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03/18/2011 07:38 PM

RSD causes stress = Heart Issues.pls read importan

painsurvior
Posts: 21
Member

I recently spent over a week in the Cardiac Care Floor of a major hospital..thought I was having a heart attack I'm 39 and in good shape other then the RSD..what they found was after doing a angiogram and angioplasty on me was that it looked like my heart was healing on it's own..they called it "the broken heart syndrome" same issues as a heart attack but not as damaging..It is brought on by huge amounts of stress emtional/physical ect..u can look it up on the internet for my info..but mine was due to all the stress of not knowing what's gonna happen to me how am I gonna survive with RSD I don't know if I will be able to work again take care of my home,drive every again or do any of the things my life once entailed so when the Doctor came in and asked Are u stressed I just looked at him and then had a long talk with him about all the things rsd takes away from u and the pain it causes to the body...So please keep this in mind that this can happen to anyone under severe stress talk to your doctor about this it does have a more technical name u can find it on the net just type in broken heart syndrome...don't wish it on anyone it was really scary..
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03/18/2011 08:20 PM
Fletch2ya
Fletch2ya  
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I'm an Advocate

HI.... I know just what you mean.... I was in the heart ward ICU, for about a week, thinking I was having a heart attack...... they did all the test, and what they said was, it was caused by the RSD...... It was really scary,,,, I still hve all the symptoms of having a heart attack.... pain in the chest, pressure,feels like a truck is sitting on my chest.... pain down my left arm and up into my jaw and teeth.....

I will never really know if I am ever having a real heart attack.... I hve also had a stroke from the RSD.... that was even worse........

Craig

Craig


03/19/2011 06:15 PM
playerofpool
playerofpool  
Posts: 5
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Hi yes be very awear....In 2008 i did have a heart attack, Ive had CRPS for 19years now, 2years running up to my heart attack was more stressfull, 2006 it was decided i should have a SCS, it was put to me this was the only thing that would help with my pain so you can imagine how important this was, the wait [due to funding issues etc] was very hard. Then May 2008 i was told money allocated was going elsewhere [hospital politics] didnt know if let alone when op would take place - i remember telling my concultant that day i couldnt cope any more, there was no comment to this. I went home and cried for the next 2days, then the pains in my chest were hell - i was having a heart attack and spent the next 3 weeks in hospital, i had a angioplasty [by a doctor who had never heard of and didnt want to know about CRPS/RSD therefor putting me through even more hell]

The heart concultant said heart attack was brought on by stress.....

The hospital management said it wasnt any thing to do with stress of CRPS......

Bren

My pain concultant wouldnt comment......


03/21/2011 09:52 AM
rsdcrpsfire
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Morning Bren

I'm so sorry that you had to endure all this. This is one area that I don't have enough experience in. I have heard some CRPS patients say that they believed their heart conditions were brought on by CRPS, but I haven't learned for certain that it is accurate since all the doctors that I know of from talking with fellow CRPS'rs won't document it as such.

I'm also not at all saying this can't be true. I couldn't say such a thing.

I am though still learning about the link between the two. One thing I do believe is that not enough doctors or even specialists are educated in this illness. That I don't understand at all. Especially since RSD was first discovered during the Civil War. That's a very long time to learn about it.

I'm so sorry you had a heart attack and have gone through all of this.

You'll remain in my thoughts and prayers,

~Twinkle


03/21/2011 06:46 PM
painsurvior
Posts: 21
Member

My RSD specialist, family doctor and psychiatrist have all stated that it is a fact that there is a correlation b/w RSD/CRPS and stress induced heart problems..Plus the doctors/heart surgeon in the cardic ward I was in also agreed it was due to the incredible amount of stress related to RSD all the emotional/physical stress your body goes under due to this syndrome is a major heart stressor and can indeed cause many heart attacks/strokes and what I had called "broken heart syndrome" Once you go through this it is so hard to calm yourself b/c the symptoms persist for a long time and it's true you have a hard time knowing if it's a heart problem or due to the stress so it is very scary all around and it is an issue that needs to be made aware of in the medical field but I am not at all surprised to find many doctors are unwilling to link the two even when the data is there and the studies confirm this correlation..after all not many doctors fully understand RSD/CRPS I feel very lucky to have such a great medical team who are very knowledgeable about all aspects of RSD/CRPS..to all I wish you the best and keep insisting to your doctor there is a relationship b/w the two..lots of hugs

03/22/2011 08:49 PM
patty777

Thank you very much for that information...it makes me wonder what more is in store for me in my future? Don't know how many more problems I can take...hope it eases...

03/22/2011 11:58 PM
DarkPain
DarkPain  
Posts: 366
Member

I am not sure where other people are in this but one thing that is really personal that I have to deal with every night is trying to sleep. I have always thought that there is too much great stuff going on that I didn't want to sleep. That has changed since I got RSD.

As soon as I hit my head on the pill my brain will not stop thinking about anything and everything. From trouble breathing to finances to my two little girls needing me as their daddy (I hope) and my darling bride having to carry the heavy end of the load.

I guess the bottom line for me is: "I am scared."

That probably is why I don't go to bed so well and I don't sleep so much. If I sleep 8 plus hours, my arthritis is hard on me getting up. Some times my arms feel like they weigh 100 pounds each and I can't lift them to get out of bed in the morning/afternoon. My legs feel like I can't move them. It is all psychological stress.

I am also ashamed to say that I use biofeedback, breathing that is controled, don't take any medications that can slow my breathing, other stuff that I can't think of now.

All my life I have always had trouble going to sleep. My mom said that even as a five year old, I would go into my parents room and just stand there. They would wake up eventually and have to lay down with me.

So here it is 3am and I was watching "Top Shot" cause it is the only thing that I care to watch right now. I will try to go to bed and probably get up at about 8-9am.

Betsy just started training for insurance sales and I have spent much time in prayer. Prayer just does not work for me when it comes to sleeping. I do take my mind and develop securities to keep me literally safe. That may not make sense but I make up obstacles and do things to try to occupy my mind.

I hope no one makes fun of me here, because it is real. My whole family is very healthy heart wise. My grandparents lived in their 90's and my grandpa's heart would not give out for over two weeks as we basically waited till he went to heaven. It was stressful for me as I was the one that did the funneral.

I think all my fears 'come out to play at night'. I am not ready to deal with this and I don't know if I ever will be able to do it.

Oh well....I ratted out on myself.

Charles


03/23/2011 09:23 AM
rsdcrpsfire
rsdcrpsfire  
Posts: 2023
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I'm an Advocate

Morning painsurvivor

I wouldn't at all doubt the possibility of a heart attack based on the stress factors alone from RSD/CRPS.

Thank you for sharing what you have with us. Especially when you (yourself) have a team of doctors linking it. I'm so glad that you have such great docs.

Again thank you,

~Twinkle


03/23/2011 10:45 AM
revvanbus
revvanbus  
Posts: 2032
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Charles, I don't think anyone here would make fun of you, Nighttime is the pits for many of us. If we are set up psychologically to dwell on our problems, night time is when we usuually do it. I am. And I hurt worse at night. So I sleep for about an hour and a half that my meds give me, then I wake up because of pain and unless I can get into my mind-body exercises or in a movie or an aural, visual, or other sensory memory, I get into a pattern of dwelling on conversations, emails, physical problems,....As you can see, I have to become involved in a sensory activity that puts me in a memory in order to get beyond this. Can I always do that. Oh no. That is always my goal; not my reality. Does RSD/CRPS cause added stress? Yes!

Does RD/CRPS cause heart problems? From my recent readings the heart can indeed be affected as can any other internal organ. Most commonly the bladder and the digestive organs are the next in line after the skin, muscles and back. But since the nerve pathways of the spine and the brain are involved in the syndrome, the heart can be involved in addition to the stress of the RSD/CRPS and the losses it entails and the pain and depression that are part of it. Charles, I would be very surprised if in time it was not involved. I have congestive heart failure from being in a wheelchair and inactive, having edema in my legs and lungs from the RSD/CRPS and having diabetes.

Hang in there. The one thing I can almost guarantee you is that in a short period of time things will change. Not necessarily get better but change.

Sending hugs and prayers for less pain and better rest!

Rev.


03/23/2011 06:31 PM
painsurvior
Posts: 21
Member

I as well find no cause to laugh at your predicament RSD/CRPS is such a debilitating syndrome with too many issues that follow once you get the diagnosis..I too have a hard time falling asleep and find myself getting anxious about my future and what I am gonna do with it. I have many ppl depending on me and I just can't be there for them as I once was..plus I am in limbo at this point not knowing if I will ever be able to return to work do what I once did and get my life back where I was happy...but I too try to distract my mind when I begin to feel upset it is so beneficial to find something you enjoy doing and when you find yourself/mind not slowing down focus on this...it does work about 90% of the time.I wish you all the luck in the world Charles
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