Hi everyone!

Take care and Hugs!!!

Lisa

HOpe to talk to you soon....Prayers and wishes

Craig

My name is Bobbie and I can completly understand your shock and disbelief in such a small injury causing such major havoc in your life. I had what one would consider a freak accident on an Elevator last Jan 19th being 2007 where the elevator jumped as I was getting off and my heel caught as I stepped off and I turned my upper body turned but the lower part of my left leg did not.

My knee popped. I thought nothing to much of it other than it hurt some but did the Worjer's Comp paperwork as required by my job and went home for the weekend. By Monday morning the knee was so swollen I couldn't move it so I wnet to the Docotr's and they did all the tests told me I had to have an MRI when the swelling went down. They found no injury at all but by that point you couldn't even touch my leg without me jumping off the table from pain and the discoloration from lack of circulation was unbelivable. The good thing was her PA used to work with an Orthopedic who did alot of work with RSD patients and she caught theisgns real fast and they did the EMG and NCV tests fast. They refered me to a Great Pain Management DO here in Jacksonville, FL DR Salahi who I treasure to this day. I went thru the shots and drug treatments in fast steps nothing worked and he immediately said well then let's go witht he Neurostimulator Implant. He was real clear on the fact that it was not a cure nor an be all end all I wen th thru the Psych eval and did what I had to and I now have it. Let me tell you I can now sleep again at night and get dressed if if that is all it gives me it was worth it all because I never thought I would sleep again and getting dressed was torture.

My problem now is that even though everyone know I have RSD no one will call it that in my final Diagnosis nor will they give me a disability rating for work. I still can't sit for more than 30 minutes without my leg changing colors and loosing circulation nor can I stand for any length of time. I also have a court case that requires me to have independent Doctors from my Worker's Comp docotrs review me and trying to find any around here is a nightmare. Neruologist want to refer me to Orthopedics who specialize and no Orthopedics around her specialize in it unless it is spinal cord related or in the hand or shoulder. So if anyone knows of someone in the northern Florida or at this point anywhere in Florida that is an Orthopedic that specializes in RSD please let me know.

Have you written to Jim Broatch at jwbroatch@aol.com? He is with one of the large rsd groups online. One of the organizations and he can help you find somebody that might help you. He has done so for people in our area. Let him know that I sent you and that you are looking for whatever type of doctor you are looking for and he'll put out the word and hopefully they will get some good response and somebody to help you out. They work with some really great doctors and have a database of doctors that are really good throughout the country. We just recently started a local RSD support group in KC and he has been so very supportive.

I'm so sorry for what you have been going through. What a weird thing to have happened with the elevator, huh? I think all of us who get this disease have a weird story of how we get it. It's just such a strange disease and the way we get it is so unbelievable to other people... but so real to us. I sure hope you get your WC awarded to you sooner than later and that everything goes well. You certainly deserve to be treated right!

Take care and feel free to contact me anytime! You can also write to me at my email address at lisakcoan@yahoo.com.

Love, hugs and peace,

Lisa

How have you been doing? Haven't heard from you in a while? How's your pain been doing? I found that I was shorted on my pain medicine this month but didn't find out until almost the end of the month. It is 7 pills of my oxycontin 80's. thank goodness I did a pill check when I did or I would have been without totally for over 2 1/2 days! As it is I am having to go without one dosage for 4 days. This stinks! I hope you are doing okay and that you have beenhaving lower pain than usual. I know that's like asking for a miracle but I believe in miracles LOL. Keep in contact, ok?

Love, hugs and peace,

Lisa

Love and Hugs back at you,

Bobbie

I promised my grand daughter that I would be with her on her birthday... that is today.... Jan 14th...

Well just before that I was in the hospital myself... and then my mom has been ill....

I did come up to Mich. to see my grand-daughter, but have to leave because my mom has been taken to hospital today in serious condition.... so I may be a few days before I am able to get back with you all.....

Again I want to thank you all for your input here.... You guys are the best.......

I will be back..............(sorry)

Craig...

Love, hugs and peace!

Lisa