MDJunction - People Helping People
 
Ask a Question
03/12/2012 09:21 PM

Trying Memantine(page 2)

cfthb
cfthb  
Posts: 873
Group Leader
I'm an Advocate

Thanks, gail!

Those were some very nice words you wrote about me, especially my willingness to stay with it despite being in remission. Folks have wondered about my motivation many times - always nicely, but they're still very curious. Same thing with my web site, whose URL is in my sigfile.

This is why I do it all: First, it's intellectually very satisfying! Even though I can't teach right now, I'm still a medicinal chemist who naturally seeks out problems like this, but there's no motivation like having the illness yourself. I had hundreds of RSD bookmarks and paper reprints long before I considered a web site or a support group like this.

Another reason: In many cases, only my knowledge of medicine and chemistry has enabled me to get the care I needed, and I kept thinking how wrong that is. So I try to post scientifically accurate material here in language everyone can understand. Nothing is referenced by me, either in this forum or on my web site, without my having read the paper myself, so I know that its contents are being represented accurately.

Both of these endeavors are my way of giving back a little to the wonderful community who supported me so lovingly when I was so sick I wasn't sure I wanted to wake up the next day, if by some miracle I happened to sleep a little. It's extremely satisfying and gratifying to help separate the truth from everything else - often the truth can be very elusive!

Howard

Reply

03/12/2012 09:28 PM
cindy61
cindy61  
Posts: 540
Member

Howard,

You are a true blessing on this site. Like I said I investigate everything but not being a doctor or have the knowledge and degree to back it up it makes it hard to convince a doctor of a good thing. Most doctors or I should say specialist think they know everything and are unwilling to open their minds and investigate it themselves. Having you on here helps alot.

Thanks again,

Cindy


03/13/2012 03:50 AM
BoradorLover
 
Posts: 22
Member

Thanks so much Howard on spending so much time on this, it does sound encouraging and I will certainly keep you guys up todate. It's kinda exciting trying something that might have the potential to help many others and letting people know about it, this it self is making me happy and putting a smile on my face!

Third day in I am feeling rather yucky with nausea and some chest tightness but no breathing problems, and going to keep at it as its tolerable.

As a point of interest, my PM dr told me someone at a pain clinic in Adelaide was put onto it for severe phantom nerve pain a couple of weeks ago! Fingers crossed it will help us CRPSers!

Good luck to anyone that goes ahead and tries it xxxxx

Post edited by: BoradorLover, at: 03/13/2012 03:58 AM


04/02/2012 03:47 PM
Chrissy33rsd
Chrissy33rsd  
Posts: 49
Member

Has anyone been put on this? Or have any information on this? I am still working on talking my dr into putting me on it.

04/04/2012 08:20 PM
cindy61
cindy61  
Posts: 540
Member

Chrissy I will be seeing my doctor in a couple of weeks and that is one of the things we are going to talk about is trying Memantine. He was going to do some more research on it but can't see any reason not to try it.

Cindy


04/05/2012 04:29 AM
BoradorLover
 
Posts: 22
Member

I am finally up to the max dose of 20mg, it has taken 3 weeks, so far no relief, but PM Dr did say it would take around a month and the lady who suggested the med said it took her two months, so now I will have to wait and see, so hoping for some relief!!

04/05/2012 05:51 AM
thematrix777
thematrix777Posts: 297
Senior Member

I was just reading about memantine. The prescribed use is for Alzheimer's. I have never heard of anyone taking it for RSD but many things are prescribed "off label"

I'd sure like to hear how it works for you. Let us know.

Here is a link if others want to read about it.

http://www.drugs.com/mtm/memantine.html


04/05/2012 11:37 AM
cfthb
cfthb  
Posts: 873
Group Leader
I'm an Advocate

About Memantine -

I'm sure not one of those that say off-label prescribing is a bad thing. But I'd feel a lot better about this if there were a single scientific study that investigated its efficacy in RSD. But despite using every research trick I know - and that's a lot - I have been unable to find any mention of memantine in the context of RSD. DOES ANYONE HAVE ANY BELIEVABLE SOURCE SAYING THAT MEMANTIME WORKS ON RSD?

Howard


05/06/2012 04:28 AM
BoradorLover
 
Posts: 22
Member

Just a update on the trial of Memantine - I tried it for 7 weeks and unfortunately it did sweet **** all for my crps, so I am weaning myself off and have asked my PM dr to try ketamine infusion sometime soon.

I do think that the Memantine does have some pain relieving qualities as while on it I had no period pain at all, so it maybe worth trying for some sufferers, everyones different, I have been resistance to just about everything.

Hugs to all xxxxxxx


05/06/2012 06:35 PM
maddiesgram
maddiesgram  
Posts: 2330
Senior Member

Hi Boradorlover,

I'm sorry to hear that both for you and for all who might have been helped by the medication. We are all different, of course, in how we respond. Thanks for letting us know how it went. I hope you're able to get those infusions if that's the next thing you want to try. Please let us know if you do! It's not that I want YOU to be the guinea pig, but I can't get the infusions or I would.

I wish it had helped you more and hope you're doing OK. Stay in touch.

gail

Reply

Share this discussion with your friends:
<< Start < Prev 2 Next > End >>


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | About Us
Copyright (c) 2006-2014 MDJunction.com All Rights Reserved