Reflex Sympathetic Dystrophy Support Group

My doctors all say that this is a very important thing for those of us who have RSD. I'm not sure about those with actual nerve damage, please let me know about that.

Is everyone trying to desensitize? What are your methods?

When my legs hurt, I automatically rub them and have noticed that they are less sensitive than my feet. So, I have started rubbing my feet more. After a shower, I can't touch my feet, so I admit that I don't do much then. I'm hoping to work up to that.

I'm often trying to desensitize. When I begin the program I'll be doing it there also. At home I use a rough wash cloth. Like one dried on a line instead of a dryer. I briskly swipe it back and forth against the sensitive skin of the top of my right foot and my right calf. I've began moving higher up my thigh to fix it before it gets out of hand like the other parts. I also swipe my leg and foot back and forth on the bed sheets the best that I can. I often sleep with my foot hanging off the bed because the bed hurts. I just can't get into a comfortable non painful position.

It is very important to desensitize. Even with the nerve damage that I have it's important for me to continue doing so. I haven't worn shoes for years and when I'm forced to because of rain, I try not to go anywhere, but really I shouldnt do that it just makes it worse the next time.

Wishing you a pain eased day,

~Twinkle

My feet and legs have no nerve damage that I know of. I also cannot wear shoes or socks nor have anything touch my feet without extreme pain. I am still trying to desensitive them, so far with little effect. I do use the training with more effect on my upper and lower legs. I hope to be abl to slow the progress of RSD through this, as I did in my right hand and arm. It took 7 years for the disease to cripple that limb and the Pain Doc attributes that to occupational therapy, exercise and desensitivation training.

Rev Maryanne

Okie~ Noodles

Craig

This is something that alot of my doctors have asked me to try alsowhile getting my degreethis was a method that was used with several things as well as pain. Yes, texture is good to try as well as maybe tempture and some light presure and even just simple touch or message by family member or close friend as you don't want a heavey handed person. Just a thought but it did help my left hand and arm.

Here If You Need Me

Curt

Lady Jane