremely bad and I was in a deep depression, my memory, word usage and organization went down the drain. I don't know how my kids learned what things were b ecause I was always use the wrong word. I remember along my son to put the carton of milk in the fridge, but I said "put the um..um..then pointed to the milk in the big white thing to keep things cold. I still have bad word days from time to time and my granddaughter, Lily notices and laughs saying "Grammy, you used the wrong word again!". One day my daughter, who is sleep deprived, used the wrong word and Lily told her it was me who does that, not mommy.

So, pain and depression can both affect those things, but like the others have said, tell your doctors and see what they think.


08/26/2011 09:50 AM
progrmrgurl
progrmrgurl  
Posts: 649
Senior Member

Went to see the Neuro today. He said it's Restless leg which I didn't know can affect the entire body. Which I was dxd with before but the meds they put me on back then didn't help. The soma helps so he told me to just keep taking that. I don't really like the idea of having to take all these meds for the rest of my life. I figured after the pain was better I would be able to stop taking them.

I talked with him about the memory loss and confustion. He said it is probably being caused by anxiety. I don't know. Guess I will do some research and try to improve it a bit on my own somehow. Not quite sure how I will do that but I have to try something. It's getting hard and it doesn't feel right.

I need to do some research on restless leg. I can't remember if it's a nerve related problem or not. Soma works through the nerves, so if it is then that would explain why it helps my Fibro pain and the Restless leg, the other muscle relaxers I have been on have just made it worse and I don't think they work through the nerves. I can't help but wonder how bad it will get because before I started taking the soma it was just in my legs after I stopped taking it .. it is now EVERYWHERE and man is it annoying. LOL

Thank you all for your feed back. I really appreciate it *hugs*


08/26/2011 12:23 PM
Cata
Cata  
Posts: 2061
Group Leader

Linda, i just thought of something... it is not at all unusual with meds that affect CNS to have rebound symptoms if you stop them abruptly, meaning you might get back the same symptoms you were treating, but maybe even worse. Did you stop the Soma without tapering down? maybe that could contribute to the twitching, and who knows, even the memory issues. I usually taper down meds of that kind, actually i usually taper down everything without looking if it is necessary to do so, because i figure if my body has been on something for a while it is better to remove slowly. I lower dose, cut the pill if possible, then go one every other day, etc.

You probably will be able to have less meds at some point, it is very likely because the Enbrel seems to make you good, so in time your symptoms will be less! I hope you figure things out. MAybe rheumy will have a different outlook. Please tell us how it goes. I have muscle problems and i am always interested in hearing how others deal with them (btw- i can't find soma here. Urgh)

Reply

Share this discussion with your friends:
<< Start < Prev 1 Next > End >>


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | About Us
Copyright (c) 2006-2014 MDJunction.com All Rights Reserved