Reflex Sympathetic Dystrophy Support Group

Hello Everyone;

I've noticed that more lately that I have more pain than I have swelling.Has anyone else dealth with this.

Hi f820

I can only say I thought I was having more pain than swelling until my therapist was giving me a treatment on my foot and noticed indents, big indents where she was holding my foot but yet my other foot didn't look any different except my bad foot is turned outwards.

Wishing you better days ahead and somewhat painfree

Sissy

Hi f520,

My swelling has never been very bad, but the pain..... YES! I also have red blotches, that tend to get redder as the pain increases.

Barb

HI...f520... when this whole thing first started.... I had swelling like you would not believe.... my fingers looked like sausages, and my hand looked like a basketball.... my forearm was swelled up so bad it looked like a "Whiffel Bat". They were so shiny that you almost see yourself in them.... Now the swelling has gone done, except in times if I really over use them, but the pain is still there, most of the time just as bad if not worst. .... I believe as time goes on, the swelling goes down, but the pain stays..... but that again is still onyl my opinion......

Craig

Withy CRPS in the begiining my pain was much worse than the swelling.

However, now the swelling is catching up with the pain and sometimes surpasses it.

I think our CRPS is very different from each othersw and I notice that from day to day my CRPS changes.

Craig I agree, in the begining my foot and toes were swollen and my toes look like sausages....the only time I get swelling is when I've over did it. Like now my foot is aching and burning. It is also a different color than the other foot. @Barb I completely understand your pain. @Sissy I noticed that my foot is turning outward also, I think its the way were Walking. Thanks for all of your comments!

~Felicia~<3

I've had a similar experience. My foot hardly ever showed signs of swelling until just a couple of months ago. It was an issue with one of my doctors. He seemed to think that swelling was mandatory, despite everything I've read that indicates...

It's one of the many things that varies between people.

Interesting that others are mentioning their foot turning out. I'm the same but I never noticed it until I got crutches. I can hardly put weight or pressure on the ball of my foot. So, I turn it out so there's no pressure on it. Of course, that in combination with a walking stick was messing up my knee and back...

fim

Post edited by: footinmouth, at: 07/18/2012 11:31 AM

I had swelling initially....even after the normal post op swelling should have been gone. My arm was blue and mottled and hurt to move at all. The swelling is gone...the pain is intense. I must add while I am thinking of it - I wear a compression sleeve though so this could play a role in decrease of swelling. Now I can move my arm...not completely normally but can move it. It gets red and blotchy during a flare and all the hairs from my shoulder down to my wrist stand on end...OUCH!

FYI: No Hottubs... even though it may feel good at the time - it can cause swelling do to dilation of vessels in affected limb.

Swelling was INTENSE during 1st 4 months. Unbearable pain, though that description has morphed since this thing began. Pitting edema, could fit foot 2/3 into largest shoes. No more ability to fit into orthotics. Finally spinal blocks reduced edema to occaisonal low level edema which is pretty constant.

Hope this helps.

jp

Yes I'm going through that now. I'm not saying that I don't have "any" swelling, because I do, quite a bit. Now, my foot does look much better but, the pain is absolutely unbelievable. got worse, a lot worse. But, my family especially kept saying, oh look how much better it looks, and you're not using your wheelchair or crutches as much as you did, so you seem better. They don't realize the pain and agony., I can't even cry, yes it gets that bad. I've noticed other symptoms and, I'd like to know is any body else could be having any of these symptoms, The first is itching, I scratch all the time all over, I went to my mpd and she gave me a dx for antihistamine, in case, it's the fentanyl making it itch. The other is forgetfulness with some stuttering, but mostly forgetfulness. I can't remember anything. The other like a mini seizure, or jerking. It's not tremors, they have more force. I hope to hear from someone soon. My prayers are with all who must suffer with disease.

Post edited by: Pannfrank, at: 09/27/2012 09:40 PM