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12/09/2007 15:31
Squeaker
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Posts: 19
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My Great Grandaughter has Rett Syndrom. She was thought to have Autism until she was about 6 or 7, then through all of the testing, different Dr.s and on and on, She was diagnosed with Retts. She is 17 years old and has grown into quite the young lady, although she has never spoken a word....She has such dietary problem, it is pathetic. Texture, texture, texture. She is now in a wheelchair for most of the time and she has many seizures, every hour. We don't know how much longer we will have her around but I know that she is loved and she is aware of the love. My Grandaughter and her husband have been a pillar of strength through this and I only wish that they could have a moment of peace. Thanks

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09/24/2008 11:30
angel1
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Hi How are you? I myself have a daughter that has Rett Syndrome and DEFINATELY understand the heartaches and physical challenges with our Angels and can only imagine as they get older it does get more physically challenging...but just take it one day at a time and keep up the good work cause in the end its our BLESSINGS and just seeing their beautiful smiles is rewarding enough...

God Bless

Angelina

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